As some of you may remember (and for those who I have not met), I have been seeing PM for several years and have had some good and some bad apts. I don't quite understand the complexities of the office and find that contacting the "nurses" is almost always a BAD idea because the information I get does not match what is given to me later when I speak to the Dr. I also had two Drug Screens not show the Dilaudid I take (which I did take) and then a second one on the same day as the second failed screen did show the med in my system. I also have had several conversations with my PM where he will say that he comletely understands my condition (spinal problems/severe feet problems for his part) and that he has no problem giving me the meds I need. We reduced the Dilaudid because it has NO effect on me as far as I can tell. It used to be what I was taking for pain relief but stopped working. He put me on Oxy IR and said we could adjust this med up as much as we needed with no problem.
So about three weeks ago I called to ask them to please schedule an apt early for me so I could see the Dr and told them that I was in horrible pain. I wanted to have some MRI's done because I thought I had herniated a place or two in my back and wanted to schedule some new RFA's. I needed the MRI's to know where the RFA's should be done. The nurse told me to have my PCP schedule the MRI's and send them the results. I have been in pain that will not end!! I have called and begged to be put on the schedule as a call in and they have the MRI results that I mentioned in my other thread. Today I called back and was told that I had to come in on Monday (already had apt from call three weeks ago) to have some trigger point injections (but I am allergic to Steroids/NSAIDS and can only get lidocaine). I had also asked for permission to take a dose or two extra if needed when the pain is unbearable (as it has been lately) and said I do not need a new prescription and was not asking for one. The nurse told me today that the Dr said he was not going to "chase the pain with meds" and that I would probably be sent back to the neurosurgeon (I already have an apt on the 29th, but I DON't want surgery if at all possible).
I'm sorry this is so long, but I need some advice. I get so frustrated and upset when I go in and start to cry when I try to explain my life as it is right now. I DO want the RFA's very much and I DO want the Dilaudid to be stopped because it doesn't work, but I can't live in pain the way I am now. I got the very distinct impression that they are telling the Dr different things from what I said (like I want more meds....over the phone...a big NO NO) and things like that. I'm going to take my husband with me and hope they will let him in, but they don't want anyone else in the office when you are in the back.
Does anybody have any idea what to do or say in this case? I know this is a book and I'm sorry, but this is out of my control and my pain is making my life ****.
Thank you to anyone who has an idea!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....