saw a new doc today... its more depressing w/ each new opinion.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/1/2011 4:55 PM (GMT -6)   
Went today to see a new doctor at Rehabilitation Institute of Michigan... I got fitted for a back brace and had it molded to fit my body... I found out the curvature of my spine is at least, at a minimum of a 45 degree angle (the doc still has to take a better look at the xray). He also said 2 of my vertebrae have fused themselves together (around L1 and L2 I think he said). Of the 2 fused, one of them has worn away about half of its self. I have to call tomorrow and make an appointment to start physical therapy... But I'm sure you all know, none of these things do anything but help relieve the pain a little bit... It sucks!
The injections I got last week still haven't seemed to have helped at all.... I'm so DONE!!!
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 8/1/2011 5:12 PM (GMT -6)   
Hello Sosickandtired, I am nini53/kathy, which ever name you prefer is great with me.  So sorry to hear about your back, it sounds awful.
 
I am know of some of the meds you are taking, the others mobic, nortal and one more that starts with an L, I dont feel like going down again and getting back up here, but for the ones I do not recognize I will look them up. 
 
Are your pain meds not doing a good job of relieving your pain?   I guess thats a dumb question, of course they are not.  None of us get the reduction in pain that we are looking for.  I would think you would be on stronger pain meds from what you describe your problems as being.
 
I cant imagine what you must be going thru.  Hopefully in not a long time you will get the meds you need to help with what must be awful pain.
 
I will be praying for you and hope things get better for you soon.  Take care.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/1/2011 7:32 PM (GMT -6)   
Thank you Kathy... And yes, the surgeon I saw (as well as another doctor I saw for a second opinion) suggested surgery, but, as of right now, I'm refusing to get it done! I don't know ANYBODY that had positive results from the surgery I'd require. Plus, I'd be more stiff, and in more pain then I am now. I am able to get stronger meds, but I'm afraid of the addiction that comes along with the narcotics because my body is already physically dependent on the hydrocodone. Its a vicious cycle. If its not one problem, its another. I've delt with the scoliosis since birth, and over time, its continued to progress and cause more problems. I was unaware of the 2 vertebrae being fused together until today. The doctor I met today is very good at what he does. I forgot to bring my xrays and MRI discs and reports that I have, but, I had a pic of my xray on my blackberry, and just by looking at that, and zooming in, he could without a doubt tell the measurements and clearly see the fusion. Its that serious. I wish I was able to post a picture on here for u all to see.
At this point, I feel lost and out of options because nothing seems to help. I know, no matter what I do, nothing will ever take the pain away... But I'd at least like something to help me have a better quality of life! I'm only 25 years old, I shouldn't be dealing with this at such a young age. And to top it off, I have 2 young children (6 and 4), plus 2 step children (8 and 11). Even if I wanted to get the surgery, I'd be depriving my kids of all the little things, like things as simple as getting on the floor to play a board game (which is already very difficult for me to do.
I'm also bi polar, and for the most part I have it under control with medication and weekly therapy. But when u add my depression and anxiety/panic disorder, PTSD, epilepsy... And the list goes on... I feel like its taking over my life at times. I have a minimum of 1 doctor appointment every week, and group therapy.
I need a vacation, a break, a spa day... Something! But, I just can't do it right now.
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 8/1/2011 8:51 PM (GMT -6)   
you sound like a pain pump canidate because your very undertreated for severe chronic pain but good for Bi-polar. there is a surgeon out there that can help. i think you have no choice. best wishes, i know 2 or 3 surgeons in norfolk, VA but it might be inconvinient.
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: MScontin 100mg q8hrs. , dilaudid 8mg q6hrs. prn, oxymorphone IR 10mg q6 ,vistaril 50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Elavil 25 HS, diazepam 10mg bid prn, Supplements: CO-Q10 100mg, Vitamin D 1000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, ALA

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/1/2011 11:46 PM (GMT -6)   
What do u mean by "pain pump"?
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16011
   Posted 8/2/2011 2:29 AM (GMT -6)   
Hi So Sick, so sorry to hear how the appt went, but it sounds like you may have been expecting some of this news all along. Scoliosis can be a bear to deal with no doubt, however, there are a lot of good surgical outcomes for people with scoliosis. I have known several people that have had surgery, one was as young as 16 yrs old and she was thrilled after surgery because her pain level was acceptable after surgery. She said considering the pain level she had before surgery for so long and the level afterwards there was no comparison. But, everyone is different as well. Not all surgeries are a failure, there are many factors to take into consideration such as the dr doing the surgery, experience he/she has in this type of surgery and another very important part is whether or not the patient follows through on the post op care they are responsible for.

What type of surgery has been recommended to you SoSick? What kind of odds have the drs given you on a success rate? Do you know the drs track record on surgeries? Have you spoken to any of their patients that have had the same surgery that has been recommended to you?

Don't get me wrong, I am not an advocate of any kind for surgery of any kind, however, considering where you are now, and where you may be five years from now without surgery, you may be selling yourself short on having a better quality of life especially since you have young children at home.

Are you under the care of a pain mgt dr? I can understand not wanting to be on narcotics, none of us want that but sometimes we have no choice if we are going to be able to maintain any kind of existence. Has any of your drs ever considered putting you on an extended release long acting pain medication with something for BT pain? You may be able to achieve better pain control by going this route than what you have now with short acting meds.

A pain pump is a device that is implanted in the stomach that delivers pain medication directly into the spine where the pain receptors are located for back pain. Pain pumps are a last resort type of thing for people that have tried all of the oral pain meds out there and they cannot get any reasonable relief and there is nothing left to try. I have a pain pump made by Medtronics. You can type in pain pumps using the search featire here at the forum and find lost and lots of info on them. If you want go to www.Medtronics.com and check out their website, its one of the best for info on pumps.

I am sorry you are feeling so bad and try not to let this get you down. Take care.
Moderator Chronic Pain Forum

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/4/2011 12:05 AM (GMT -6)   
I know narcotics are just a part of life for people like us, and as hard as I've been trying to put it off, I think its time to upgrade to an extended release medication. I do have a pain doc, he prescribes my meds and does my injections. I'm sure if I asked, he'd give me something stronger. What medication do you suggest I try for the next step up from where I'm at?
As far as surgery, I've had numerous opinions, they all tell me the same thing. If I would've had the surgery at a younger age, perhaps as a teenager, I would've had a better outcome. When I was a child, the doctors told my parents to have me wear a very aggressive brace to stop the progression of the curvature, and possibly, partially correct it as I grew. But my parents refused to put me through that and, in the end, that screwed me up more then anyone could've predicted.
The surgery I'd require now is, spinal fusion, the cage, rods, wires, screws, the whole thing sounds horrible. Plus, 2 of my vertebrae have already fused themselves together, but have done so in a very crooked way, that area would have to be separated. The doctor said I'll be very stiff for the rest of my life. Even stiffer then I already am.
The surgeon himself is a very well known and very successful brain and spine surgeon. All the specialists and doctors I see, all know him or know of him and all the doctors say he's a great choice if I were to decide to go through with the surgery.
My whole thing is, I really want to put it off for as long as my body will let me. My mom runs a hospital downtown and my sister had the surgery done in her hospital and got the VIP treatment because of my mom lol, but she also got a spinal headache afterwards, she's still to this day in a lot of pain, and she's still on all the meds she was before she had the surgery... So I just don't see the point.
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16011
   Posted 8/4/2011 12:22 AM (GMT -6)   
I would make an appt and go in and see the PM dr and discuss getting a long acting and something for BT pain. Talk to him about what he thinks would be best. It really is hard for anyone here to recommend something because we all metabolize meds differently and you need something that will work with your other meds as well. Its best to let the dr make the decision of what to try you on rather than the patient tell the dr what they would like to try.

You have sure been through a lot starting at a very young age and that is so sad. I feel for you, but hope that you will not let yourself get so far a long that nothing will help in trying to correct your problem. Does your Sis have have scoliosis too?

Take care.
Moderator Chronic Pain Forum

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/4/2011 1:12 AM (GMT -6)   
My mother, grandmother, aunts, and most of my sisters have it to a small degree. But my sister's surgery was for other back problems she was having.
Thank you for the advice, I'll for sure follow up on that, discuss my options, start my physical therapy, get my injections, wear the brace they just molded for me, upgrade my meds, hopefully the combo of these things will help a little more.


Thanks again,
Kayla
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 8/4/2011 2:29 AM (GMT -6)   
HI kAYLA

I echo everyones senriments. Try not to give up. Ask your doctor if your meds can be adjusted because the current meds arent relieving your pain.

Keep us updated on your condition.

Soft Hugs
Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/4/2011 3:20 AM (GMT -6)   
Thank u... I'll post soon :)
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1234
   Posted 8/4/2011 9:55 PM (GMT -6)   
There are lots of options available now in spinal surgery that weren't there even a few years ago. The loss of flexibillity is not quite as given an outcome as previously. Have you discussed the idea of a surgery with this new doctor? Or better yet, one at a major teaching hospital in a large metropolitian area near you? Will the curvature worsen as you get older? If so, you may want to find out what the prognosis is for the worsening of the curvature , and the expected time frame of that before ruling surgery out. It may be that even considering the length of surgery and may be loss of some flexibility, it may be better than what it would be long term for you to wait......sometimes, the longer you wait, the worse things become and you could find that if you wait too long, that the option of surgery to correct the problems may be taken off the table.....You are so young, and have so much life ahead of you, that it may be worth talking to really experienced scoliosis surgeons at large teaching hospitals before making the decision not to go ahead with surgery, and getting their opinions on how your condition may go and then decide what you want to do or not do....
I wish you luck, whatever you decide to do.
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/4/2011 10:03 PM (GMT -6)   
Yeah I'll do that. My mom works in a huge hospital in our downtown area and my sister had her surgery.
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 8/5/2011 10:03 AM (GMT -6)   
Kayla, I think you should talk to a surgeon, but it makes sense that you want to try all conservative approaches first, and probably get a surgical second opinion if you decide to do the surgery. I'm also in Southeast Michigan, and it's great you're going to Rehab Institute of Michigan. There are also great doctors at University of Michigan, but it's probably a hike for you.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

SoSickAndTired
Regular Member


Date Joined Dec 2010
Total Posts : 226
   Posted 8/5/2011 10:35 AM (GMT -6)   
I'm in the downriver area... And I have talked to a few different surgeons and gotton numerous opinions
Bi Polar 1
Anxiety/ Panic disorder
Major depressive disorder
PTSD
Anhedonia
Epilepsy
Severe Scoliosis/ Degenerative disc disorder/ Arthritis/ 45 degree curvature of the spine, and 2 of my vertebrae are fused together.

Meds:
Lamictal 300mg daily
Seroquel 300mg daily
Klonopin 0.5mg as needed
Xanax 1mg as needed
Vicodine 750mg as needed
Norco 10/325. 3 times per day
Mobic 15mg
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, April 20, 2018 2:34 PM (GMT -6)
There are a total of 2,953,712 posts in 324,030 threads.
View Active Threads


Who's Online
This forum has 162097 registered members. Please welcome our newest member, kccc.
402 Guest(s), 11 Registered Member(s) are currently online.  Details
PeterDisAbelard., Serenity Now, Girlie, Drummerboi, John T, tonyaraven, Pratoman, ByHisGrace, KYLEb23, Saipan Paradise, G-Ju