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CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 7/24/2011 2:05 AM (GMT -6)   
A question for those of you with pumps -

When my PM was filling and reprogramming mine on Friday, instead of the normal we got a message telling us that the pump motor had stalled. My Dr then,... called out one of the Medtronic reps to do a full diagnostic, print out, etc. It turns out that my pump has been having temporary stops/starts for a little while now - this also fits with what we've noticed - that sometimes there is more medication left in my pump at my refill appointments than there should be. I have changes in my pain and spasms, but I don't have records of the dates to cross-reference.

Now - the head people have said it's 'probably' safe. But my PM is a bit worried and I'm more than a bit worried. Baclofen is one of those things you can't muck around with - if the pump stops dead I'm in strife.

Now - it's only 3 years old, so it shouldn't be needing replacing. But - has anyone else had such problems with their pump? What was the outcome?

Laura
 
 
 

Post Edited By Moderator (Screaming Eagle) : 7/24/2011 7:59:03 AM (GMT-6)


Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 7/24/2011 8:06 AM (GMT -6)   
 
 
       Morning Laura! wink
 
            I think I would be worried as well....and I can see where your Dr would probably be more comfortable having it replaced. I have a local friend here that has one....and hers dumped way more than it was supposed too! They replaced it immediately!
 
        I bet Stray will know something about this, and may have a suggestion... or two for you.
 
    Is it working better now?....and was he able to adjust it there on the spot for you?
 
       Take care,
 
    SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Angeleyes13
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Date Joined May 2011
Total Posts : 636
   Posted 7/24/2011 9:05 AM (GMT -6)   
Wow Laura, I am not sure thats something I would feel comfortable with. Probably safe?? That equals, could be unsafe! Now, I am not sure exactly what kinds of safety gaurds the pumps have, and my reaction may just be from not being educated. But if part of the unit is malfunctioning I would still be concerned that others mechanisms may fail.

Sound like your dr would be willing to push the issue even if the company is claiming its ok. Even though its invasive I would opt to have it changed if I was given a choice.

Good luck,
Shell
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

straydog
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Date Joined Feb 2003
Total Posts : 16278
   Posted 7/24/2011 12:06 PM (GMT -6)   
Laura if this were my pump I would insist it be removed and a new one put it. How many times has it been off when you have gone in for refills? When a pump has either too much or little medication in them at refill time then there is a problem. This is an indicator for the dr that something is wrong with the pump. I would be willing to bet you a donut , lol, that when your pain and spasticity has spiked its been when your pump was not functioning correctly.

You can go to Medtronics website and see if your model is on recall. Or another way to check is the FDA website they have all recalls there too. Last but least you can also call Medtronics and give them your pump info and they can tell you if there are any problems or recalls on your model. My pump has two recalls on it but since mine has worked fine I opted not to have it taken out. The recalls on my were some units were not working right, not every single pump. The higher the setting on the pump the shorter the life expectancy too. One of the recall on my pump was problems with gears causing the pump to stall out I will dig around on my computer and see if I can find the recalls I know about.

I will come back here and post if I find something on my computer about the recalls I know about.
Moderator Chronic Pain Forum

CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 7/24/2011 1:59 PM (GMT -6)   
Thanks Stray -

I've a feeling that my pump WAS on the recall list, but all the info I read suggested that the problems were related to the refill kits, which my doctor doesn't use...we've got something that comes from the compounding pharmacy rather than Medtronics. Any other info you have would be brilliant though.

It sure will be a problem if I need it replaced because my body doesn't heal anymore and we are suspecting a clotting problem too. I knocked my foot a couple of weeks ago & ruptured a tiny spider vein that took 20 mins to stop bleeding. I also bled badly with my SCS surgery...and those scars took 10 weeks to heal up completely. Even my IV sites from last week in hospital are forming wee ulcers rather than healing. Doesn't bear thinking about what a pump pocket would do...
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Betsey Ross
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Date Joined Mar 2011
Total Posts : 1056
   Posted 7/25/2011 2:27 AM (GMT -6)   
Hi Laura
Sp sorry to hear that your painpump isnt working properly. That clotting factor would worry me to. What can be done about that to get it better?

i never had a pump inserted on me, im still working with various pills.

Let us know how you made out with your pump and how you feel. I will be thinking of you.

Soft Hugs
Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

straydog
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Date Joined Feb 2003
Total Posts : 16278
   Posted 7/25/2011 2:14 PM (GMT -6)   
I am still looking in some old stuff of mine. At one time they were recalling some of the kits for refills, but I mine back then came from a local company so I was not affected. My current dr does her own compounds right there in the office. Apparently Medicare has costs to nothing on the pre-made refill kits, drs are losing too much money on them if you are a Medicare recipient like me. She was telling me this is another reason that PM drs are not having pump implanted anymore in their patients in our area and state. She says the drs cannot justify the costs with losses they are incurring. She went as far to admit to me that she would not be handling pump patients if she had to use the pre-made kits for her patients that have Medicare.

If you will look on your card there is a number to Medtronics you can call and they can tell you if your model is on recall. My pump is a much older pump than yours, mine has been with me since June 1995. That way you can have the correct info. From what I understand there is a slight margin allowed on remaining meds in the pumps at refill, does your dr have any idea what the amount is that is considered acceptable? Medtronics can tell him this, I am not sure if they would tell you or not. I would make a call to them though, sorry. it just hit me later that my info will be outdated for you. Let us know what you find out.
Moderator Chronic Pain Forum

CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 7/27/2011 8:09 AM (GMT -6)   
Hi Requiem - and welcome by the way, as I see you are a new member. You might like to introduce yourself :)

Baclofen withdrawal is an enormous concern - despite the fact that the Medtronics rep is trying to tell us that the pump is 'probably okay'. It has apparently had several of these episodes, and know that in that time I've several flares in my dystonia and spasms. I have to get the pump record to compare to my physio's patient notes.

I am all the more worried given than my ITB dose is very high - almost 1.5 x the 'norm'. And I'm well aware that the refill kits aren't related to any problems, but thank you for your input.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/27/2011 8:27 AM (GMT -6)   

 

       Morning Requiem!

              Welcome the the CP forum! Like Laura said, we invite you to introduce yourself on a new thread, so that all the members have a fair chance to welcome you.

       Simply select the "Post New Topic" button in the upperleft hand of our home page. Please post an introduction, and share with us what brought you here to the CP forum.

      We look forward to seeing you there!

     SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16278
   Posted 7/27/2011 10:27 AM (GMT -6)   
Hi Laura, just checking to see if you have called Medtronics to see if your pump is on any recall for the motor stalling out?

You are right there was some lots of refill kits that were recalled, I cannot remember what the problem was with these particular kits.

Like, I said previously, some of the pumps with my model had gear problems and that was causing the pumps to stall out but that was so long ago and these pumps do have a shelf life with an expiration date. Let us know what you find out.
Moderator Chronic Pain Forum

Post Edited (straydog) : 7/27/2011 11:07:35 AM (GMT-6)


CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 7/28/2011 3:03 AM (GMT -6)   
Requiem - thank you again for your input. My pump is a Synchromed II. I was aware that the Synchromed EL had been recalled in the past due to gear issues, but hadn't found any incidents of SM II having the same issue.

I find it difficult to believe that erroneous programming could be the issue, as pumps are a huge part of my doctor's practice and he has an enormous amount of experience with them. I do however have bupivacaine in my pump.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16278
   Posted 7/28/2011 10:37 AM (GMT -6)   
I am interested in the comment about Bupivicaine usage in the pump. I have 7.4 mgs in mine and my dr never goes over that dosage in a pump. Its purpose in a pump that has been explained to me by different drs is, it helps the pain medication adhere to the pain receptors, it is not used for pain control, which is certainly true in my case. Anyone with a fairly high dose in their pump will lose the feeling in the legs and even the feet. There were some pump patients that that I know in a different forum that had fairly high doses and this is exactly what happened with them. I am not aware of Bupivicaine causing granulomas at the tips of the catheters.

Laura by chance do you know how much is being used in your pump?
Moderator Chronic Pain Forum

tmjpain
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Date Joined Oct 2008
Total Posts : 2024
   Posted 7/28/2011 10:50 AM (GMT -6)   
Hi Laura, Just wanted to see how you were doing today?
 
Hope you are getting along alright.
 
Do you have any further news on Rhaven. Is she still having a rough go of things?
 
I hope you can get to the bottom of your pain pump problems.
 
Take care
Suzane

CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 7/29/2011 6:56 PM (GMT -6)   
Thanks all - I spoke to a Medtronics rep yesterday. The soonest I can see my PM for a review and them do another interrogation of the pump is Friday, so we're going to do that.

The pump was off for about 15 minutes this last time - has turned itself off for as long as 30 minutes at a time, so definitely need to look into things.

Suz - I haven't heard anything, sorry :(
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16278
   Posted 7/29/2011 7:45 PM (GMT -6)   
I would be interested in getting a new pump with this stall problem for sure.
Moderator Chronic Pain Forum

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/31/2011 9:50 AM (GMT -6)   

 

   CRPS, I see you online, I was wondering how you are doing?

  Hoping you are having some better days.

Suzane

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