Angry Angry...venting

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Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 7/19/2011 2:01 AM (GMT -6)   
Hello to my CP family. Right now, I'm so angry that I want to explode mad

A lot of you will remember my nightmare ketamine infusion of just over a month ago, and that I put in a complaint to the hospital.

Today, I received a letter in response. A couple of my concerns have been addressed - at least the nurse who left me alone in the patient lounge for three hours after I became distressed the first time has had it pointed out to her that this is not acceptable. However, I'm disappointed to read that she seems to have told the person who investigated that it was her idea to move me somewhere quiet in the first place. I had to ask for that to happen...had it been up to her, I'd have been left in the ward to become more and more distressed.

They've tried to tell me that the reason I was refused my breakthrough meds was because my doctor hadn't charted them - yet I'd been getting them for BT pain episodes earlier in that stay. So...was the nurse telling the truth, or was more than one other nurse administering narcotics without due authority? (Hmm...I know where my money lies...)

Oh...and the best part... the nurse who ignored me for hours as I got to the point of hiding under my blankets with the distress... "felt that she spent time trying to comfort [me]...and was genuinely trying to relieve [my] stress". God help me if she'd been trying to cause me extra stress then...I wouldn't have survived the hospital stay smhair

Definitely taking this further. This is not what anyone should be subjected to :(

It's been highlighted all the more by my few days in hospital (a different one) last week. As I said elsewhere, I was in a minor car accident on the way to hospital, and I hurt my neck and shoulder. When I woke up after my nerve block my arm was paralysed from the shoulder down due to the local anaesthetic travelling further than it should have done, and I threw myself around a bit in a panic. When I got back to my room I had really bad spasms in my neck but with my paralysed arm I couldn't do anything to ease them. nurse made sure I had plenty of pain meds on board, got hot packs for my neck, massaged and stretched out my neck muscles, sat with me. The whole four days I was there they were like that - absolutely lovely. So sad that they can't all be that way.

CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 7/19/2011 3:40 AM (GMT -6)   
Hi Laura. It was hard for me to read your post because it made me really upset. I can't believe that you were treated that way. It really infuriates me. So completely unfair. Most people would let something like this go...just because it takes time and energy to make complaints, but I think it's great that you're not because hopefully this will prevent other patients from being treated that way.



Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 7/19/2011 5:37 AM (GMT -6)   
That's more than frustrating!!  I completely remember your entire story... and I'm glad you followed through by submitting a complaint in writing (or however you did). 
That being said, from my own experiences - the hospital is going to do everything they can do "cover" their behind.... especially this nurse.  So, it's very frustrating, but it doesn't surprise me that she has a completely different "view" of everything that happened. 
The good thing, though, is that hopefully this will enter her file - so if there is future complaints or issues - it will show a "trend".  That's why it's so important to follow through and voice a complaint if you aren't treated well.... and how this nurse treated you was SO beyond acceptable.
I'm glad that your more recent hospital stay was much better and that you were treated appropriately - and as you should have been! 
I hope you are feeling better.... Hang in there.  --Tina

Veteran Member

Date Joined Mar 2011
Total Posts : 816
   Posted 7/19/2011 8:05 AM (GMT -6)   
I am so sorry you have had to go thru that awful experience.  One problem is Hospitals have now turned into nothing more that business.  There is so little true caring anymore as there is in the make a buck part of hospitals.  Please keep on fighting, you should never be treated in any way but with kindness and true concern.
Hope you feel better soon, please take care of yourself, and fight the good fight, you deserve it.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 7/19/2011 9:41 AM (GMT -6)   
     Good morning Laura!
          I too remember you speaking of this a few weeks ago. Lets hope this never happens  to you again, and I think you did great when you filed a complaint. At least it got somebody's attention!... and perhaps you will save someone else some grief there in the future.
    We all hope you're doing a bit better now.
     Take care,
 SE wink
Moderator Chronic Pain Forum

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Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 7/19/2011 10:10 AM (GMT -6)   
This should not happen to anyone, regardless...Keep on top of this and keep writing those
letters to the hospital...make sure they listen...well wishes to you and I sure hope your
feeling a little better soon...
Prayers and well wishes to you...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 7/19/2011 10:34 AM (GMT -6)   
Thanks to all of you for your enouragement *huggies* I'm seeing my GP on Thursday so going top ask his advice, then going to talk to my PM when I see him on Friday. Not sure how much he will tell me as he has to protect himself from any problems working at the hospital and I don't want to put him in an awkward postion, but at least he'll know that there's something dodgy going on.

And me? I'm writing another letter. I'm going to shake this tree as hard as I can...will be interesting to see what falls out!
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 7/19/2011 10:56 AM (GMT -6)   

Keep writing letters and or going into the Patient Advocate's office if necessary to get some explanation for what happened. I remember your story and was disgusted by the way you were treated.

Sadly, the medical field has become a business as another poster wrote, and with that come the insensitive people that simply want a large paycheck. That is not all workers in healthcare, but some.

Don't give up. Talk to your doctors. You did a good thing writing your complaint and hopefully by going in her record, it will keep her from hurting others again without consequences.

I am sorry that you went through that and now must deal with her denial of the events.

Hugs to you,

Forum Moderator

Date Joined Feb 2003
Total Posts : 16776
   Posted 7/19/2011 12:07 PM (GMT -6)   
Laura, keep writing those letters. Its awful what happened to you no doubt, and you can bet it has happened to many others. Most of the time people will not bother filing a complaint or writing to the hospital administrator but I am a great believer in it. If more people would do this instead of just moving on it has the possibility of helping someone else. They know few people will file a complaint and bank on this.

Anytime you are in the hospital in the future, and i hope its not anytime soon, do ask if the hospital has a Patient Advocate person. If they do and you have any problems get that person to your room ASAP. They can help get a bad situation reversed many times.

Glad to hear that you got decent care after the accident. I hope your injuries from that calm down. Take care.
Moderator Chronic Pain Forum

Veteran Member

Date Joined Jan 2011
Total Posts : 1355
   Posted 7/19/2011 3:55 PM (GMT -6)   
I am so glad that you were treated better on your last stay at hospital. Its a shame that hospitals have turned into such a business that the people who work there feel we don't have any choices so they can do or say whatever they like. I have heard horror stories from so many people who have been mistreated when they are at their most vulnerable. Its good to know that there is still some good hospitals and staff out there. Keep writing every time you make someone aware of the problem and it gets resolved its worthwhile.
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