need some alternative pain relief tips!

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mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 7/25/2011 9:18 PM (GMT -6)   
hi there.  i need some suggestions...I am definitely going to run out of my percocets this month early...i'm already running over so there's no way my doc will let me fill early this month...i always feel like i'm playing catch up trying to stay on top of the pain...i'll have a really bad couple of weeks pain-wise and double up meds etc...i know i know not supposed to, but my philosophy is i have to do whatever i can to be productive at the office and be able to play with and enjoy my 6 year old daughter when i'm home...i've been trying to take 1/2 a pill when i can but by the end of the day i'm miserable- joints hurting, gut screaming...anybody have any ideas to keep my mind off the pain- not sure how many days i'm going to be short but i'm guessing almost a week!  YIKES!!!!  I'm thinking heating pad, hot baths i don't know what has worked for you?  thanks so much!  and PLEASE-- don't judge me for using meds a bit more quickly than i should.  i know i should not be but it's that or suffer...thanks again!

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 7/25/2011 10:33 PM (GMT -6)   
Hi. Could your doctor put you on a long-acting medication?

Let's see...heating pad, cold/ice, baths, tens unit (if you have one?), Biofreeze

So sorry you're having so much pain. I hope that you get some relief soon.

Hugs,

Flower

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/26/2011 4:11 AM (GMT -6)   
Mtgman,
 
I don't judge these situations at all.... because this is what happens when people are under-medicated.  People have to have a quality of life... and if their pain is adequately controlled, it's going to lead to these type of things (doubling up on meds and so forth).  (I'm not saying I'd advise it! It carries many dangers.... but you know all that, I'm sure@)
 
The long-term solution, though, is you REALLY need to talk to your doctor and let him know that you are suffering!  As others suggested - what about a long-lasting medication and using the percocets for breakthrough pain?  I would just really encourage you to tell your doctor that your current meds aren't holding you over!  You need to advocate for yourself.  You'd be amazed how many CP patients are under-medicated....
 
Ok, that's long-term.  Now short term - to make it through the next week!
The others gave you just about every suggestion I can think of - heat/ice (depending on what works); TENS machine (if you have); if you don't have lidocaine patches (numbing meds) - you can by the OTC patches. they help somewhat.  I'd try Advil, Motrin - whatever type of anti-inflammatory might help you best.  Hot baths...  or hot shower..... light stretches, as someone mentioned.  Distraction helps, too, if you can find something to put your mind into. 
 
That's all I can think of - but it's also 3am here!!  I wish you good luck making it through the next week.  I'm so sorry you are going through this....!  Hang in there.... Keep posting when you can. --Tina

Pain Issues: DDD; fibromyalgia; migraines; carpal tunnel syndrome; tendonitis
Multiple Health Issues: Disabled due to POTS (heart condition); dysautonomia (dysfunction of the nervous system); hypothyroidism; adrenal insufficiency; chronic hypertension; chronic fatigue; sleep apnea; anemia; Vitamin D deficiency; etc etc
Meds: Too many to list....
Personal: Mom to 6 boys and twins girls

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/26/2011 4:47 AM (GMT -6)   
thanks all. i really appreciate it. with croihn's i have some issues that make pain relief a bit more difficult sometimes...i can't use the extended release meds like oxicotin bc they pass through my body too quickly without absorbing...so a large portion of the meds would be wasted. for some reason my pain clinic likes short term meds rather than long term...one of the pa's told me it's exactly opposite thinking from where she came from...i can't take things like advil or motrin due to the increased risk of bleeding...tylenol is it. i will definitely see if i can get in early and talk to them about a revised strategy...it's actually me who has refused increased meds more than once...they have proposed higher doses/stronger meds and i said no thanks due to being nervous about dependency issues...looks like i bit myself in the ass. haha. oh well...looks like it's going to be a long week. i will definitely try the suggestions you all made. thanks so much again!
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/26/2011 4:53 AM (GMT -6)   
oh yeah- the other thing was the patch...i live in AZ and i heard in hot climates the patch is difficult to use due to sweating- getting meds too fast and not lasting long enough...another post someone said sucking on ice is a great diversion tactic for anxiety...probably for pain too then...
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 7/27/2011 4:26 PM (GMT -6)   
D-phenylalanine, 5-HTP or L-tryptophan, GABA (gamma-aminobutyric acid), L-theanine (product by Source Naturals called THEANINE SERENE w/RELORA has many good things, magnesium gluconate, MSM, valerian root extract or extract from: skullcap, lemon balm, passion flower, catnip, chamomile, holy basil, linden flower, hops, or take dried ground lemon balm capsules because they work in a way close to Valium. Boswellia is great topically or capsules, topical Arnica montana gel, Epsom salt hot bath with lavender or balsaam fir essential oil sprinkled in (or both), you buy little premixed bath paks at the grocery store usually in the organic section, brand: AURA CACIA.
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: MScontin 100mg q8hrs. , dilaudid 8mg q6hrs. prn, oxymorphone IR 10mg q6 ,vistaril 50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Elavil 25 HS, diazepam 10mg bid prn, Supplements: CO-Q10 100mg, Vitamin D 1000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, ALA

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/27/2011 9:10 PM (GMT -6)   
holy wow that's a lot of options...i haven't tried many- hops in liquid form- hehe and arnica i'm not sold on...i'll look into the others, thanks!
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 7/28/2011 11:20 AM (GMT -6)   
Hey mtgman...long time no hear (BTW, send me an email would love to go out to lunch again or something...)
You're still not on Humira or Cimzia?...I think getting on something soon might help...oh, do you have a rheumatologist too? I know a lot of us crohnnies tend to get arthritis too (I take sulfasalazine primarily for the arthritis)...and yes, I have the same issues too (ie fast transit time, can't take NSAIDS).

Alas, only the patch seems to work...the patches have changed a bit too...they are no longer filled with a gel, it now looks like a small band-aid...oh here's a picture:
blogs.wsj.com/health/2008/02/25/a-rough-patch-for-jj-creates-opportunity-for-mylan/ The newer design has less chance for the "overdose" and sticks easier, even in warmer climates as I too live in AZ...

I hope you feel better soon...

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 7/28/2011 11:57 AM (GMT -6)   
Sounds like the patch might be a long acting med to try and see if it works for the long term.

For joint pain, I've actually had pretty good luck with Salonpas patches. There are two types - the "regular" ones are small and you can stick a few on wherever you hurt. There is a larger one called "Salonpas Pain Relief Patch" that has menthol and methyl salicylate. You can only use one of those at a time, and it's an NSAID, although clearly you get less chance of bleeding from a topical dose than an oral dose.

There are also stick on heating pads - those help me if I need heat but can't be near a wall plug all the time.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 7/28/2011 4:52 PM (GMT -6)   
you should concentrate on an amino acid complex, D-phenylalanine, L-tryptphan or 5-HTP, and GABA. L-tyrosine or l-glutamine can help but the 3 amino acids mentioned after the complex are your main pain filtering mechanisms. after that everything is secondary. good luck

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/28/2011 8:46 PM (GMT -6)   
Hello mgtman, I am nini53 and I have been going thru the same type of problem, for the last 2-3 months I have barely made it to the month mark.  First I think you need to know, there is no judgement here, I am not sure but, well I looked and you have been a member for a while, I joined in March of 2011, and one of the first things I noticed was the lack of anyone being judgemental.
 
Dont we go thru enough without having to worry about one of our own judging?  I also dont know if you can take this but Valerian Root is a natural narcotic type of medicine, no prescription needed, where I am it is sold in most drug stores, CVS, Walgreens, etc. just look in the homeopathic meds and you should find it there.
 
You know what, as I wrote that I realized I should have started taking it myself when I see I am beginning to get to those last ten days.  I will be getting an increase in my meds starting in Sept., this was my own bright idea, I probably could have gotten an increase in the spring, but nooooo, I know everything, I can make it until Sept.  Sometimes I wonder about myself.
 
Sorry, there I go again, I am so sorry, that was so selfish.  If you can, try the Valerian Root, it comes in pill form, and liquid, (I would opt for the pills, the taste is nasty). 
 
Please take care of yourself, and good luck. 
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/28/2011 9:41 PM (GMT -6)   
thanks all! i really appreciate all the advice! undone- tha's too funny- i was just thinking yesterday that we haven't talked in ages! i've been so busy- work has me travelling all over the place- back to ca on monday...it's been nuts! i'll email you and we'll get together. hope you're doing well! i was on remicade but started producing antibodies so that went bye bye. been on humira for a bit- may be going to weekly- have to see. talk to you soon!
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 7/30/2011 1:04 PM (GMT -6)   
Hi, can you get in the water? Water jogging or walking is very theraputic. I have nerve damage and it when i go often I am able to reduce the amount of pan meds I take.

Hang in there !
Su

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16284
   Posted 7/30/2011 4:56 PM (GMT -6)   
Mt has your gastro ever tried you on Bentyl for the gut pain and spasms? I take it a lot and it really has given me some relief. If you haven't tried it give it a go, it is available in a generic form too. My absorption problems started after my first resection, so I understand what you are saying.

As far as the joint pain goes, you know there is such a critter as crohns arthritis that hits us too. I have crohns arthritis, osteoarthritis and psoriatic arthritis as the final topper. So much of my spine is involved that I really do not know where I would be without the pain pump. I really think you are going to have to bite the bullet and make a decision on whether you want to suffer two weeks out of every 4 weeks or either increase your current dosage and have some quality life instead of misery. By keeping yourself so stressed out you are not doing yourself any favors with the crohns flares. No one can predict what your future will be like with all of this mess later on down the road, so you really do have to live in the moment in many ways.
Moderator Chronic Pain Forum

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 7/30/2011 6:59 PM (GMT -6)   
the Salonpas patch is pretty good. on top of medications if you can find a topical treatment that does something ex: boswellia or boswellin cream is a anti-inflammatory. Emu oil is suppose to be anti-inflammatory. i think arnica helps tight muscles if you wake up still. DL-Phenylalanine or better D-Phenylalanine is a great pain reliever.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/30/2011 11:52 PM (GMT -6)   
i do have bentyl- i actually have about 200 pills bc i didn't think it really did much and it made me feel really loopy- much more so than the percocets...i was hoping the bentyl would work- that was the 1st thing we tried to do to address the pain...the pain is a relatively new manifestation of the crohn's...i've had crohn's for over 20 years but the pain has only been a part of my life for the last year and a half or so...it was so bad when i was going to the bathroom that i would literally be puking on the can due to the pain...horrible thing to have to deal with with a 5 year old in the house or at work...man work was terrible...there were a few times i'd be puking with someone in the stall next to me- they wanted me to travel to train some people in another office we were opening- someone just happened to mention they had one bathroom-1 stall for over 200 people...i said no thanks real quick! maybe i will give the bentyl another shot...i've been cutting back over the past week or so...split all my pills in half and am trying to stretch them out til the 13th. i've been hitting the hot tub at the ymca also- that's nice. warm showers and the heating pad also. i have to travel for work each week over the next three so hopefully it won't be too bad!
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

Mysti
Regular Member


Date Joined Jul 2011
Total Posts : 101
   Posted 7/31/2011 1:23 PM (GMT -6)   
Hi Mtgman. You sure won't hear me being judgemental either. Although I know better, I do the same thing with my pills and wind up short at the end of 30 days. I just recently started cutting my pills in half, also, thinking I could *psych* myself into thinking the halves are whole tablets....NOT. I thought I would share an idea for pain relief that I totally believe helps...LAUGHTER. Many times late at night, when I can't sleep due to pain or anxiety, I watch some old comedy sitcoms, like The Golden Girls and Roseanne. It not only distracts me, but I think laughing is a release of endorphins, similar to opiates. My sister and I both suffer from chronic pain and we always say we both feel so much better when we get together and laugh. So that's just my suggestion.

I do hope you find some comfort soon and have a peaceful day today.
DDD, 3 bulging lumbar discs, bone spurs, osteoarthritis
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