Alcie, comments on the reports we saw

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/21/2011 8:13 PM (GMT -6)   
I see you looked at both the reports and I for one think this is the beginning of a great start for cp patients, at least they acknowledge that trying to fix what is injured is the first place to go.
 
After that, when all has been done to fix(I am trying to find a better word than fix), at least let us be given the medications needed to have some quality of life.
 
In 1989 my injury was called a pulled muscle at the emergency room.  As time went on my doctor (gp) sent me to any and all doctors he could think of, neurosurgeons, orthopedics, physical therapy, even accupuncture as he was a very enlightened doctor.
 
At various times I had mri, ct scan, and still no one said surgery, its not like I wanted it, but I certainly wanted the increasing pain to stop.  By 1998, I saw a neurosurgeon, at an office I had been to already, just saw a different neuro. this his words to me were, "you waited to long to have surgery, I will do a lumbar laminectomy, but it probably wont word".  I had the surgery, he was right it did not work.
 
As time went on, pain and more injuries-diseases like fibromyalgia, neuropathy, shingles, etc.
 
I truly believe a incorrect diagnosis brought me to where I am today.  Unfortunatley, its done 1989 and the er that I went to no longer exist.
 
I am so glad they are finally doing more to get the help that is needed.  I think that report HeatherLynn put up was very useful and I think you also feel it was, I saw in one post where you referred back to it.
 
Well I just wanted to let you know, I am glad you got from it what I got from it.
 
Hope you are feeling well, take care of yourself
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 7/22/2011 9:52 AM (GMT -6)   
NiNi - and my thanks to HeatherLynn for putting up the article!

So sad you were misdiagnosed and didn't get the treatment you needed. It's another story that proves the report. I referred to it hoping more people would read it. It belongs in the info for newbies. If that information had been available in the years you started your pain maybe you would be better now.

The next to last time I was at pain doc he asked if I was ready for surgery. I was shocked, had been told I didn't need surgery by back surgeon just 4 years ago and was sent to PT. I still wanted to try more alternatives, and he ordered me a TENS, gave me a Rx for Topamax for pain, and cut back on my tramadol. The TENS has helped my back, but, like you, I've developed new pain - shoulder impingement with bone spurs, and unfortunately the Topamax started giving me intolerable side effects when I got the dose up to where it worked on pain.

I just had to stop the Topamax when I couldn't sweat in 90+ weather, etc. Since I haven't enough tramadol for a backup, I'm trying some of the NSAIDS I had left over from trying for fibro, which didn't work then, but show promise for impingement, since it's an inflamatory problem. Of course, the one that works, Mobic, is only once a day and lasts for 4 hours. I tried Vicodin, but the Mobic works better. I am trying all this with my PCP's OK, not just fooling around.

I'll ask pain doc in 2 weeks if I can take Mobic twice a day or maybe a new NSAID, as I can't get shoulder surgery until I recover from sinus surgery. I hope to convince him next week to send some of the green gunk to the lab because I feel like I still have infection, not necessarily bacteria, and am having trouble breathing like asthma, another story. I had an awful time with belly pain after getting off antibiotics, thought it could be another colon abscess. PCP says just new IBS, and it settled down with probiotics.

Adequate early treatment does work to reduce pain and keep us patients from the chronic pain without a visible cause discussed in the article. Getting pain treatment for the spine problems - injections, pain meds - has allowed my discs to heal on their own enough to avoid surgery for now. Back muscle injections and TENS has reduced my muscle spasms. I wish I could get the TENS to work on the shoulder. Knee surgery allowed me to get up and walk and swim, and gives me reason to hope shoulder surgery in a couple of months will reduce that pain too.
Alcie
 
 

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/22/2011 11:08 AM (GMT -6)   
I am sorry that you have to go thru what you are going thru.  There is much misdiagnosi I think if it were really looked at, I believe they would find much of the trauma begins after being misdiagnosed.  I also think there should be some study between ddd and fibromylgia, for that matter fibro, seems to come along after any trauma to different parts of the body, which leads well you know where it leads, more doctors,more meds, alot of pain and sadness.
 
Just a note the NSAIDS are really not good for you stomach, if taken for long times.  I am sorry I am not a doctor,
 ask your doctor if the nsaids could be part of your stomach problems.  I cannot take any of them in pill form.  For arthritis, I use voltaren gel, its just my finger now, so it works well.
 
Ok I am getting tired, I am making to many typos and having to go back.
 
Thank you for your answering me, and this does indeed need to be seen by more.  Bye for now, hope you feel better soon, take care
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 4:01 PM (GMT -6)
There are a total of 3,006,183 posts in 329,312 threads.
View Active Threads


Who's Online
This forum has 161825 registered members. Please welcome our newest member, TheRayf.
319 Guest(s), 9 Registered Member(s) are currently online.  Details
borrelioburgdorferii, Wings of Eagles, IamCurious, Admin, John T, BillyBob@388, bw1963, F8, MacroMan