Hi, i have had scoliosis since i was born , it remained 27-28 degrees for years, it was caused because of Khiori Malformation I (a malformation in which the brain tonsels are lower than they should be and put pressure on the spinal cord causing the fluid to create Searings in my spinal cord, which then cause the spine to bend twist and curve).
I had the malformation repaired when i was 9(currently 17 M). The curve styed the same until about 10 months ago (end of last summer) I got Very very sick with Fusobacterium and then that turned into Lemierre's disease (an extremely rare disease caused by the fusobacterium that tends to strike healthy teens, it causes blood clots-2 large ons in my jugular vein, ebalisms in the lungs- hundreds,pnemonia,swells the spline, extreme lethargy, spiked fevers, rigors, swollen cervical lymph nodes and a swollen, tender or painful neck and other things, results in death if untreated or too late).
I lost 25 lbs. during my sickness and that caused my spines curve to almost double to 38 thoracic 39 lumbar. Im fine now , gained the weight, healthy, no signs i was ever sick with it. But I do have horrible back pain from the worsened curves (i also experience "side pains" they feel like almost a spasm in a specific area of my lower back on the right side a little past the kidney, same place every time, had them since i was 8, NOTHING helps them so i just deal).
Ive seen 12 orthopedic surgeons and asked for some srt of treatment and something to help with the pain, all say "take tylenol and heat pad and all we can do is watch your back and surgery if neessarry when youre done growing", except for the most recent! :D he put me in a Boston Brace, which has definitely been helping, myself, my gf and my family can see the difference in my shoulderblade now, receded back down (: but nothing for the pain ):
ive also gone to 14 PM doctors, I went through ALL of the NSAIDS, and when i told them that Percocet worked for it , they all just thought i was a "drug seeker", i know they work because after i got better from my disease i was sent home with percocets for the rest of the left over pain, i took my dose when my back was acting up really bad and it was the GEATEST relief i had EVER gotten from anything for my back!
Since no doctor would take me seriously, i did anything i could to find someone who would, so when i went back to all the different specialists for a post sickness checkup i told them about my back stroy and if there was anyting they could do and the one person who did was my hemotologist. go figure! anyways, im no on 45mg of roxicodone a night for pain, it may seem like a high dose but i have an extraordinarily high tolerance to these kinds of drugs (NO im not a drug addict or an abuser! i use the meds Strictly for what their intended for!)
I wake up with Bad pain EVERY morning and i dont want to have to take my pain meds early in the day or in the day at all because i get tired and i have to be able to drive. ANyone have any suggestions for what i can do during the day or what to change to help reduce pain? I.E - im getting a new temperpedic by recommendation of my doctor to help reduce some the of pain i wakeup with. Please ANY suggestion would be VEry much appreciated
(Edited for easier reading) Thanks! SE
Post Edited By Moderator (Screaming Eagle) : 8/3/2011 9:16:16 AM (GMT-6)