Hello to my CP family. Right now, I'm so angry that I want to explode
A lot of you will remember my nightmare ketamine infusion of just over a month ago, and that I put in a complaint to the hospital.
Today, I received a letter in response. A couple of my concerns have been addressed - at least the nurse who left me alone in the patient lounge for three hours after I became distressed the first time has had it pointed out to her that this is not acceptable. However, I'm disappointed to read that she seems to have told the person who investigated that it was her idea to move me somewhere quiet in the first place. I had to ask for that to happen...had it been up to her, I'd have been left in the ward to become more and more distressed.
They've tried to tell me that the reason I was refused my breakthrough meds was because my doctor hadn't charted them - yet I'd been getting them for BT pain episodes earlier in that stay. So...was the nurse telling the truth, or was more than one other nurse administering narcotics without due authority? (Hmm...I know where my money lies...)
Oh...and the best part... the nurse who ignored me for hours as I got to the point of hiding under my blankets with the distress... "felt that she spent time trying to comfort [me]...and was genuinely trying to relieve [my] stress". God help me if she'd been trying to cause me extra stress then...I wouldn't have survived the hospital stay
Definitely taking this further. This is not what anyone should be subjected to :(
It's been highlighted all the more by my few days in hospital (a different one) last week. As I said elsewhere, I was in a minor car accident on the way to hospital, and I hurt my neck and shoulder. When I woke up after my nerve block my arm was paralysed from the shoulder down due to the local anaesthetic travelling further than it should have done, and I threw myself around a bit in a panic. When I got back to my room I had really bad spasms in my neck but with my paralysed arm I couldn't do anything to ease them. Well...my nurse made sure I had plenty of pain meds on board, got hot packs for my neck, massaged and stretched out my neck muscles, sat with me. The whole four days I was there they were like that - absolutely lovely. So sad that they can't all be that way.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.