TMJ PLEASE READ, and everyone else - about buttercup

Hi all

Just got a text from Buttercup asking me to post quickly for her until shes up to it!

TMJ/SUZANE– Buttercup asked me to tell you she got the message you wanted to talk to her and she’s so so sorry she hasn’t been in touch and her emails are also not working and to tell you she is fine and as soon as she can will get in contact and she hopes you are okay!

First of all about her, she’s at home and has finished her chemo but still very sick and weak, shes in a LOT of pain from both cancer and her CP which the infections she has are making her feel awful and have damaged a lot of her intestines which is causing trouble now aswell (they aren't sure if the treatment for them worked yet waiting on test results). She’s done really well to get through all of this, she didn’t consider giving up once and has been in good spirits despite how sick she got and how tired she is, her attitude is what has got us all thru, well her family! I haven’t rly been around much as im moving so been busy. But still have been to see her when I can. Anyway, once again her strength brings tears to my eyes and the road might not be so rough once shes got through the next few weeks we just have to pray and keep her motivated.

She wanted me to post to say shes so sorry she hasn’t been keeping you updated but as soon as she has the strength to type she will write to you all! She said she hoped to be able to post during chemo but that didn’t happen so that’s why she lost contact and shes sorry and hoped you didn’t notice she was gone too much

Hugs to u all

Oh thank you, it's great to have an update on Buttercup. We are all worried about her.

Hang in there sweetie pie, you can do this. You can win this fight.

We will all be waiting here for you when you get better.

Love you,

Suzane

That is so wonderful that our Jess is at home and finished with the chemo. She is one strong young lady and we are all proud of her.

When you feel up to it we will be here waiting for a post from you. i hope you get the results of the tests on the intestinal tract soon.

So good to hear from her

Betsey

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crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

That you very much for the update Spinalproblem!

Buttercup, you are in my thoughts and prayers every day.

Big hugs,

Shell

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DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

Thank you for the update. Jess, am thinking of you. May those buttercups soon be blooming :)

Laura

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CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

spinalproblem

Thank you for the update spinalproblem. It's so good to hear an update on Buttercup. We were so worried. Tell he that we will be here when she feels up to posting again. I wish her well and I hope the tests come back ok for her intestines. I hope the treatment is working ti fet rid of those darn infections.

lots of hugs for you Buttercup.

love
Loretta

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Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

buttercup went into hospital last night just because she was dehydrated but should be out tomorrow morning and hopefully feeling a bit stronger, poor thing has had a hell of a time but shes fighting!

will keep you all updated

Thanks for keeping us informed. Make sure you let Buttercup know we're thinking about her.

Many many Prayers for our Buttercup...stay strong hun, we are always thinking
of you and hope you'll be doing better soon...Prayers, well wishes and healing hugz
Keep strong...

Thanks for the up date spinal problems...

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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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Sorry I'm not up to posting much yet but I will as soon as I can!

Just want to say I am SO sorry I wasn't able to keep in touch, and thanks everyone for your prayers and thoughts, I have been thinking of you all.