Hi Requiem - and welcome by the way, as I see you are a new member. You might like to introduce yourself :)
Baclofen withdrawal is an enormous concern - despite the fact that the Medtronics rep is trying to tell us that the pump is 'probably okay'. It has apparently had several of these episodes, and know that in that time I've several flares in my dystonia and spasms. I have to get the pump record to compare to my physio's patient notes.
I am all the more worried given than my ITB dose is very high - almost 1.5 x the 'norm'. And I'm well aware that the refill kits aren't related to any problems, but thank you for your input.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.