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Regular Member


Date Joined Jul 2010
Total Posts : 200
   Posted 8/3/2011 4:50 PM (GMT -6)   
Hey Everyone,

Thought I'd stop by and update you all!

I've been in and out of hospital for pain management and had a few problems but I'm not doing too badly now!

The cancer seems to be pretty much gone but don't want to give a definite until all the bloods have come back, then I have to have the "Remission Chemo" then hopefully I will be in remission :) it all seems to have gone so quickly! So really hoping this is near the end of it, but don't want to jinx myself!

I'm struggling a lot with pain and the infections in my intestines and body, they've damaged a lot of my intestines which is very painful aswell as my CP on top of that and Chronic fatigue, brain fog, heart problem I just am finding it hard to deal with but not doing too badly, managing to go to school as much as I can and getting some assignments in etc. Pretty stressed about what I'm going to do because the work this term is so vital and although people say schools not everything it's always going to feel like it is until i've left! just something I can't help haha

But yeah, I'm not doing too badly.. Pretty worn out but hey I've got through the worst of this :) Just have to watch out that I don't get sepsis from the infections as i have about an 80% chance of it but I'm being monitored a fair bit!

Hope you are all doing as well as you can, I'm sorry I haven't been posting much but I have been reading and trying to catch up on how all of you are!

Love to all!

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 8/3/2011 5:22 PM (GMT -6)   
Well Jess, that is just awesome news! You still have some not so fun stuff going on but you are over the big hurdle. Just take things day by day, you are one tough cookie, I am sure your parents are so proud of you. I am so happy for you that you are back in school and with your friends too. I am sure that helps you to feel more normal!

Keep you the great work!

Big hugs,
Shell
DX: CRPS, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

Post Edited (Shell74) : 8/3/2011 4:25:45 PM (GMT-6)


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Regular Member


Date Joined Jul 2010
Total Posts : 200
   Posted 8/4/2011 11:09 AM (GMT -6)   
Shell, I miss talking to you on chat! What time will you be on.. and where are you so i can figure out what time that is here :)

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 8/4/2011 4:00 PM (GMT -6)   
Buttercup, will be hopeing good things for you, for now just take
the school work one day at a time, okay... don't over do things and get rest...
many more prayers and well wishes...ask your doctor if you can take probotics to help
with the antibotics, you can find it at health food stores...
Prayers, hugz and well wishes
hope to see you in chat again, but with you doing better...
hugz
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 8/4/2011 11:46 PM (GMT -6)   
Hi,Buttercup glad your doing well,I read some of your posts before ,Iam Michele ,I've been on this site afew months ,Ihave TOS,very painful right arm hand neck shoulder ect .Ihope to get surgery soon?Alot of times I'm too sore to post but read !Iknow you have a great spirit and Iam glad your doing okay considering the illness.Please be careful and look after yourself and school is great ,I sure want to know when you graduate! Thats a great accoplishment ,just remember put your health 1st.Its amazing you can still manage studies,good for you .Ijust wanted to say hi and glad your doing okay ,keep up the good work,michele

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 8/5/2011 12:58 AM (GMT -6)   
Hi Buttercup

It's great to see you post. I'm so glad that you're feeling well enough to attend school. Be careful and don't overdo, ok? You take care of yourself. it would be great to see you in chat, but like someone else said, when you are feeling better. Keep up the good work,

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 8/5/2011 6:52 AM (GMT -6)   
buttercup:) said...
Shell, I miss talking to you on chat! What time will you be on.. and where are you so i can figure out what time that is here :)


I am in the Eastern US, and typically on and off throughout the day and night lately. I think we used to catch each other between 10 am and 2 PM my time. I did try and email you too, but I know you are super busy and getting better and school is your priority. I see they removed our other contact info from the links below our names, but you can still use the email link that is posted to contact me.

Hope to catch up soon!

left forum.
Regular Member


Date Joined Jul 2010
Total Posts : 200
   Posted 8/5/2011 8:19 AM (GMT -6)   
I'll send you an email, my emails weren't working but i have a new address now!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 8/8/2011 12:07 PM (GMT -6)   
Buttercup,
sent out many Prayers for you...hope your doing better...
well wishes
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******
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