I Finally get Relief & they won't Refill

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Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 7/27/2011 3:57 PM (GMT -6)   
With my unbearable pelvic/bladder pain...I finally get relief from the Vicodin & then Valium/coumpound Suppositories. And I requested a refill on the Vicodin & they won't refill it. I am in a Panic. I didn't misuse it, I took as directed...And they said that the Vicodin can cause Constipation. I have a fricken ileostomy and it doesn't constipate me AT ALL!


I am so depressed, so angry (rage)...I feel like I am going to explode. Thanx for letting me vent.
Your Healingwell Friend,
Serenitee

Loop ileostomy, pelvic/bladder trauma & dysfunction...
Bipolar 2, Borderline, Anxiety/panic Disorder, Manic-Depressive, Ptsd

(Please read the forum rules on posting. If you would like to talk to someone about your problems and how to get help, please call a local Crisis Line hotline. They can help in ways that we can't)

Post Edited By Moderator (Chutz) : 7/27/2011 7:35:24 PM (GMT-6)


newname
Regular Member


Date Joined Jun 2011
Total Posts : 95
   Posted 7/27/2011 4:17 PM (GMT -6)   
Did the doctor know about your past alcohol abuse the first time he or she gave you the vicodin? Is it in your medical records?
All I can think is that maybe they didn't know about you being a recovering alcoholic when they first prescribed you the vicodin, but then somehow found out. This bit about it causing constipation doesn't make sense because there are ways to combat that potential side effect. Whatever you do, don't hurt yourself.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/27/2011 5:59 PM (GMT -6)   
Oh gosh Serenitee, that is not good. I am so sorry you are having this

problem, esp. after finding a bit of relief. Do you see a pain specialist?

Can you find out the reason for them not filling your script again?

I wish there was something I could do to help you. Just know that i care

and you can email me anytime if you need to chat ok. Please reach out

for help and support right now, you need it ok.

Hope you are able to post again soon. Let me know if you want to go in the chat

room.

Suzane

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 7/27/2011 6:37 PM (GMT -6)   
Thank you all so much for being there for me and responding so quickly to my post.
 
Tmj, I was wondering what exactly is a pain specialist? I've heard about them or pain management but not quite sure exactly what it is and how it works? I am interested in information about this, so thank you so much.
 
Newname, to answer your question regarding if my Doctors are aware of my alcoholism or if perhaps they found out...Yes, they know, it is all in my records & I have not kept that from them, since I was inpatient & then outpatient for
5-months (dual-diagnosed). They know that I have never had problems with indulging in prescription drugs.
 
I am going to try what they have prescribed and see if it helps. Not much more I can do about it I guess. I can't wait to see my Psych Dr. on Monday & hopefully she will try something for my Depression. I have been journaling everyday & rating my moods, putting an emotional feeling word with it and trying to explain how I am feeling so my Pdoc can go over it.
Thank you all so very much, you truly helped me. I don't know what I would do without you all. Hugz
Your Healingwell friend,
Serenitee
 
 

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/27/2011 6:44 PM (GMT -6)   
Hi Serenitee
A pain management doc helps people with chronic pain, prescribing narcotic meds for pain, and some do injections. Call your gp and ask if they have any names or phone numbers they can give you.
The one med that has finally helped some with my depression is Remeron and it also helps for sleep. This was good for me because i have not been sleeping well for years. The depression has been pretty rough so this med was a welcome addition along with my Pristiq and Wellbutrin.
Hope this helps you a bit my friend. Email me anytime you want.

Take good care and let us know how things are going for you.

Suzane

stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 7/27/2011 8:07 PM (GMT -6)   
Hi Serenitee
I hope you get things straighten out. I know how you feel, I've been in a similar situation when I had to change doctors and the new doctor told me that she only prescribes narcotic pain meds to cancer patience. I figured I had nothing to lose by letting it all out. I told her that she has obviously never been in pain . Her reply was that I didn't have to be her patient. I asked if she was in great pain would she not want help and that's all I asking for and when she goes home tonight and puts her feet up will she be thinking about me curled up like a caterpillar in pain waiting to go to the ER again. I wasn't rude to her or screaming and yelling but something I said or something she saw made her change her mind. I think sometimes we get tongue tied or intimated by doctors and don't really let them know just how desperate of a situation it is. At least that seemed to be my problem and still is sometimes. I think talking to your psych doc is probably a good idea and maybe he or she can help out. I feel for ya. Hang in there and don't do anything rash. Come and talk to us. We all care about you. Talk to ya soon I hope.

.Stingray(Randy)
Chronic Back Pain, Anxiety, A little Depression
Meds: Oxycodone, Oxycontin, Clonazapam
Birthday July 18th

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/27/2011 8:36 PM (GMT -6)   
see another doc. Good luck. Rosemary

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 7/27/2011 11:34 PM (GMT -6)   
Hi Serenitee I'm so sorry that you're in so much pain. Please keep posting here. We care. Please don't do anything rash. I know how it is being in such pain and not knowing what to do. It might be a good idea to talk to your doctor on Monday and ask him/her if they can help. Take care.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/28/2011 12:08 AM (GMT -6)   
Hi Serenitee, I am nini53 aka Kathy, I really feel for you, as a recovering alcoholic (23 yrs and still take it 1 day at a time), I know it can be difficult to get a doctor to get past that.
 
What everyone else has told is good info. please find a Pain Management doctor asap, a pm doctor will be able to help with the meds you need.  They are (supposed to be) trained in the field of pain management.  You may have to whats the saying kiss alot of frogs before you find your prince or princess in the pain management area.  I sincerely hope it does not take you long.
 
I dont know what area you are in, which state, are you in US?  No matter where you are, you should be able to find a good pain management doctor close enough to you.
 
I take public transportation, I take 3 buses and 3 trains once a month to see my pm doctor.  He is well worth the trip.  I will take this trip until well best not think about that.  I am 58, I have been a chronic pain patient for well over 11 years.  The first 2 years, I barely left my house unless it was to go to the doctor.  Now I am all over the place.  You will find different ways to do the things you did before you became a cp patient.  Life is a precious gift, please try and keep that in your mind at all times.
 
Ok, enough lecturing, take the advise of the many people who have reached back out to you, you must know by now that you are not alone.  You will never be alone, we are here 24/7.
 
Please take care of yourself, and remember you will never be alone.  I hope you will be feeling better soon, and find the doctor you need.  My prayers are with you.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 7/28/2011 12:21 PM (GMT -6)   
WoW, so much amazing advice...So much Thanx 2 everyone. I even took my notepad out to jot some things down so I don't forget to follow-up on them. "Yes, I live in the States near Portland Oregon." I'm sure we have pain mangement Doctors around here, so today I am going to start checking into it and seeing if I can find someone and make an appointment.
 
You have all given me a lot of hope and great avenues to follow-up on, as I most certainly will.
 
Stingray, I am one of those patients that is so intimidated by my Doctor. I love the advice you gave me & I will try to be more assertive. Thank you
Hugz 2 everyone
Your Heakingwell Friend,
Serenitee
 
Bipolar 2, Manic-Depressive (more depressive), Borderline, Anxiety/Panic Disorder, Ptsd
Loop ileostomy, Pelvic/bladder trauma & dysfunction, vaginal vault lift w/mesh, 2x-bladder lifts w/mesh, hysterectomy, c-section, 7-births, ruptured appendix, tumor removed from head, 4-knee surgeries w/screws in each knee, shoulder surgery, wrist surgery, toe surgery...Having arthritis problems and will see a Rheumatologist in August.
2x-rectoceles,

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 7/28/2011 12:28 PM (GMT -6)   
Big hugs to you !!!!! See you in chat tonight!

Xoxoxox,
Shell
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/28/2011 12:43 PM (GMT -6)   
Just to play devil's advocate for a minute, one possible concern your doctors may have in regards to putting you on narcotics is in fact due to your ileostomy. Narcotics can put the intestines to "sleep" making it difficult to move food and/or waste through them, hence the reason why so many people who take narcotic pain meds suffer from constipation.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 7/28/2011 2:46 PM (GMT -6)   
Want to add...in your search for a pain management doctor, there are different types (anesthesiologists, physiatrists, and pm doctors). I'd do some research on the different kinds, and see what kind you think will be a good fit for you.

Some PM doctors only do injections, and do not prescribe medications, so I'd try to find this out beforehand. You may have to "interview" a few PM doctors before you find one that is a good fit with you.

Also, I'd start keeping a pain journal if you can...writing down your pain levels (0-10), and writing (objectively) how you feel, what you did to bring your pain down (heat/ice/meditation/medication,etc.), and if it helped.

I'd also write down your goals. The goal of PM is not to be pain-free, but to function better. What are some things that are realistic that you wish that you could do, but can't b/c of pain. For example, walking for 20 minutes instead of ten. Things like that.

Sending hugs!

Flower

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 7/28/2011 4:48 PM (GMT -6)   
Thank you for giving me hope again.
Flower,
I absolutely cannot "Thank-You" Enough for sharing all that information regarding: Pain Management & Detailing so much for me. I wrote everything down...And I really thought "The Pain Journal" was a terrific idea. I have already made plans to go out today & buy a couple different spiral notebooks to start writing & following what you had suggested for realistic goals. I really liked your example of: Walking 20 minutes instead of 10 minutes. That is actually a great goal for me, as I haven't been able to do anything with all the pain.
 
My husband and I, just a couple days ago saw for the first time on T.V., a commercial regarding: severe pain in pelvic area & bladder. And that it can be caused by "Mesh" that was used. Also, they said it has caused: intestinal problems, bladder problems, sexual activity problems, etc. 
 
And I have A-LOT of mesh inside my pelvic region. Mesh w/first bladder lift, then A-LOT of mesh used to lift entire pelvic region: Bladder for the 2nd time, Colon, Intestines, & Vagina. Then they don't know what caused my intestines to quit functioning which resulted in a Loop ileostomy & in September they are supposed to remove rectum & Large colon maybe more maybe less.
 
So, I am now wondering if perhaps this has any part in this pelvic pain. Oh, and I asked my Dr. when she did the extremely painful exam, if Scar Tissue can cause pain. She said yes. Well, then duh, doesn't she put together my 15-surgeries & the scar tissue that has been a difficult problem with trying to complete the last few abdominal surgeries (including ileostomy)...Surgeon had a hard time trying to find the intestines and then pull thru all the scar tissue to make the Loop ileostomy.
 
Thanx 4 listening 2 me vent...Hugz 2 everyone & Smiles
Your Healingwell Friend,
Serenitee
 

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/28/2011 5:04 PM (GMT -6)   
Hi Serenity
Nice to hear back from you again today.
How is your pain today?
You know, now that you mention that i have seen that commercial on tv here in
Canada as well. So how can you find out if that is the problem? I imagine
with the help from you doc, they could tell you the name of the company of the mesh and you can call them. I believe they show a phone number on tv, but not sure. I will keep an eye for that ad for you. \Yes adhesions or scar tissue can cause pain and i am sure with all your surgeries you have a lot. Like you mentioned, your doc had difficulty doing your ileostomy. Can you see another surgeon for another opinion?

Well keep posting girl, everyone here is so great, so much knowledge. We will help you get thru this.

Suzane

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 7/29/2011 5:05 AM (GMT -6)   
No problem:) I actually email myself my journal, so that it spell checks, and because my handwriting is awful, lol, and then print it out for the doctor if need be.

I hope that you find a wonderful doctor and get some relief soon. Oh...yes, I've read that scar tissue can definitely cause pain! Wow. You have had a lot of surgeries.

Hugs,

Flower
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