I had a good day today!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Apr 2011
Total Posts : 235
   Posted 8/13/2011 11:17 PM (GMT -6)   
 I must say Ihad a fun day,Iwent to the casino with neighbour ,Iwish I could have drove myself ,but my friend drove for me .Iam surprised I managed to stay out so long .I notice I have lost my independance and have been isolating myself ,due to the pain,This is something i am slowly trying to get back by doing a bit more everyday.Its like Istopped doing stuff cause Inever know when the pain is going to hit ?I noticed it easy to fall into a rut  and let the pain controll you.Iuse to be so active ,Lucky I will be seeing the surgeon in afew weeks ,I also have been keeping a pain book to show him and ? about  surgery!Ireally felt alive today and it was so nice to around people and not stuck in the house doing nothing and afraid to try .Ialso won 80$ at casino!has anyone here experienced ,being afraid to do stuff do to pain  or is this just depression !Take care

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 8/14/2011 6:17 AM (GMT -6)   
How nice to hear that you had a good day :) Thanks for sharing - I don't know about others, but I know sometimes I do get stuck in that rut you've mentioned, so it's lovely to hear about someone else enjoying themselves despite their pain.

On being afraid to do things because of pain - this is certainly something I can relate to. Being knocked or bumped is painful for me, sometimes excruciatingly so, so something as simple as having my wheelchair jolted or my shoulder jostled by a stranger can be enough to ruin an entire day out. Depression contributes too. I think the worse the depression is on a given day, the less inclined you are to push the pain barriers or to take a risk on going out, you lose the motivation to try. Just my thoughts.

All the best for the appointment with your surgeon.

CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 8/14/2011 8:58 AM (GMT -6)   
       Good morning Sore42long & Laura! wink
           I undertstand what you both are saying! I have good days and bad days, and sometimes it runs by the hour. Many times I have felt great, and then within a couple of hours....just crashed and felt horrible....no ryme or reason to it!
      Sore, again,...... I think you are doing fine, and we see you pushing yourself as much as you can.....hang onto that hope as much as possible.
     This last Friday. was the third weekend that my wife and I went out to see a movie...and to tell you the truth I dreaded the thought of it. Many times I have felt good at mid-day, and made the decision to go out on a date later that evening...only to find when the time came...it was more than a chore...because of high pain levels.
 Since my Dr made the adjustment to my med's, it has been more of a comfort making plans with the wife. I have to mention that our grandson certianly has added some joy to the mix! He snuggles right up to me in bed....I just love the little squirt!
   Grab the joy and fun in life when you can,....and store it in your memory for those time when pain is blocking your hope.
    ....and come back here to get a recharge! Great members, and a life saving forum! wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Regular Member

Date Joined Apr 2011
Total Posts : 235
   Posted 8/14/2011 3:02 PM (GMT -6)   
thanks for the responce,Laura and Eagle!I honestly feel most people I know just can't understand, infact I have trouble understanding and dealing with the lack of energy and motivation,but feel its better to try to do stuff inspite of the pain ,because it gives me a sense of acomplishment.I often wonder if my pain meds oxycontin 20 x3 a day cause my energy to be depleted?Ido know without them,the pain is so bad ,Iwould be miserable! Ihave read vascular pain is hard to treat?Ihope my upcoming appointment with surgeon will finally be the surgery date,Ifeel it's the only option,but need to know is it possible to end up worst off?thats hard to imagine!Eagle you sure have a postive attiude and lucky you have the grandson,little ones sure have a way making me smile too.Laura ,thanks for your responce it helpped me alot.I realize you have been through alot and Iam sending a special smile and hope your day is filled with happiness.Now I have to push myself into the shower,I never thought taking a shower would be such a task ,but when my body is cold ,the pain level goes up way more.Oh the things healthy people take for granted? take care from michele

Regular Member

Date Joined Dec 2010
Total Posts : 213
   Posted 8/15/2011 7:01 AM (GMT -6)   
In the past I have also been isolated by pain and probably a little bit of depression thrown in there. I have been through a lot and have been ill most of the time since 2003. I have been on disability since 2004 when I was diagnosed with Leukemia - it was considered terminal at the time. BUT I had a bone marrow transplant and beat the cancer!! Yeah!!! I have a lot to be thankful for and it has taken me some time to realize that.

Now I do try to get out of the house at least a few times per week. Whether it be with a girlfriend for a shopping trip, or just to the local store here in town for a few minutes. I have found my outlook and attitude are a little better if I can get out of the house some. I do not tolerate heat or cold very well since my transplant. I just cannot breathe in either extreme, so sometimes it is hard in the Summer or Winter to go out very much, but I do still try.

It is important to try and have relationships other than just with your immediate family. Staying home and inside your house can make depression much worse. Fighting through it and the pain to get out of the house can take some of your focus off of your pain and even make it seem less because it is not your focus at that particular moment.

At home, I have found that reading is really the best way for me to remove my focus from the pain. I can get lost in a book easily and not focus on the pain. I do have to remember to take my normal meds for pain so that it doesn't get out of control. If I can get my focus away from feeling the pain so much, I can take less b/t meds. Sometimes that pain just escalates so much or seems to that it is all that can be on my mind. I really hate times like that!!

Hopefully you can keep up what you are currently doing! It is great to get out of the house and I hope you can do it more often!

DX pyoderma gangrenosum, Acute Myelogenous Leukemia, Bone Marrow Transplant, Chronic Pain syndrome, Chronic Kidney Disease Stage 3, Major Depressive Disorder, Radiculopathy, Bilateral Hip Pain, Insomnia,Left Groin Hernia, Bulging Disk in Lumbar Spine, Tear in Lumbar Spine, Tendonitis and Bursitis in both hips, hypoxia due to sleep apnea and new problems with my lungs. Have had 2 abnormal CT scans.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 4:09 PM (GMT -6)
There are a total of 3,005,520 posts in 329,235 threads.
View Active Threads

Who's Online
This forum has 161781 registered members. Please welcome our newest member, Grey Eagle1.
292 Guest(s), 6 Registered Member(s) are currently online.  Details
Tim G, xpeetzax, Alex ArmPain, Chow Wan, Toadie, Worried Guy