terrible tmj headaches

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skully
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/25/2011 12:50 PM (GMT -6)   
I wish someone could help... my husband is suffering from tmj for about 20 years now... the pain is much worse now tho, he spends most every day in a dark room unable to do anything. He has been to every kind of specialist imaginable, different dentists. He now has an orthodic that gave temporary relief... it needs adjusted and costs 550 bucks every adjustment. We have sunk so much money into failed attempts at stopping his pain. This is just a fraction of what he has been through... does anyone have any advice? He has an appountment to try botox injections tomorrow... anyone have anything? Thanks

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/27/2011 9:31 AM (GMT -6)   
Welcome to healingwell, chronic pain forum. So sorry to hear of your husbands'
headaches. I know how bad it is as i am in the same boat. I have been suffering with temporal headaches for more than eleven years now. It has robbed me completely of my life as it once was and i am now on disability from my job as a nurse. I live in Canada. I have also gone to every kind of doctor possible, two or three of each kind for different opinions, tried every possible med, had nerve blocks, triggger point injections, ketamine infusions, botox and nothing. I had done many forms of treatment as well and nothing. All my tests are negative.
So i must learn to live with it as best as I can. I have the most wonderful husband who understands me completely and have his full support. I would not be here today if it were not for him. I use ice packs on my head and that helps deaden the pain..If you would like to chat more you can reach me at my email address posted under my name. I hope to hear from you.
Remember to take it one day at a time, stay in the now and don't look to the future. When i do that i am scared crapless of what is ahead of me.

Good luck.

take care
suzane

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/27/2011 9:43 AM (GMT -6)   
 
   Morning Skully!
 
           Welcome to the CP forum!
 
        It looks like you have already met a couple of our members! I think you will find this is a great forum for support!
 
            I too suffer from TMJ, and I sympathize with your husband! I know he has had a lot done for it, and one learns to do what they can, to help lesson the pain. I found that laying on my back makes mine worse as the lower jaw relaxes, and puts pressure on the joint. However since I have moderate to severe back pain,...I find that I have to lay on my back. I will rotate onto my side from time to time though.
 
    Chewing gum is out for me, and absolutley no crunching ice. Were sorry he is suffering with this, and I know there is little they can do for it..and I myself find that most pain med's that I have tried,... do not work well.
 
   If!..however, you can find a pain management Dr in your area...then certianlly give them a try. They may be able to give some sort of relief for it.
 
     Good luck in your search...and again, "Welcome" to the forum!
 
  SE wink
Moderator Chronic Pain Forum

Weekly Quote!

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Post Edited (Screaming Eagle) : 7/27/2011 9:46:40 AM (GMT-6)


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/27/2011 10:15 AM (GMT -6)   
I might suggest he see an orthodontist that specializes in tmj and not just any dentist. He needs to find out exactly the condition of the joints and the spacing in the joints. Google tmj disorders and you will see the list of symptoms. Maybe you can find a head, neck and jaw therapist in your area, they deal with tmj disorders all the time. Where do you live?
Like i mentioned, i don't mind sharing anything that i have tried. Just because it didn't work for me, something may work for you. My case is out of the normal and complicated. Good luck and i hope to hear from you.

Suzane

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 7/27/2011 10:46 AM (GMT -6)   
Hi there
i have worked in dentistry for 38 years and in my area we have 2 oral surgeons that specialize with tmj problams.  i know that the os place their tmj pts on a muscle relaxant and told them to apply moist warm heat to the affected side of the face and see what other kind of tmj appliance your husband can get with another doctor. 
 
keep us posted on your husband because i would love to know what happens with his tmj.
 
Betsey

skully
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/27/2011 6:57 PM (GMT -6)   
Thank you all for your replies... We have been to the pain management and had all of the drugs and injections they would give.... we have been to every type of dentist/orthodontist thinkable. He has a splint that he has to wear to eat and sleep right now... he's still hurting very bad, but the splint helped some, but it is very expensive. The splint itself is 2500 and for each adjustment it is 550.... he is now very addicted to it, if he eats without it, he is sitting in a dark bedroom all day.... VERY frustrating.....

He got botox injections on tuesday and so far... he hasn't gotten any help from it...

Thank You all for your well wishes and advice, i look forward to hearing more from these forums

Thanks

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/27/2011 7:35 PM (GMT -6)   

hi skully

is it a neuromuscular splint that he has?

so no meds have helped? has he tried any muscle relaxers? nerve pain meds? does he sleep ok at night?

has he had a sleep apnea study done, does he grind/clench at night

what meds is he taking now? and what forms of treatment has he tried?

do you live in the states? that's an awful price for a splint and for the adjustments as well

let me know what he has done so far.

botox did not work for me? how many injections of it did he get on tuesday and where did they inject? will he have more. I had it twice with no effect so we did not do more.

Just hoping i can help.

Suzane

 


skully
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/27/2011 8:23 PM (GMT -6)   
hi there

We live in the states, Indiana...

He has tried so many different meds... right now he is on topamax.... still trying to determine if that is working, and he can take vico-profen for pain, sometimes that knocks the pain down where he can get out of the house and pretend to feel good.

He talked to a doc about the sleep study and they don't think it's something to go forward with... but he does clinch and grind at night, but not always...

The splint is a neuromuscular splint and we too believe that is really high priced, but he's so desperate for help, he will try anything...

He went to the pain doctor for a while and they tried different injections right where his pain seem to come from. He went into the surgery center and had an epidural, nerve blocks, cortisone shots ( at different times... :)

On Tuesday the doc gave him 3 injections, two in the back of his head and one on the temporal muscle on the right side. The doc said that if this didn't work, he would try different places until he found where it will help. It's so expensive tho.... ugh.... As you can tell, i'm a bit skeptical of most things now.... Every doctor tells him they can help until our money is gone, then they just drop him with no help... which just discourages him more.

Have you ever heard about the neuro stimulator? It looks like it would work, I saw it on the news today...
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