In so much pain

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Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 7/8/2011 1:44 PM (GMT -6)   
I am almost to my breaking point. I am in extreme pelvic & bladder pain and it isn't easing up at all. Saw another Urogynecologist this week. He inserted a cath, and then did a internal exam. The internal exam was so painful. He thinks I have pelvic trauma and dysfunction. I had a abdominal hysterectomy in 2004 and a bladder lift at that time. The 2009 I began suffering from pain again...Then my colon tore thru the vaginal wall and the colon and bladder fell out of my body. Was like that for 5 months before finally finding a Doctor that could deal with both the colon and bladder. The pain is back and I don't even want to move it hurts so bad. They say that I am also in like a constant severe spasm in my bladder and pelvic floor, and that apparently no meds will work. They want me to try physical therapy that specializes in your pelvic floor muscles. He wants me to go 8-12 times a week, ugh...That almost seems impossible and having to go 2 times a day to the hospital.

I am so depressed and just don't know what to do. Thanx for letting me vent.
Your Healingwell Friend,
Serenitee...


7-child births, 4-knee surgeries, C-section, Ruptured appendix, Positive C-Difficile too many times to count, Psuedomembraneous Colitis, Tumor removed from head, hysterectomy, bladder lift, Complete pelvic and vaginal vault lift, Colon and Bladder fell out of me, Shoulder surgery, Loop ileostomy...this is just some of my surgeries.

Dx this year, Bipolar 2, Borderline Personality Disorder, Extreme anxiety, Panic-Disorder,

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/8/2011 1:48 PM (GMT -6)   
 
      Hello Serenity!
 
          My sister just had the same surgery, and she is still recovering from it. I feel badly for you, and hope you can find some sort of relief soon. I know you say no meds will work, but have you tried several of them?
 
   Take care, and again so sorry you are hurting.
 
 SE wink
Moderator Chronic Pain Forum

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CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 7/8/2011 4:41 PM (GMT -6)   
Serenitee, I'm sorry that you're hurting so badly.

Thinking of you *hugs*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 7/8/2011 5:18 PM (GMT -6)   
Hi Serenitee
I'm sorry to hear your in so much pain. I wish could could offer some advice. Hopefully you will find something that will help for pain. Just wondering if the doc says no pain med will help...how does he know??..Worth a try. Keep complaining to your doc, somethimes it's the squeaky wheel that gets the oil so I won't let the doc of the hook so fast. Hope you feel better. I'll my best .Stingray(Randy)
Chronic Back Pain, Anxiety, A little Depression
Meds: Oxycodone, Oxycontin, Clonazapam

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 7/8/2011 6:23 PM (GMT -6)   
Hi Serenitee I'm so sorry that you're in so much pain. If I were you, I would keep telling the doctor that you need something for the pain. Maybe try a muscle relaxer and a pain med. I sure hope you feel better soon.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 7/8/2011 8:25 PM (GMT -6)   
Did you ask at all about the stimulator for the bladder spasms? My aunt had this done many years ago, but at that time it was investigational. I will get info from her if you like, just let me know.

Big hugs,
Shell
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/9/2011 12:02 AM (GMT -6)   
Serenitee...
 
I'm so sorry for all you are suffering from.... and I hope you can get some relief, somehow, someway.  I've had 7 c-sections...and have severe pelvic pain.  I've got a slip for a pelvic ultrasound.... but it's just one of the 1000 things I need to do.
 
Anyway.  I'm sorry you are hurting so terribly...
 
--Tina
 

realpaintoo
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/26/2011 6:09 AM (GMT -6)   
Sorry...you are in so much pain....
 
Not only do you need your insides renetted up properly on the inside but it also sounds like you have interstitial cystitis. It is where the inside of the bladder (mucous layer) is damaged and the nerves are exposed. It feels like a bladder infection and bricks on your pelvic area all the time. Plus you get spasms from your nerves up your spine and even sometimes down to your knee caps. I say this because no one with IC can handle a catheder or even anyone touching their bladder....betcha cried all the way home...didn't yah? I won't let anyone touch my bladder while awake.
 
First you have got to stop the spasms. Go to a urologist and have them check you for IC. They rub potassium on your bladder and watch it inflame while asleep. They have to take pictures. It took
my doctor 6 months before getting my pictures back. And doctors 5 years to finally diagnose me correctly....on top of that...plus they opened me up and checked every organ I had prior to checking my bladder because they said a cyst on my ovary couldn't possibly be causing that much pain and I kept insisting I was insisting I was in extreme pain... and.....you have multiple other problems. But you've got to get your bladder under control.
 
Things I do to calm my bladder pain...take one or two doses of macrobid....take bladder numbing pills sold over the counter (peridium...take with peanut butter sandwich and lots of water and lay on left side for 20 minutes or stomach will hurt)...5mg valium (one other IC lady told me about those because vicodan by itself wouldn't work for her...they have worked the best) i take a couple a day and unfortunately I have to take two vicodan a day to function and work because I have a family to raise. Use a heating pad alot. Tums help too.  In the meantime, go to the IC network and find what foods to stay away from. Everyday I have pain...and the pain meds I take only take the edge off.
 
IC has also riddled my body with gastrointestinal problems as well...if your stomach won't digest food or it hurts...drink acidophilus milk(has enzymes that digest food...I put it in my cearl...has a sweet taste...but basically taste the same. Sometimes can give heart burn...but take an over the counter zantac...if you incounter this reaction. Sometimes I do...sometimes I don't have heartburn. And take activa yogurt but not too much...it has potassium in it....just enough that your colon needs it. Doctors are great at taking bacteria out of your body but don't give you advice on how to put the good bacteria back in. Especially if you've had to take laxatives or miralax. Listen to your body. If your stomach hurts after a meal and you've taken a laxative in the past....drink the milk I told you about (I usually do this in the evening). And later the next day activa yogurt.
 
Stay away from coffee, tea, chocolate, bananas (potassium), tomatoes....check the ic network chart for foods to stay away from. 
 
i betcha over half your pain is your organs resting on your bladder. You look normal on the outside...but on the inside...you are in agony.  Not many understand...just close family members who see you in the pain on a daily basis understand.
 
I'm not at the age where my insides are starting to drop....but all of us get there...and I'm not looking foward to it...in fact....I'm dreading it. First make sure your insides are netted up...and then get checked for IC. In the meantime stay away from food that inflame bladders and gastrointestinal tract. Use bladder numbing pills (I only take these when necessary becuase they hurt my stomach....but once my bladder is calms...I can be good for months...so it is worth it), acidophilus milk, activa yogurt and heating pad to keep your nerves calms and digestive system regulated.
 
I'm not a doctor and certainly not trying to diagnose you....but neurological pain in and around the bladder is the worst pain and hardest to diagnose. And I suffered through two preganancies without knowing why I was in so much pain....I would take 8 ibuprofen a day. It was truely a nightmare and still is to some degree it is but aleast I can function now and not be bedridden all the time. And I know what is wrong with me.
 
And don't let doctors let you believe spasms of any kind are normal and should go untreated. You need anti-spasm meds like valium. they can make you sleepy at first...but eventually that feeling goes away. Don't take alot...just enough to take the edge off you pain with ibuprofen. If ibuprofen isn't working...tell them how much ibuprofen you are taking...and then they will resort to a low grade narcotic.
 
Good Luck...I wish you the best. And I will pray for you.
 

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 9/3/2011 11:36 AM (GMT -6)   
Hi Serenitee, it's been a while since we have chatted. I was wondering how you have been feeling

these days? Is your pain a bit less? is anything helping your pain yet? I sure hope you

are having some better days now. I know you have been suffering terribly.

If you can, give us an update as to how you are doing.

Take care
Suzane

Maine-Girl
New Member


Date Joined Sep 2011
Total Posts : 11
   Posted 9/5/2011 11:29 AM (GMT -6)   
So sorry for what you are going through....sending healing thoughts.

Lisa
38 Year Old Female from Maine

Cervical Disc Disease
Severe Daily Migraines
Cerebrospinal Fluid Pressure Issues
2 Previous right shoulder surgeries…pending shoulder replacement (Sept 2011)
Full Hysterectomy
PID that caused my Appendix to Rupture
2 Breast Reductions
IBS
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