Immunoglobulin therapy

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CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 8/12/2011 11:18 PM (GMT -6)   
Mainly for all of us here with CRPS/RSD...

Has anyone heard anything about using IVIg as a therapy for CRPS? I heard mention of it on a large CRPS forum I use, so went searching - a patient a few years ago with CRPS and a concurrent condition was treated with IVIg for the concurrent condition (one approved for the therapy), and found that there was also improvement in the CRPS symptoms. From there, there have been a few trials done in the UK that seem to suggest promising results. Too small to draw any real conclusions, but enough to suggest that more research should be done.

I asked my doctor about it and he was a bit skeptical because he can see no real rationale for using it as a treatment - must admit that I am a little bit that way myself, but I'm almost at the point now where if someone told me that dancing naked at midnight and howling at the moon would cure me, I'd probably give it a go smilewinkgrin No, I jest - but if a serious option came up that had some solid evidence behind it, I'd be keen to try it. Despite his skepticism, he said that if I could send him the information I had, he'd look over it and see what he could find out, see whether it was feasible for me to try

I did a further internet trawl, came up with the doctor who conducted those initial trials, and emailed to him to see if he would be willing to talk to my doctor... they're currently having an email discussion themselves as far as I know. Fingers crossed, hey?

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.
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