Stuck in bed and feeling low

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Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 7/12/2011 10:14 AM (GMT -6)   
Camping last weekend was a success, but I had only one good day, Saturday, and it was only in the morning. I have such a loving family group. My boys and fiance helped with everything, packing, loading, planning meals, then cooking, washing up, taking turns getting water, escorting me to the handicapped family bathroom to shower on the shower seat (with a mat under me of course) and using the higher toilets. No one complained, even on the night of 6 trips to the bathroom. My fiance is a trooper, always carrying the flashlight and supporting me with his arm. I couldn't have asked for better. Even with the pain, it was a relaxing trip of reading, gentle walking, swimming and rest.

My patches are giving me no relief right now. It feels like there is another ovarian cyst on the right side, my hormones are out of control causing PMS like symptoms and cramping. I haven't had this for years since my hysterectomy. I am tired and see the Gyn surgeon on the 20th. I don't think I can wait that long. I called both him and the PM doc today trying to explain the new pain and am waiting for return calls. My breakthrough meds give about an hour of relief then quit on me. This is the 5th day of this ripping pain. I am not walking around for fear I will faint in front of my sons and scare them. There are moments that I have to step aside from reading or typing to reorient myself. I get foggy a lot.

I know others are suffering too, Loretta, our new member renren with withdrawals and medications, Jim with his lack of Cymbalta that helped him so much, Tina and so many others. I am sorry if I missed your name. Its not so much depression that I am feeling right now, just a large dose of unhappiness that my body is going through this again. The upheaval and struggle is so far from where I want to be. It doesn't help either that family are causing issues about the wedding, which is 3 months away, over a simple request. I am unable and unwilling to meet everyone's expectations for what they want because there is no way to make them happy. The ones that we are able to fulfill that fit with what we want, we are doing. I refuse to attempt to make others happy with our wedding, because there is no pleasing some people. Its also our wedding that we are paying for and my only responsibility is to myself and my fiance. The good old standby threat came out, "I just won't come." My response was that was fine, their presence would not be missed. I also lost my temper in front of my future mother-in-law on the phone with my fiance. So I am trying not to focus on any of that while the pain is so bad.

I cant even crochet at the moment. My hands are swelling too much to hold the tiny threads and hooks.
Sometimes the best place for me physically is my bed, but I want to be a part of my family, not stuck in my room.

Hope you are all having better days, happy times, and enjoying the weather (good or bad) today.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 7/12/2011 11:25 AM (GMT -6)   
Sounds like the camping trip was good for you, but that it was hard on you..sorry about that.
Hope you can rest up today and that maybe some rest will make you feel better...
lots of well wishes and prayers for you...Sounds like you did the right stuff on the wedding issues, sometimes
people don't know they are out of control until they hear "fine, don't come" that was a perfect response,
don't feel guilty at all about that.. you did what you could, it's "Your" special day, you did good..
your one heck of a good person, remember that...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 7/12/2011 11:27 AM (GMT -6)   
              Momma!...I'm glad you got to go camping and it sounds like all pitched in there for you. My wife and I need to do that, but I'm afraid the bed will be a little too hard on the ground for me. shakehead
        ...Just keep using the tools and suggestions offered to you, and do the best you can. Stay focused on you and let the rest go. The sooner you put the family misery to rest, the better off you will be....but always be open to change if they are willing.
         Always prayers for you....hope you can chill out with some cool air-condition too! :-)
    Take care, and we truly mean that!
     SE wink
Moderator Chronic Pain Forum

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Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 7/12/2011 12:33 PM (GMT -6)   
Chartreux, Thank you. Just hearing your support makes me feel better. Family is hard, and the word wedding seems to either bring out the best or worst in people.

SE, Camping would be impossible without my air mattress! This is the first year I have camped with one, and it truly makes a huge difference. We only have a single layer one, the cheapest Walmart had in queen size, and are thinking of getting a double layer.....well, putting it on the wedding registry first and crossing our fingers!

I am chilling out in the air conditioning today, resting with my feet up and in the direct line of cool air, with fans going! It won't get any cooler in this metal box of a mobile home we live in than this. My fiance is talking registry shopping tonight in one of the electric wheelchairs, rousing the men of the home to cook, or bringing dinner home. Either way, it will get better.
Thank you both for the support. It makes such a difference on days like today.

The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI pain, arthritis, kidney stones, depression, 10 pelvic surgeries for pain, ovarian cysts, adhesions, endometriosis, adenomyosis, and possible ovarian remnant syndrome. Unexpectedly growing ovary #3 on right side.

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 7/12/2011 2:36 PM (GMT -6)   
Hi Mindy -
Even w/ the hard parts of it - I'm so glad you got away and went camping w/ your family.  More than that - I'm glad they really helped you out and made you feel loved and cared for.  Your fiance sounds like a really special person (as do you).
I could have written the sentence where you wrote "I don't want to be stuck in my room".  I totally understand that one more than I could ever say.  It's so darn difficult.  I'm physically the most comfortable in my own bed... but, life doesn't stop and I don't want to miss out on my family, etc. 
Keep your boundaries w/ family, your upcoming wedding, all of that.  You are SO right - your job is not to make others happy.  It's your wedding - and you need to do whatever it is that's going to make your day special, "drama"-free and so forth.
I'm doing the A/C thing, too.... I'm having a rough day, but that's just the way it goes.   I've got laundry piled up...a house to pick up... and I'm still in my PJ's - and I have NO energy....none.... :)   Good days, bad days.... ahhhh.  Frustrating, isn't it? 
Many hugs, Mindy.  Thinking of you today.

Veteran Member

Date Joined Mar 2011
Total Posts : 816
   Posted 7/12/2011 9:20 PM (GMT -6)   
I am sorry to hear that you are feeling so awful.  Hope that will improve soon.
As for you wedding, you are paying for it, this gives you the right to do what you want and just tell anybody who doesnt like, to bad. 
Good luck to you, my daughter is planning her wedding for June 2012, I am enjoying being a part of that, bottom line though is, if its what she wants, it what she gets.  As being on disability does not allow much money left over for anything, she and her husband to be are paying for it.  It makes me feel awful not to be able to help her with the finances, but she tells me, just being there with her as she makes different decisions is all she wants.  I love that girl.
Take care of yourself, and I hope you feel better soon.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 7/12/2011 9:34 PM (GMT -6)   
Mindy, I'm sorry that you're having such a bad time. I'm glad you got to have your camping trip though - it sounds like mentally/emotionally it did you the world of good.

Thinking of you - of all of you going through a bad time right now.

CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 7/13/2011 12:38 AM (GMT -6)   
Hi Mindy I hope you get to feeling better really soon. It's no fun being by yourself instead of with your family. I just can't go to bed except when I'm sleeping. I hurt pretty bad, but I stay in the living room or here in the dining room. I watch tv or am here on the computer. I guess that's the stubbornness coming out. I refuse to let this pain keep me away from my husband. Don't get me wrong, I'm not saying that anyone is weak if they stay in bed, that's just me.

I'm glad you got to go camping. You have a good man that you're going to marry. That's great :) He sounds like my husband. I'm so glad that you stood up and are doing your special day like you want it. That's too bad that someone won't be coming just because you wouldn't do something her way. Good for you. Would you mind writing an off topic post one day and tell us all about your wedding? I'm sure the other members would love to hear about it too.

Jerome wants to go camping. I told him we would have to get an air mattress if we did go. He agreed. I could never lay on the hard ground either. We plan to get sleeping bags too. I'll let you know when we get it planned.

Well, I better go now. This is getting pretty long. You take care and hopefully you are getting some sleep right now and will feel better in the morning.

love and soft hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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