Thank you all so very much for your information!
Serenitee, I have not met you before and I am very sorry for your pain. I too have a failed bladder surgery, but that is another story in itself.
RA: Thank you for taking the time to explain what you did! I am very surprised to read that one narcotic works the same as the other, since it honestly feels like the Oxy IR takes effect in 15 minutes with a lot of relief (could be better, but does help a lot) and the dilaudid does not. Of course, the Dilaudid does work well in a hospital setting, but I am assuming that is because of the strength and how it is given. I'm honestly somewhat confused. It used to work well, but I was having to keep asking for increases in strength with very little improvement in pain management.
When I tried the Opana, it was wonderful for six hours, then I felt like the "rest" of the medicine released at one time and that I was going to overdose. I don't have any knowledge on a physician's level, so I can't explain what happened....just what it felt like to me.
I'm also surprised about the MRI information. I did have symptoms that were new (significant pain in the upper back) and changes in the pain associated with the fusion area (L5-S1). According to the back specialist I saw about a year or so ago, the bone was growing to the right and not up and down as it should. He could show me on the CT where the fusion did not "take" and there was no fusion at the top or bottom of the appropriate area. He wanted to go back in and scrape out the old material and then put in a cage while leaving the screws/rods. I wasn't up for the additional pain from the surgery at the time (and still am not).
I have also had serious (to me) conditions develop in my feet that cause me to wear Richey Braces during the day and other supportive braces at night while I sleep. The podiatrist advised that he thought the problems began as a result of my back. Either way, it's yet another thing that keeps me in pain. I don't really know where to go from here with even asking for help in the pain management department. I have my meds and I don't want to loose this part of my pain management. The RFA's help so much, but perhaps I just don't know how to explain or ask for help. I don't know what to do other than explain my situation and ask for something to help me have a life with my family. If you have suggestions, I would love to hear them and I promise I will not take them as "medical advice" since we are not allowed to do that here. I think it would be wonderful to have your perspective. Again, I want to thank you for your time.
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....