Hi Anthony, and welcome to the Chronic Pain forum. I've had CRPS/RSD for 12 years - mine started after a knee injury when I was 14 and has spread from there. I've got full body and now internal involvement. There are a few other members here with CRPS as well, so you're not alone.
I'm sorry that yours is so bad right now - is it 'just' your leg/s that are affected? How long have you had it? What treatments have you had or are you on now?
Please don't give up, and please try your hardest not to give in to a wheelchair - if it helps you with getting out and about
, then that's great, but remember (I don't know how much you know about
the 'workings' of CRPS) that not using your affected limbs can actually make CRPS worse.
It becomes a 'rock and a hard place' situation - it's often impossible to walk because of pain and other complications (for example I've dystonia with equinovarus deformity of both feet that leaves me heavily reliant on a chair for anything other than very short distances.
Using crutches or a wheelchair carries a lot of problems - it can contribute to oedema, to loss of muscle, to osteoporosis, but most importantly, the less you use your affected limbs, the more ingrained those abnormal pain signals of ours become. I guess what I'm trying to say is if you have to use it, use it in moderation - use it to give you a life outside your home, but try to keep moving as much as possible AT home :)
We're all here for you as a source of support, but if you've got any CRPS/RSD questions please feel free to ask. There's not much I haven't come across and not many treatments I haven't tried.
(edited for easier reading) Thanks! SE
Post Edited By Moderator (Screaming Eagle) : 7/11/2011 8:24:14 AM (GMT-6)