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NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/30/2011 12:58 AM (GMT -6)   
Hi I am nini53/Kathy, I have been a chronic pain sufferer for many years.  I am pretty sure I am not the only person who has trouble getting to sleep but staying asleep.  Sometimes I cant sleep due to the pain, sometimes I cannot sleep because my mind is going round in circles, did I pay this bill, what can I do about whatever problem that has come up on that day.  Sometimes it is a combination of both.
 
Some nights I can get to sleep only to be awakened by pain, in my back, legs and sometimes lately fingers.  I have taken otc sleep medicines, and although they sometimes work, they to dont keep me asleep.  Although I dont believe otc sleep aids are not physically habit forming, (I can only speak for myself) they can certainly become a habit taking night after night, until at some point they no longer work.
 
I have at some time taken prescription sleep medicine, I dont want to take them every night, as I certainly dont want an addiction to prescription sleep meds.  Also, I had a very bad experience with one of the prescription sleep meds and landed in the psyc. ward at the local hospital er.  It is something my daughters and I laugh at now, there is nothing funny about what happened.  I took 3 of these prescription meds and the next thing I remember was waking up in the er in full body restraints, I had no idea how I got there, I have no memory of the evening before.  I have been told by my daughters that I was walking around with a blanket, crooning and cooing to what I guess I thought was a baby.  The police came, they asked my how old I was, at that time I was 49, my girls said I told the police I was 28.   I was 28 when I had my oldest daughter.
 
Needless to say, I never took another prescription sleep medicine again.  And I never will.  I have tried different ways, listening to tapes, books sometimes, sometimes gentle water sounds, various tapes or I guess I should say cds, sometimes they work, sometimes they dont.  I guess you can tell tonight or I should say this morning, nothing is working.
 
Well as usual I have written a novel, so its time for me to go back to playing solitare, the only game in town, sometimes.  Take care all and thanks for being here always.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/30/2011 1:31 AM (GMT -6)   
Akkk. Don't get me started on the topic of sleep problems. I have suffered from them all my life. During childhood it was night terrors and sleep walking. In my mid teens it was night terrors and insomnia. In my early 20's the terrors turned into somewhat chronic nightmares along with insomnia.

Now in my early 40's I still have to deal with insomnia along with screwed up sleep due to pain.

Sleeping pills have never worked for me. For some reason I "fight" right through them. Even when I have been put under for operations the doctors often report that I have tried to wake up and when I was kept in what was basically a drug induced coma for 3 weeks a few years ago they had to keep a close watch on me because I kept coming out of it, at least partially, as in enough to have hallucinations and one time I managed to undue my restraints and pull my vent tube.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/30/2011 2:34 AM (GMT -6)   
Omg jim1969, and I thought I had it bad.  I rarely have nightmares, but that could be due to rarely sleeping more than 2 hours at a time.  I have done everything I can think of, I have stopped drinking (I am recovering alcoholic 23-24 years and counting) so I mean sodas, even water, I thought for a while that was interfering with my sleep, getting up to go to the bathroom.  But no help, I dont drink anything after 6 pm. nothing works.
 
I had not been having as much trouble sleeping for awhile now.  I am not sure what brought on this latest bout of insomnia, but I dont like it.  I am sure you know, the more you think about it, the harder it is to go to sleep.  I am very fortunate, I do love to read, and go to the thrift store every 2-3 months to refill my books.  I read alot of suspense novels, and they can be quite well, suspense full, (I know thats not spelled right, but hey its like 3 am here, I am doin the best I can,)lol. 
 
I have been known to read an entire book 300-400 pages in one night because I cant wait to see how it ends.  Yes sometime I cheat and look at the end first.lol  That is why I buy from the thrift store, I can buy between 10-12 books for 10 dollars and under, they are like between 50cents to 1 dollar, most expensive 1.50.  I mean you cant beat it.
 
Well I will either try to sleep again or play some more solitare.
 
Take care all, hope you are having restful and pain free (as much as possible) days and nights.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/30/2011 7:53 AM (GMT -6)   
 
       I wish I could get a good nights sleep myself!...it seems I wake up at least twice a night...and when I do sleep...I never wake rested.
 
            What gets me though...is I tend to fall asleep early...and will sleep right through my med schedual...and when I do wake up...it is the most horrible feeling to be in that much pain....then it takes about 25min for them to kick in.
 
         Yes I crave just one good nights sleep...please oh please!
 
     SE
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16777
   Posted 7/30/2011 10:13 AM (GMT -6)   
A good nights sleep, lol, what is that. For nearly 3 yrs now I have been running on a 3 hour sleep schedule and I am running on empty all the time. Even when I take say a pain pill and a muscle relaxer just before crawling in bed because of neck and shoulder problems that have been stirred up, its the same 3 hours and then I am awake. I do not do sleeping pills well at all either so that is out.

I often wonder if its not the medications that we take that is the culprit because this is a problem with so many people on these meds. I think somewhere in the mix our brain just goes into an overload mode and the signal that says go to sleep for 8 hours has been short circuited. My other problem is I am not a day time sleeper so laying down for an afternoon nap does not work for me. The only time I have ever been able to sleep in the day light is if I was in bed with the flu or something like that. Its never ending I know.
Moderator Chronic Pain Forum

newname
Regular Member


Date Joined Jun 2011
Total Posts : 95
   Posted 7/30/2011 10:39 AM (GMT -6)   
I've tried Ambien for sleep...and I never will again. I'm not sure if it really puts you to sleep or just makes you forget being awake. I would sometimes wake up on the couch or in a chair even though I remembered going to bed. Yet I had no memory of getting up and going in to the living room. That scared me because who knows what else I might have done while in that condition?

chanterelle
Regular Member


Date Joined Apr 2011
Total Posts : 99
   Posted 7/30/2011 7:34 PM (GMT -6)   
I probably wake up close to 50 times per night (no exaggerating), and that is after 1-2 hours of trying to get to sleep due to pain. I often must get up to walk around and stretch in the middle of the night. I take Zopiclone which really helps BUT only allow myself to take it once a week. If it was not for Zopiclone I would have one good sleep for every ten horrible ones. The longest I have gone without sleep is 11 nights so the doctor at the hospital injected me with drugs to make me sleep for 24 hours. Sleep study? Didn't fall asleep. At all. Not even for one minute.

Unfortunately napping does not work for me, either, as I cannot fall asleep to nap. The last time I napped was when I had pneumonia last year.

When I do sleep well (i.e. only wake up about 5-10 times per night) I feel like I can take on the world! The difference is miraculous.
Back injury 2007 with 3 herniated discs, IT band syndrome, myofascial pain, DDD.
Rotator cuff injury both shoulders.
Diagnosed with Celiac Disease February 2011.
Diagnosed with Fibromyalgia April 2011.
Insomnia forever but worse the past few years due to pain and discomfort.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 7/30/2011 9:13 PM (GMT -6)   
Maybe try melatonin, it might help...hope you can get some rest...
I once found a relaxation cd on line and have never been able
to find it again, sometimes those can help to play them
at night...
well wishes
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 7/30/2011 10:18 PM (GMT -6)   
Hi Nini and everyone else having a hard time sleeping

I've heard that melatonin can help. Jerome took it a few months ago, and it didn't help him at all. I take Seroquel and I sleep well after waiting about 2-3 hours to get sleepy.

I hope you all can find a way to get a good night sleep.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/30/2011 10:31 PM (GMT -6)   

I haven't slept well for year since these headaches started.

I was on the melatonin 30mg for two years and it did nothing.

The last three weeks i have been on a new medication, remeron, which helps to sleep and also

depression, and on the most part it is helping me.

It's so difficult to cope with chronic pain when you have had no sleep.

And not getting to the deep sleep  stage where your body heals doesn't help either.

My wish is for all of us to get some good sleep to help us get thru our day.

Suzane


NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/30/2011 10:56 PM (GMT -6)   
You know what I best think about this cp forum.  I sat around for days hours, and never think about how many others have the same difficulties.
 
Family members cant understand as well as one of us do.  I said more than once, I wonder if anyone else cant sleep at night.   And boom, helpful hints and much understanding.
 
Thank you all, please take care of yourselves.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

chanterelle
Regular Member


Date Joined Apr 2011
Total Posts : 99
   Posted 7/31/2011 10:27 AM (GMT -6)   
Another rough night last night. Melatonin has not worked for me, either, but I am thankful it does help others!

This cycle of chronic pain and insomnia is seemingly impossible. I am sick of bumping into things and stumbling around in a stupor! I have just started Amitriptyline two nights ago for insomnia and it is keeping me wide awake. I still want to give it time, though, because if it does work in a few weeks I will be thrilled!

Have a happy day, everyone.
Back injury 2007 with 3 herniated discs, IT band syndrome, myofascial pain, DDD.
Rotator cuff injury both shoulders.
Diagnosed with Celiac Disease February 2011.
Diagnosed with Fibromyalgia April 2011.
Insomnia forever but worse the past few years due to pain and discomfort.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/31/2011 10:48 AM (GMT -6)   
Chantarelle, I sure hope your new med helps you. Let us know how that goes.

Kathy, when you have your sleepless nights, come and check in the chat room as i am quite often there as well as others. It helps the night go by when you can't sleep and can take your mind off of the pain.
This is a great place eh!! We all understand each and support each other.

Hoping everyone can get some sleep soon.

Suzane

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 7/31/2011 1:26 PM (GMT -6)   
From a study I read - You're supposed to take melatonin with magnesium and zinc. Take it about 1/2 hour before bed.

I alternate between that and Ambien, and nothing on nights when I get sleepy enough. I don't want my body to stop producing its own melatonin, and I don't want to get addicted to Ambien. Taking melatonin, with Mg and Zn gets my body clock regulated, and I can fall asleep if I've done work during the day and am just tired. I was always unable to get to sleep or stay asleep before I hit on this combination.

I still wake up most nights with pain, have a pill waiting for me. But at least I can usually get back to sleep right away, even before the pain med has kicked in.
Alcie
 
 

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 7/31/2011 1:51 PM (GMT -6)   
Nini...I'm so sorry to hear about the insomnia...from the sounds of it...you are certainly not alone!

I started on Ambien back in 2006 after my last fusion surgery...That has been an absolute God send to me! I knew that I never got to stage 4 sleep before as I'd been diagnosed with CFS and Fibromyalgia back in the mid 90's....but hadn't found something to help before and other Dr. tried me on other medicines...

Just like my pain medicines...I know my body is dependent on them...which is completely different than addiction...Addiction is when a person takes more medicine than prescribed...'craves' a medicine to get high...or buys/sells medicine illegally....

It's absolutely natural for the body to become dependent on any medication...just like a diabetic is dependent on insulin...

For me...the benefits far outweigh the side effects...for me..the only side effects were eating late at night..as well as talking to ex boyfriends on FB without remembering LOL.....which I stopped after the first few months as I get off the computer and stay in bed watching TV or listen to a book on my phone after I take the medicine...I shut my bedroom door...So I am lucky I never had any dangerous side effects..

But I only take either 5 or 10mg at night and that has not had to change in almost 5 years....

I know it's different for everyone and we all need to make the choices best for us...I just am so amazed at the difference it's made for me...It's not just helped my energy level but my mood and my pain levels...I

I still wake for a few seconds every hour to change positions as it's too painful to sleep on one side or the other all night..

It sounds like you have tried pretty much everything...so I really feel for you and others who are having issues...

The other thing I learned was keeping my bedroom cool really helps..with these brutal summers I've kept a fan blowing on me all night long..as well as getting off the computer or doing something that involves my brain being active...That is where I LOVE audible and listening to my favorite books...Lights out...being read a bedtime story...helps me fall asleep peacefully...

I am sending you all some big hugs (( ))...I really pray that you and others can find things to help...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/31/2011 2:30 PM (GMT -6)   
Thanks to all, I now know I am not alone at all.  Snowbunny21, the thing about meds, what works for one person doesnt work for another.  So the same is true for sleep medicines.  I have even thought of trying something like Lunesta, I believe these medicines work on the same principles.
 
But as I said, one persons candy is anothers poison.  And I dont mean Ambien or any of the other meds are candy, they certainly are not.  Its just an expression.
 
Back in my day there was secondal, tuanall,(sp) but they were of a different kind.  As far as I know the medicines from that time were highly addictive and somewhat as dangerous as narcotics withdrawal.
 
Ok enough of that, I am very glad (and a little jealous) that the medicine works for you and works well.  I do see that insomnia is rampant in the world of cp.  I will never feel alone again.  I need to get on the chat rooms when I cant sleep at night.  I have tried once or twice and never quite made it, but I think when I tried, no one was on as it was during the day.
 
So take care all, and hope you a having low pain day.  I for one finally got some sleep last night (sat),  I feel so much better today, at least in the sleep area.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 7/31/2011 2:47 PM (GMT -6)   
I absolutely agree...I truly wasn't saying for you to try the Ambien again...just showing others that as you said...what can work for someone..won't work for another...

I know Lunesta works on a different part of the brain...so maybe that would be one to try?

Believe me...I do understand as I was there for so many years!...It really is tough...I'll keep praying for you!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/31/2011 2:59 PM (GMT -6)   
Oh Kathy, that is great that you got some sleep last night. how many hours? did you do something different?

Yep, it's tough battling chronic pain when you never feel rested.

The chat room really helps me!!! Hope to see you there soon kathy. anyone else wanna try the chat room?

Suzane

BethW
Regular Member


Date Joined Mar 2010
Total Posts : 132
   Posted 7/31/2011 3:10 PM (GMT -6)   
Supposedly, melatonin and Valerian work well together. I've also heard that 5-HTP can work well. In all cases, they probably work better if you take them continuously as opposed to just once in a while.

What seems to work best for me is a 3-prong approach. First, I drink Sleepy Time Tea an hour or so before bed. I think it's more of ritual that lets my mind and body know that it's time to chill. Second, I take a mild (prescribed) muscle relaxer just before bed. It doesn't help me GET to sleep, but it keeps my muscles from knotting up and waking me up. Third, and this might sound odd, but a couple of years ago, I bought a book called The Gabriel Method - it's a weight loss book. It came with a free download of a relaxation tape that you're supposed to listen to when you go to bed. I was suffering from insomnia at the time, so I laughed at the idea. I can honestly tell you that I have NEVER heard the end of the 30 minute mp3 file.

I'm currently not really dealing with insomnia. My problem right now is that, because of my odd thyroid issues, staying asleep for one reason or another is almost impossible. When I do find myself suffering from insomnia, I pull out the mp3 player, put in the memory card that has that file on it, and press play. And it works. Of course, YMMV.

chanterelle
Regular Member


Date Joined Apr 2011
Total Posts : 99
   Posted 8/4/2011 11:50 AM (GMT -6)   
OK - have been on Amitriptyline now for 6 nights and am HATING it!  I want to give it a chance to work (takes 3-4 weeks) but it is making my insomnia absolutely unbearable.  I would be lucky if I have had a total of 6 hours of sleep in 6 nights.  Called the pharmacist and she told me she had never heard of anyone not sleeping with it!  It feels as though my body is fighting it somehow.
Back injury 2007 with 3 herniated discs, IT band syndrome, myofascial pain, DDD.
Rotator cuff injury both shoulders.
Diagnosed with Celiac Disease February 2011.
Diagnosed with Fibromyalgia April 2011.
Insomnia forever but worse the past few years due to pain and discomfort.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/4/2011 12:18 PM (GMT -6)   

 

           chanterelle....here is a link I would like you to view concerning the med you are taking. Please take a peek at it, and then call your Dr as soon as possible. I don't care what the Pharmacy has told you...call your DR.

  Here is just a little of what it says:

You should know that your mental health may change in unexpected ways when you take amitriptyline or other antidepressants even if you are an adult over age 24.  You, your family, or your caregiver should call your doctor right away if you experience any of the following symptoms: new or worsening depression;  extreme worry; agitation; panic attacks; difficulty falling asleep or staying asleep; aggressive behavior; irritability; acting without thinking; severe restlessness; and frenzied abnormal excitement. Be sure that your family or caregiver knows which symptoms may be serious so they can call the doctor when you are unable to seek treatment on your own.

 

      http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000666/

       Hope you can find an answer to your sleep problem...but do please call... to make sure you should continue this med. Everyone is different, and I have no experience with it....but after reading the warnings on it...I think I would be calling as well.

 Good luck!

     SE



Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 8/4/2011 11:42:33 AM (GMT-6)


Mysti
Regular Member


Date Joined Jul 2011
Total Posts : 101
   Posted 8/4/2011 12:38 PM (GMT -6)   
shocked  Thought I would jump in here on this conversation because I can certainly relate.  Seems like we are all in good company lol.  I have a terrible problem with insomnia and have for as long as I can remember.  The past 2 nights have been really bad for me, I guess because of some increased pain.  I did step into the chat room here for a few minutes and had some fun talking to a couple of members...so I plan to return during those miserable, sleepless nights.  Maybe I will find y'all in there too.
 
I have an rx for Ambien and I have to say it works, but I have to be really careful with it, as I have done some pretty stupid things when taking it...that I either don't remember or I have some vague memories as I was *coming to* with it wearing off.  One terribly embarrasing incident after I had taken an Ambien....it was about 3am, I couldn't find my dog and I started knocking on some neighbors doors to ask if they had seen her.  My dog was in my backyard the entire time and I am not even sure who all came to their doors to find this idiot standing there, but a couple of days later, one neighbor yelled from her yard "did you ever find your dog?" and I was thinking "huh? confused " , then I remembered a few things.  How embarrassing.  I stopped taking Ambien after that, and because it only gives me about 2 hours of sleep anyway.
 
I think I have to agree with the melatonin and valerian combo.  I bought a bottle at Walgreens and it is a combination capsule of melatonin, valerian and chamomile.  I think the key is to take it regularly, which I am starting to do now.  One night, I thought it made me really sleepy and I felt rested when I awoke.
 
NiNi I love to read, too.  I'm the same way about *cheating* lol.  Many times when I'm reading a really good suspense novel, I can't wait to find out what happens, and I read the ending.  Then I don't go back and read the middle because I know how it's gonna end.  Lol...
 
Well you certainly are not alone, NiNi.  I wonder, too, if it may be our meds or our diagnoses that cause the insomnia.  I can't take amytriptylline either, as it has an opposite effect on me.  It makes me feel very anxious and like my heart is racing.  Even flexeril (which also has the *anticholinergic* effect because it actually is similar to the tricyclic anti-depressants...keeps me awake too.  Benadryl...same thing. 

chanterelle
Regular Member


Date Joined Apr 2011
Total Posts : 99
   Posted 8/4/2011 4:43 PM (GMT -6)   
Thanks for posting this information.  I did call my doctor but he is away until Monday (of course!).  So, I am not going to take the Amitriptyline starting today as I have all kinds of strange things happening such as extreme dizziness, shakiness, stumbling, bumping into things, heart palpitations, dry eyes, etc.  I have been on many meds for chronic pain but do not recall feeling this horrible.  Part of it is due to extreme insomnia but I know for a fact that the Ami definitely is making it a lot worse.  I was actually quite scared earlier today. 
 
Zopiclone works well for me but I do not allow myself to take it more than once a week.  Thankfully I have a few Ativan left so I will take one this evening as I absolutely must sleep.  I will try the Melatonin/Valerian combo again but have to find a gluten free brand as I have celiac disease so cannot have any gluten.
 
Does anyone ever fear drastic things happening such as organs shutting down due to sleep deprivation?  When does that begin to happen?  It is amazing that a person can actually go on after having so many consecutive sleepless nights. 
 
Mysti, Flexeril did the same thing with me - it kept me awake.  This Amitriptyline does the same only about 10 times worse for some reason!
Back injury 2007 with 3 herniated discs, IT band syndrome, myofascial pain, DDD.
Rotator cuff injury both shoulders.
Diagnosed with Celiac Disease February 2011.
Diagnosed with Fibromyalgia April 2011.
Insomnia forever but worse the past few years due to pain and discomfort.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/4/2011 5:17 PM (GMT -6)   
…chanterelle….while I do not know much about the med or sleep deprivation….I am worried for you at this point…and can tell you are not in a good place mentally.

I'm hoping you have someone around to keep an eye on you. My ex wife suffered from depression, and was depriving herself from sleep, and eventually she suffered from sundowners syndrome. It's not a fun thing to witness someone going through this. At just about sundown, she turned into a completely different person, and would stay that way all night long. I had to stay awake with her for three days one time, just to keep an eye on her.

You must sleep!….it is important! Please make sure you notify someone to keep an eye on you as well.

Take care….get off the computer and rest.

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

chanterelle
Regular Member


Date Joined Apr 2011
Total Posts : 99
   Posted 8/11/2011 10:06 PM (GMT -6)   
SE, it is now several days since I stopped Amitriptylene and I am now reading what I typed in shock. It is like I had completely changed personalities! My husband was worried as well - he came home from work and stayed with me. The first day without Ami I began feeling better. I slept that night and was a new person the next day! Looking back on it sends shivers down my spine - it was very scary how dreadfully it affected me. My mind is now clear and sharp again and thankfully I feel my cheerful, positive self.

Anyway, I appreciate your words of wisdom and concern. Believe me - I will never, ever even for a second consider taking that medication again. It is interesting how it works for some but is so detrimental in others!
Back injury 2007 with 3 herniated discs, IT band syndrome, myofascial pain, DDD.
Rotator cuff injury both shoulders.
Diagnosed with Celiac Disease February 2011.
Diagnosed with Fibromyalgia April 2011.
Insomnia forever but worse the past few years due to pain and discomfort.
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