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_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 8/2/2011 1:01 PM (GMT -6)   
My internet has been very spotty the last couple months.  when I have it I'm usually on my NOOK and whenever I get a chance to read I do, and then I try to post and by the time I go to submit the internet is down again.
It's driving me crazy.
I have not been up to going out places for a while, so I don't go get to a hot spot.  The places I go are church and dr offices, so no internet.
Since I don't have cable (netflix through a game system) I have no tv either.
Now I have internet, and I'm about to do bills here on the desktop computer.  My husband is opening the envelopes now, so I have a chance to post quickly.  I so miss being here daily.
Hopefully I can get the connection problems fixed and get back in gear.
 
For the past few days it seems that I cannot muster enough strength to stay awake for more than a few hours at a time.  When I am awake I am woozy, and since I keep sleeping though pain med times I hurt dreadfully.  This has been since Friday early evening.
 
My Psychologist that I see weekly with the Pain clinic is convinced I have Fibro allong with my Dx RA, but other than my other Drs occasionally poking at the fibro points I have had no official testing.  It has progressed since my last appt with them, so I am going to officially request them to start the elimination testing.
 
The problem with that is that I hate to look like I am looking for additional Dx, like I want to be sick or something.  Like a hypercondriac (sp?) or something.  But I can't just wait for tham to find things on their own- it would never get done.
 
Since I am on SS Disibility my PCP looks at me diffrently than before. I went to him in a deppresed state, and ended up bipolar.  Went to him with a painfull elbow/wrist and ended up with RA. I only seem to go to him now if I have an acute illness like cough or UTI or such.  Even then he seems like he doesn't want to work with it because I am on so many other medications and have other Dx.
 
I never know which Dr to bring up which problem.  I don't know if the whole list of complaints should be brought up in case something pertains to something else, or if I should just bring up what I think pertains, ,but when I did that before we had a problem getting the right Dx.  But the list is so LONG, I feel like an idiot listing it all out.  Like just a complainer, or a hypercondriac.
 
Anyway, Rob is here with the bills and I have to go.  I will try to catch up on reading after giving all my money away.
 
Love you all, and missing you lots.
_christina

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 8/2/2011 5:52 PM (GMT -6)   
 I tend to tune out manyi of the complaints or simply prescribe another medicine to stop the complaining. (Quoted from requiem above)
 
Requiem...may I ask what type of Dr. you are...and are you practicing now? I am amazed at the time you have during the day to post as the Dr.s I know are so busy that they don't have any free time to post online except once every few weeks or so on some medical sites...
 
I also am saddened to hear in your italicized part above that you have gotten to the point of tuning a patient out and then just give them medicine so they stop complaining:(....That's something that we, as patients certainly don't want...so maybe there is a way that you could speak with a patient to let them know that you are overwhelmed with the information and you need to work together to tackle each issue one at a time. As well as let them know what you can help treat and what you can't..This to me would help eliminate just adding a new medication when maybe it isn't needed..
 
Also with drug interactions...this goes back to how important it is to go to one pharmacy when possible...Most Dr.s...even my PM admits this...they do not know every reaction to every medication...So the Pharmacist is the one to run a computer check and see any interactions with the medicines someone is on..
 
Christina...it's good to hear from you....but I'm sorry you are having trouble..It's always hard when you are searching for answers and not yet truly diagnosed with certain things...But there are quite a few of us that have different issues...so don't feel bad!...Just try to take the most severe symptoms and work with those first with a Dr. A Rheumatologist is good for Firbromyalgia, Lupus, MS, any type of immune disorders..Is this who diagnosed your RA?
 
Your Psychologist is of course good for helping with any mood disorders or depression with being in pain...but he can't possible know or diagnose you with Fibro as that is not his speciality...
 
Again..try to take it one day at a time...and we are always praying for you even when you can't make it on to post...
 
Sending hugs (( ))
 
 

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 8/2/2011 6:46 PM (GMT -6)   
Requiem, I take as many as 20 medications all together with 5 total Drs.  I see 1 Pharmacist (at a wallgreens) who I am on a 1st name basis with.  She has already caught 1 potential interaction. I research each medication before I take it.  I call both the PM and the Psychiatrist when I go to take another med, including vitamens and supplements and OTC meds.  I have a personal copy made of every entry into medical charts so I can have a comprehensive personal medical chart.  We discuss each med and its needs before starting them, and try to start only 1 med at a time leaving 8-10 weeks between for side effect to calm before messing with any others.
My PCP prefers to let specialists do their job since that is what they know best.  We have discussed this.
I am a PT that takes a full roll in my care as being in control of my health.  it doesn't mean that I don't need help, but it does mean that I don't hand over the reins to someone else.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 8/2/2011 9:19 PM (GMT -6)   
What type of background (MD) do you have as a pain physician? Do you run a Comprehensive practice? I saw your other post about pain management...May I ask where you did your Fellowship in PM? You are one of the first Dr.s in PM that we have had come on here..and was just curious about the time you have to post..it's great for us...but thought during the day it would take away from your other patients...

So when you say people come to see you..and they are on 2-3 times of medicine as they should be...do you mean pain meds? Or other medicines? And what symptoms go away with coming off those medicines...I'm just trying to learn your philosophy...

Are you also a pain patient yourself? Or did you come on here to offer advice just as a DR....

Thanks for helping us learn more..
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 8/2/2011 9:58 PM (GMT -6)   
That's wonderful!...Are the publications online for us to read? My PM was just voted one of the top 70 in the US!...So that's why I was curious as to where you are a practicing Dr. now, to know if he know you or not.

When you are traveling around...what are you teaching Asia about pain management? or Europe?

And not sure if you feel comfortable sharing your name on here..We are a great place that I'm sure could learn many things from a PM Dr.

I certainly adore mine....he has worked extremely hard on finding the best modalities that work for me to manage my pain...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 8/3/2011 8:40 AM (GMT -6)   
I have not yet tried pt. I am still early in the process of 1st getting pain under control, adding water aerobics, then decreasing pain meds. At the same time getting RA under control and looking at possible Fibro Dx. My Bipolar is only moderatly controled and made worse with the RA and pain meds that are not stable yet. I do have all my drs talking to each other, occasionally, so that is good. I think PT is a close step. My PCP just said loosr wright, 20 lbs in 6 months, but not how.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/3/2011 1:59 PM (GMT -6)   
Hey Christina, have you checked out the Fibro section here at Healing Well? You may want to take a peek at things over there when you can. I am assuming you see a rheumatologist and that is who dx'd your RA. Most people that have Fibro also see a rheummie for a dx and treatment. If you have not seen one, it may be well worth the time and trouble to get into one. Not only could he see you for the Fibro dx but also help you out with your RA.

Take care.
Moderator Chronic Pain Forum

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 8/3/2011 4:39 PM (GMT -6)   
Yrs I have a rheumy, and I have a stream going there as well.
_christina
"Life seems a little easier when you remember to breathe"

Dx: Rheumatoid Arthritis 2008
Bipolar 2 2006 (symptoms since 1993)
possable Fibromialgia (still ruling out other dx)
Gluten senitivity 2010
Sleep apneia 2007
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