The rights of cp patients

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NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/17/2011 6:56 PM (GMT -6)   
Each day, several times a day, someone is crying out for help due to being a cp patient.  I am so done with all the negative press we get, and until we get out there and start writing to our legislators, this will remain a dark secret that we suffer with.
 
Its not enough to be in pain 24/7, because lets be real, the meds help with the pain, but it never goes away completely.  But we are the people constantly being looked upon in negative ways.  Its time to change the pattern.  I am going to begin my campain of letter writing tomorrow, (my grandson leaves in the am) so I will be able to get started.
 
Remember, we are a very large group of human beings, who thru no fault of our own, have been forced to take medicines that give us a quality of life.  Without this our lives would be h...  So all those who are tired of the very unjust way we have and continue to be victimized by a system supposedly but in place to help us.
 
So just know, there is power in numbers, and sadly for us we have numbers, I just so tired of it.  It is time for a change, a better way to screen out the few that do try to get over on the system.  Its just not us, we have had to give up alot in our journey through chronic pain.
 
Ok thats it, I am now getting off my soapbox,and taken it to the people who can do something about it.  This is nation wide at the very least.  Please join me in fighting for the right to have the best quality of life we can due to what has happened to us through no fault of our own.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/17/2011 7:03 PM (GMT -6)   
Sign me up Sister! wink

I have been tired of it for a long time, and I really have not had near the problems many of these members have had. Many of them are my friends though, and we are family of sorts here.

What exactly do we need to do, so that we can be heard in numbers, and not just a few here or there?

SE
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 7/17/2011 7:17:40 PM (GMT-6)


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 7/17/2011 7:54 PM (GMT -6)   
I totally agree with you NiNi, I hate the way that things are right now, and we do need to get our representatives to listen to us, to vote these darn bills down that give the DEA and other government agencies the right to make policies that effect our rights to fair and equal treatment, privacy and doctor patient confidentiality over to those who should have no access to our private health information.
The papers and television programs need to give just as much air play to patients who do follow the rules, who do benefit from proper pain management , who need these medications to live a life that is worth some living , as they do to these media stories about the "war on drugs" and all of these abuse of medication stories, because there are far more stories of the benefits of proper pain management than there are the other, it just doesn't sell as well.....not to advertisers, not to television programmers, not to anyone because our voices are not heard.
I will write to my local papers and to our local tv stations and see if I can get something in print and on the news....it's a start. Maybe if there were some coalition or something formed for pain patients rights, not the politics involved and not to sue the government like some of the ones previously have started, but a grass roots movement on our behalf, maybe things would change. I am tired of having to sign away my rights as a citizen of this country to recieve treatment for conditions that were not of my own doing....
So, let's come up with a name and let's get to work......
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 7/17/2011 8:04 PM (GMT -6)   
Our rights need to be protected too, we take our medicines correctly..Why punish us...
Why treat us like criminals, when we do everything by the book, we take the drug tests
and pass them...I want to be treated like a human being by my doctors...
Why is that so hard to understand...We need better doctor's out there that will help us in this fight...
well wishes to all
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/18/2011 12:36 AM (GMT -6)   
Nini...

I think this is the best idea to come along in ages. If we each take on a small portion of 'the enemy' and get them to listen then we have a chance of being heard. We're never going to rid the media of 'shock stories' so they can boost sales. But we CAN get them to add stories of those of us who are legitimate...as said above.

I do think writing to local newspapers, bit and small, is a great idea. If anyone knows of legislation in this area please do post it and we can write letter directed at this specifically. I'll do some research to see if I can find any other ideas on 'being heard'.

Anyone else IN?
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
~~~~~
Use the talents you possess, for the woods would be very silent if no birds sang except the best.

rjbeck
Regular Member


Date Joined Feb 2008
Total Posts : 255
   Posted 7/18/2011 1:56 AM (GMT -6)   
about 10-12yrs ago the CP community started to really push foward and was climbing out of the dark age's. The pain scale was implemented and doctors were prescribing the med's needed for the CPP and then Florida came along and because of the laws in that state we were thrown back into the dark age's. It took Fla many yrs to implement there computer system for doctor shopping 7/1/11 because the Governor of Fl was in the drug companies back pocket he would not sign the law that would stop the flow of drugs coming out of the state. I grew up in Miami and knew first hand what was going on and when I moved to N.C. in 2006 the problem with the Fla scripts had reached my small town in central NC. my pharmacist told me of the people driving from fla to n.c. to fill there scripts because the pharmacies in Fla were charging $5-6 a pill (legal drug dealers). In the 6 to 7 yr period the state of Florida has ruined the way doctors prescribe pain meds for the whole country. It will take a long time for the U.S. to recover from this if it's even possible..
AVASCULAR-NECROSIS (AVN) in 6 joints. HIPS,KNEE'S andSHOULDERS-Replaced 1 shoulder. replacing left hip 9/8/11 then left shoulder.
MED'S-Methadone 30mg's TID and OXYCODONE 15MG 1 TAB QID.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 7/18/2011 10:51 PM (GMT -6)   
As I've said before, I'm in 100%. I need a day or two to get us an air conditioner so that I can get my thoughts together. Between the screaming heat and humidity and my screaming pain, I just can hardly concentrate.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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