Ok I have e-mailed Chutz, nothing yet but I am sure she is looking over any legal ramifications of using the names HW or
Trudy I think you probably hit the nail on the head as it were, someone, somewhere of all the legislators out there be they big guns or little guns, some of them have to have health issues similar to ours. I mean lets be real, alot of them are much older than me even, at 58, what wasnt hurt originally is now in line to have all kinds of arthritic, osteo, etc. problems.
I believe with or without the use of the names, we are strong in numbers, as individuals we have all suffered at the hands of people whose first thought is "junkie looking for drugs", I remember passing out from dehydration years ago, as I went from doctor to doctor the Social Security people sent me to. It was 90 some degrees and 100% humidity, I passed out at a bus stop. Someone was kind enough to call 911, when they got there after giving me sips of water, someone asked me if I was taking meds, and what Iwas taking, I whispered I was taking methadone ( if was pill form, prescribed by my doctor, but I was not able to say that much), they quickly turned both my arms over, looking for track marks, prior to that the put gloves on in case I had some horrible disease caused by the drugs they assumed I was taking. From that moment on they treated me like trash.
Of course when I got to the hospital and was aware of what was happeing to me, talked to a doctor, explained what was going on, my treatment improved 100%. I think what bothers me more than anything, what if I had the disease of addition? Does anyone deserve to be treated like they are not worth much, why treat them, they are just junkies.
Guess what, those "junkies" are somebodys mother, daughter, sister, grandmother, dad, brother and on and on.
Sorry got off subject there, so with or without HW, cp forum, I am beginning my campaign of letter writing from my county excutive, on to my congressperson, senator, then I am going to the media, I happen to live 20 miles from the nations capitol, The Washington Post will be my first stop for the media, from there local news stations are always looking for a story about the "people" who have been put upon my the big bad government. Well I can look very pitiful without even trying. Sometimes I am quite pitiful, I try very very hard not to feel sorry for myself, I always tell myself there are others out there worse off than me. We all found each other hear, we just need to take our stories out there, show people we are the ones who suffer due to the few who do play the system. I am sure there are more of us truly suffering due to chronic pain then the people who suffer from the disease of addiction. Maybe if they found a way to treat addicts differently, these two paths would not even cross.
Ok lets go out there and write, I am not going to wait for an answer about using HW/cp. This is the reason we all found each other, but we are the people who suffer. HW/cp they just introduced us and I am forever grateful for that, but I will in no way use the names of the very reasons we know each other, we dont have to, we all in some way know each other.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson