Chronic pain and My family becoming disabled with me!!!!

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Regular Member

Date Joined Feb 2008
Total Posts : 255
   Posted 8/12/2011 4:26 AM (GMT -6)   
I was wondering if anybody has had family problems due to there disability and chronic pain. I became disabled in 2007 but became severely sick in 2005 with a rare lung disease that caused a 30 day hospital stay and about 15 other hospital stays. My mother was about to retire and did so to take care of me since I was divorced several yrs before this and had no one to help. Then my brother moved in to help.  I was 37 at the time now 6yrs later and still disabled with a rare bone disease caused by the oral prednisone I need six joint replacements. Well now everyone in my house is disabled and it's a hospital ward 24/7 I feel like my family is jealous of me being sick I've even heard that I was lucky because I was getting disability benefits that I worked for for 20 yrs. It's a crazy situation everybody every day complaining to each other how sick they feel and how much pain they are in. ANY INPUT WOULD BE GREATLY APPRECIATED. Sorry for such a long post...

Veteran Member

Date Joined May 2011
Total Posts : 636
   Posted 8/12/2011 7:21 AM (GMT -6)   
So sorry to hear that you are having a hard time at home. I understand what you are going thru, we care for my brother who is disabled and I cant do much at all, it puts a big strain on everyone. Everyone appears to get pretty bitter when it comes down to the housework and the extra help needed.

Can you get any outside help? Laundry, cleaning, meals, some sort of home health type thing? Something to take a bit of weight off of everyone.

Big hugs,
DX: CRPS, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 8/12/2011 12:47 PM (GMT -6)   
I am so sorry to hear what you are going thru. If I complain about how much pain im in, my husband of 37 years says that he hurts to and he doesnt want to hear about my aches and pains. So I know what you are going thru. I try to ignore it and not say anything.
i do things that make me happy, like read a book, attempt to make a bracelet,etc.

I will pray for you so you have the strength to survive and cope with everything that is happening around you.

Soft Hugs
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er
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