Posted 7/15/2011 2:27 PM (GMT -7)
I understand how you feel. I went undiagnosed with endometriosis for years. Then a hysterectomy found adenomyosis, adhesions from all the previous surgeries for ovarian issues and pelvic pain, which caused the endo to be trapped in the adhesions. Now I have no female organs left, my insides are completely covered and glued together with endometriosis and adhesions, and I live with that pain you describe everyday. Depo Provera only worked for a while for me, before becoming ineffective. I can't stand endometriosis. Its like a punishment, as if getting your cycle, cramps, mood swings and PMS weren't enough punishment for being a woman and we needed more reason to cause pain. It can be hard to treat, if treatment is an option. For some women, like myself, Lupron, Depo Provera and hormones are no longer an option.
Lupron is not for everyone. Please do some research on it and discuss your options with your doctor. Sadly, the surgeries to remove endometriosis are not always 100% successful, and it can return. The surgeries can also do to others what they did to me, cause scarring (adhesions) that form on the bladder, bowel, and can creep as high as the diaphragm as it did in my case.
Please be careful. I find that heat helps, as does sitting in a hot tub, bath tub, or pool. As odd as this sounds, gentle walking and mild back and arm stretches helped me as well. When other things were less tight, the endo pain is not always as bad. Some days those things are not possible though.
Have you ever tried massage therapy or accupuncture? I hear a lot of women have success with those, but they are out of our price range for treatment.
May you be feeling better soon,