Lupron injection on Thursday

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Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 8/5/2011 5:21 PM (GMT -6)   
After the fight with the insurance company, from getting the authorization approved, then whether or not it was approved when I had the number of authorization, then over what pharmacy department the injection needed to be ordered from, the insurance company called my doctor's office and myself today to apologize for the confusion and run around. It will be in the office on Tuesday.

So now the time has come, and trying not to worry about the side effects that are possible and what it will do to my body. It may not even work. This feels like the last ditch effort, the Hail-Mary play to save the game and keep me from surgery before the wedding. Those types of moves, always the most desperate of efforts, seem to have all been failures in the past.

This sounds corny, but without praying I don't know how my fiance is getting through all this. Mood swings and hormonal misery on top of the everyday life events with a CP sufferer can't be fun for anyone in my family right now.

Who else has issues with the countdown to surgery or a new procedure or medication? How do you deal with it? I am choosing to see it as an adventure, but its not easy!

Thanks Healingwell family,
Mindy

NiNi53
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Date Joined Mar 2011
Total Posts : 816
   Posted 8/5/2011 6:49 PM (GMT -6)   
Well if you treat it as an adventure, maybe that will make it less stressful.  I dont know, its not like you can tell yourself your going to Disneyland. lol
 
But good luck to you, and many prayer for you, keep yourself in a good place mentally, and I think thats half the battle.  Ok I sound like Tinkerbell now, but I do believe in the power of positive thought.
 
Again, good luck, take care and let us know how you are, I am betting on you being good.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 8/5/2011 6:55 PM (GMT -6)   
Ok, I just looked up Lupron as I did not know what it is, or for.  All I saw were from men being treated for prostate cancer.  I am wondering what you are getting it for.  I am sorry, if this is to intrusive, no problem, please do not feel like you have to answer.  Its absolutely up to you.
 
Take care of yourself, and hope you are feeling well today.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Mysti
Regular Member


Date Joined Jul 2011
Total Posts : 101
   Posted 8/5/2011 8:44 PM (GMT -6)   
Mindy, I had a Lupron injection about 7 yrs ago as I was dealing with the horrible issues of endometriosis and fibroids.  Like NiNi said, please don't feel like you have to tell us anything you aren't comfortable with, as I can sure understand how private these issues are.  One thing I just feel very compelled to tell you...and you probably already are....but PLEASE, make sure you are well-informed and understand all the possible side effects and risks associated with this injection.  Once the shot is given, there is no turning back.  I certainly do not want to scare you or try to speak negatively about this drug, but I can only tell you my own experience.  I know many women HAVE had a very positive outcome with Lupron...but for me,  I was miserable.  It did work, in that it *stopped* everything, as it throws you into an immediate menopause.  Many women sail thru natural menopause with only mild symptoms, but I am not one of those women.  Maybe I just wasn't prepared for how I was going to feel, and the resulting 3 months of hot flashes, insomnia, heart palpitations, anxiety, depression and mood swings were just intolerable for me.  I ultimately wound up having a total hyst. a couple years later, but that was the best option for me and I am NOT recommending that for everyone.  I've been on hrt since my surgery and have done well.
 
Just be sure you do your research and discuss the side effects with your doctor, so that you can be well-informed and armed with the knowledge of how to best cope with those possible effects.  I wish you the best...and did you say "wedding"?  If you're the one getting married, congratulations! 

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 8/5/2011 9:02 PM (GMT -6)   
You've done your research and made your (very difficult!) decision. I wish I had some helpful advice. I hate waiting, my mind races and I tend to get a bit snippy or worse.

I try to keep busy and I make sure I do things that I want to do. I spend time on my hobbies and time with my family. I spend time alone when I need to.

I hope this works and buys you the time you so definitely deserve.

Good luck.

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 8/8/2011 10:10 AM (GMT -6)   
I absolutely worry about procedures and surgery. The best I've figured out to do is to postpone worrying - tell yourself you can worry about the procedure, but not until the day before. I also a few days before get anything ready I'll need in recovery. Luckily lately I haven't needed anything with a real "recovery" time.

Good luck with the Lupron. I have seen some suggestions that you take menopausal supplements after getting the shot to ease some of the symptoms. I would ask your doctor about this, since obviously the anti-hormone effect is the whole point of Lupron. My mom used Remifemin, which is black cohosh extract, and it helped her menopause symtoms a lot. You also can just get a "menopause formula" multivitamin. It might help!

Most of the reports I've read about Lupron have been very positive about how much it has helped the pain. So I'll be saying a prayer for you that it works and makes you feel better for your wedding.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 8/8/2011 9:55 PM (GMT -6)   
Kathy,
I am getting the Lupron shot for endometriosis and ovarian remnant syndrome. What that means is that my ovaries were surgically removed, but the right one keeps growing back because of adhesions in my pelvis from previous surgeries and endometriosis. I am on my 3rd right ovary in just under 2 years. Its pushing on my bladder and pulling it and bowel in weird ways when it grows. It is also causing PMS every 3 weeks, ovarian cysts, and all the joys that come with cycles.

I had my hysterectomy in 2009. I have had 2 laparoscopic surgeries to remove the ovary remnants with no success. The Lupron, and all its scary side effects, is my last effort to avoid surgery before our wedding in October. Thank you for the congratulations. I just want to be well enough to walk down the aisle to my fiance, stand for some photos, and dance with him and my sons. The important parts. My doctor and I have a game plan for side effects, meds to prevent bone loss, eye drops if eye problems occur, exercise to keep my memory going strong, help with the hot flashes and menopause side effects, and to combat the mood swings and possible weight gain.

Mood swings worry me though. I can't stand that feeling of crying over everything and then yelling about it. I do that now, so it really can't get much worse. My family is prepared, but it will still be an adventure. Maybe an adventure in learning patience, but even if it causes problems, any pain relief at this point is better than living at 9 everyday consistently. My PM is all for trying Lupron before upping my med doses.

Thank you for the advice, concerns and questions. If you want to know more about my conditions just ask. I am learning that education for everyone is best, no matter how embarrassing it could be for me....Well, education on this for adults anyway.
Its so nice to have this forum to come to when you are in need of support or offering it.
Mindy

kittycreation
Regular Member


Date Joined Jul 2011
Total Posts : 36
   Posted 8/9/2011 2:23 PM (GMT -6)   
I have been in tears for the past 5 days thinking about my surgery....it is taking over everything I do (or don't do because of it). I even had to leave church on Sunday because I couldn't stop crying and didn't want a kind meaning stranger to ask if they could help which would have made me cry more.

My mom suggested I go to emerg but it is just anxiety and too much happening at one time....the unknown of how work will be affected (which is potentially a bad thing as I am in a small private school and therefore we have few subs and no union or even HR to help us), the surgery, the recover, will it work, how will it affect my child etc. etc. etc.

I have begun cleaning and organizing my house (as best as I can with my pain) as well as do a lot of craft work - I do anything to try to distract myself...

Mindy, I absolutely understand and empathize for your situation....
I pray and wait for God to do His thing in His time...til then I am waiting with chronic pain...

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 8/9/2011 2:47 PM (GMT -6)   
Mindy, you will do great!!!!! Just tell yourself you are strong and can overcome any side effect it tosses your way.

I did have Lupron before a uterine ablation years ago and I cant recall any noticable side effects. I was likely just thrilled not to have a two week on two week off cycle. At that point in time I was much younger and not on the computer searching side effects, I may have been much more reluctant after reading up on it. I always had to remind myself when it came to my back surgery that for every person on the forum having a bad result there was many more that had a good result, they just were off living! Of course thats not always true, but its something to keep in mind.

We are here for you!
Big hugs,
Shell
DX: CRPS, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.
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