Trying to deal with severe pain. And some idiotic doctors

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Regular Member

Date Joined Feb 2008
Total Posts : 257
   Posted 7/17/2011 5:19 AM (GMT -6)   
I've had AVN for many yrs,It started in my shoulders and worked it's way down to my hips and knee's The pain has been bad but somewhat controlled by a pain center in North Carolina, I was prescribed methadone 30mg's TID and morphine 60mg's 4-6 times a day and as things were getting worse the doctor kept updating there policies and lowering my medication. they took me off the morphine and put me on 15mg's of oxycodone 1 tab 4 times daily which is ridiculous. I have followed there rules and have always dropped clean urines and this past month when my left hip collapsed I had to take some of my meds earlier then usual. When I went to see the doctor I told them I would be 3 day's short because of what happened, they told me I signed a contract and GRIN and BEAR IT even though I had proof from my ortho doc and xrays, They would not change there minds. It's just amazing at the attitudes of these doctors. On Monday I will be calling a new pain center...

AVASCULAR-NECROSIS (AVN) in 6 joints. HIPS,KNEE'S andSHOULDERS-Replaced 1 shoulder. replacing left hip 9/8/11 then left shoulder.
MED'S-Methadone 30mg's TID and OXYCODONE 15MG 1 TAB QID.

Post Edited (norelief) : 7/18/2011 1:37:32 AM (GMT-6)

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 7/17/2011 9:38 AM (GMT -6)   
Oh Norelief

I read your posr and that was ridiculousthat they were unwilling to work with you even if you had proof.

Definately change pain doctprs.

Let us know how you made out.

crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

Veteran Member

Date Joined Jul 2009
Total Posts : 2042
   Posted 7/17/2011 9:52 AM (GMT -6)   
With the current problems with prescription drug abuse and all of the impressions it is leaving in its wake what you have and are going through is becoming much more common. Doctors are more and more becoming afraid of losing either their controlled substance license of their medical license for prescribing too many narcotics.

While I can understand you doing what you did, in the future, regardless of which doctor is handling your pain meds, it would be highly advisable to contact them first before altering your doses in any way.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Veteran Member

Date Joined Mar 2011
Total Posts : 816
   Posted 7/17/2011 2:47 PM (GMT -6)   
Ok people this is just what I am talking about! I am so sorry for what you are going thru, I am telling you and all of us cp sufferes, something has to be done.
Each day, when I begin to read the posts, at least one is concerning doctors treating us like we are not even important enough to listen to..
Well I for one am tired, so very tired of all of this.  My grandchildren are gone as of Monday July 18, and then I am going to begin my campaign for recognition as chronic pain patients to be treated like human beings.  This has got to stop, and only we can stop it.
Please I urge all of you, write your legislators, from the smallest all the way to the top.  The media is also needed to get this story out.  I will begin with The Washington Post, as this is the local paper in my area.  I am also getting in touch with the local tv stations in my area.  Enough is Enough
Please take care of yourself, hope you will feel better soon.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Regular Member

Date Joined Oct 2009
Total Posts : 175
   Posted 7/17/2011 4:22 PM (GMT -6)   
Hi NoRelief
Makes me mad to hear of yet another case of doctors who do their job as if we were just nuts and bolts going down an assembly line. It's sad that doctors have to be so worried about dispensing much needed meds to people who really need them because of a few who misuse them. There really needs to be a system in place that proctects doctors as well as the patients right to proper care. It sounds as though you need to bring as lawyer with you everytime you meet with your pain doc. Maybe doctors need to be more afraid of the legal repercussions from their patience than from whoever watchess over these doctors. What a crazy mixed up system we have to live by. I hope things work out for you..NoRelief..I guess all I can suggest is if you get injured again and go to the ER , request pain medication from them to cover the extra pain you will have to endure or like someone else mentioned, contact your pain doc right away and explain your situation.
Best of Luck
Chronic Back Pain, Anxiety, A little Depression
Meds: Oxycodone, Oxycontin, Clonazapam

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 7/17/2011 8:12 PM (GMT -6)   
Hi NoRelief I'm so sorry to hear that your meds have been reduced, and you are in so much pain. I agree, the next time you need extra relief, I would advise going to the ER or calling your doctor right away. Doctors really frown when you increase your dosage on your own.

This makes me so angry. I intend on sending letters to my lawmakers around here as well.

I wish you well NoRelief. I hope your pain gets better really soon.

Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Veteran Member

Date Joined Dec 2007
Total Posts : 1235
   Posted 7/17/2011 8:47 PM (GMT -6)   
Hi NoRelief,
I'm confused, you said that you were prescribed 90 mg of Methadone once a day, and 60 mg of morphine 4-6 times a day. That's a huge variance in medication dosages for morphine, but now you are taking 90 mg of methadone three times a day and 15 mg of oxycodone 4 times a day, is that all correct? I checked the opiate conversion tables and it seems that if they increased your methadone dosing to three times a day, then they more than adjusted for the loss of the morphine doses. In fact, you would have wound up with an increase in your dosages of medications, both your base pain medication and , adding the oxycodone into the equation. This is of course, assuming that the information on your dosing is correct in the OP and at the bottom of your signature...
I know that AVN is painful to deal with, but the others are right, no matter what, unless you have cleared it with your pain management doctor, never, take more than you are prescribed or you may find yourself without pain management and you don't want that.
Despite the fact that it may not be fair, we do have to do our part as patients to abide by the rules, even in documented cases where there may be another painful condition that develops, we still have to clear it with our doctors that are prescribing the pain medications when it comes to our need for increased pain levels, otherwise, they are at jeapordy of loosing their licenses and livelihoods.
I don't necessarily agree with the system as it is right now, but it is there and until something changes to make it so that our doctors are regulating our treatments without government interference, we have to abide by the rules too.
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

Regular Member

Date Joined Oct 2009
Total Posts : 117
   Posted 7/18/2011 8:24 PM (GMT -6)   
@mrsm123 : The dose of methadone was unchanged. The only change was replacing the morphine 60mg 4x-6x/day with oxycodone 15mg 4x/day - which is a pretty marked decrease in what I'm assuming is his/her breakthrough pain medication.
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