TMJ PLEASE READ, and everyone else - about buttercup

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spinalproblem
Regular Member


Date Joined Sep 2010
Total Posts : 26
   Posted 7/24/2011 10:01 AM (GMT -6)   
Hi all

Just got a text from Buttercup asking me to post quickly for her until shes up to it!

TMJ/SUZANE– Buttercup asked me to tell you she got the message you wanted to talk to her and she’s so so sorry she hasn’t been in touch and her emails are also not working and to tell you she is fine and as soon as she can will get in contact and she hopes you are okay!

First of all about her, she’s at home and has finished her chemo but still very sick and weak, shes in a LOT of pain from both cancer and her CP which the infections she has are making her feel awful and have damaged a lot of her intestines which is causing trouble now aswell (they aren't sure if the treatment for them worked yet waiting on test results). She’s done really well to get through all of this, she didn’t consider giving up once and has been in good spirits despite how sick she got and how tired she is, her attitude is what has got us all thru, well her family! I haven’t rly been around much as im moving so been busy. But still have been to see her when I can. Anyway, once again her strength brings tears to my eyes and the road might not be so rough once shes got through the next few weeks we just have to pray and keep her motivated.

She wanted me to post to say shes so sorry she hasn’t been keeping you updated but as soon as she has the strength to type she will write to you all! She said she hoped to be able to post during chemo but that didn’t happen so that’s why she lost contact and shes sorry and hoped you didn’t notice she was gone too much

Hugs to u all

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/24/2011 10:54 AM (GMT -6)   

Oh thank you, it's great to have an update on Buttercup. We are all worried about her.

Hang in there sweetie pie, you can do this. You can win this fight.

We will all be waiting here for you when you get better.

Love you,

Suzane


Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 7/24/2011 12:43 PM (GMT -6)   
That is so wonderful that our Jess is at home and finished with the chemo. She is one strong young lady and we are all proud of her.

When you feel up to it we will be here waiting for a post from you. i hope you get the results of the tests on the intestinal tract soon.

So good to hear from her

Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 7/24/2011 12:45 PM (GMT -6)   
That you very much for the update Spinalproblem!

Buttercup, you are in my thoughts and prayers every day.

Big hugs,

Shell
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 7/24/2011 1:45 PM (GMT -6)   
Thank you for the update. Jess, am thinking of you. May those buttercups soon be blooming :)

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3689
   Posted 7/24/2011 11:16 PM (GMT -6)   
spinalproblem
 
Thanks for the update, I have been wondering how Buttercup has been doing. I know I have not been posting very much the last week or two, I have been on a trip visiting my sister,  in Kentucky, but I do try, to at least get online and  read the forum once a day, even if I do not have time to post.
 
     Buttercup  stay strong you have come along long way, and no ,matter how much more you have to go, YOU can do this! YOU can lick this thing! Just keep your faith and keep believing and you will succeed! I keep you in my prayers! and Wish you well!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 7/24/2011 11:54 PM (GMT -6)   
Thank you for the update spinalproblem. It's so good to hear an update on Buttercup. We were so worried. Tell he that we will be here when she feels up to posting again. I wish her well and I hope the tests come back ok for her intestines. I hope the treatment is working ti fet rid of those darn infections.

lots of hugs for you Buttercup.

love
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

spinalproblem
Regular Member


Date Joined Sep 2010
Total Posts : 26
   Posted 7/26/2011 2:54 AM (GMT -6)   
buttercup went into hospital last night just because she was dehydrated but should be out tomorrow morning and hopefully feeling a bit stronger, poor thing has had a hell of a time but shes fighting!

will keep you all updated

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 7/26/2011 11:10 AM (GMT -6)   
Thanks for keeping us informed. Make sure you let Buttercup know we're thinking about her.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 7/26/2011 11:25 AM (GMT -6)   
Many many Prayers for our Buttercup...stay strong hun, we are always thinking
of you and hope you'll be doing better soon...Prayers, well wishes and healing hugz
Keep strong...

Thanks for the up date spinal problems...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

left forum.
Regular Member


Date Joined Jul 2010
Total Posts : 200
   Posted 7/27/2011 4:24 AM (GMT -6)   
Sorry I'm not up to posting much yet but I will as soon as I can!

Just want to say I am SO sorry I wasn't able to keep in touch, and thanks everyone for your prayers and thoughts, I have been thinking of you all.
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