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educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/25/2011 10:43 AM (GMT -6)   
Hi, my name is Cathy.  I am the 42 year old mother of 3, granna of 3 and wife to an amazing man.  I've suffered with Chronic pain for 2 years, have been in PMT for nearly 2 years.  I sought out a forum to give my family relief from having to hear me complain about my pain, because I know it can be troublesome.
 
Just want to connect with others who understand and have a place to vent when I need to.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/25/2011 10:54 AM (GMT -6)   
 
      Well Good Morning there edu8athome! wink
 
            Welcome to the CP forum! I think you choose well when you found this forum, and I'm sure you will agree after visiting with the members here.
 
     If you would!...could you please tell us a little more about yourself, and what type of pain you are being treated for? If you're on med's,.....what and how much are you taking. We can best serve you when we have a base-line of information to go on.
 
      Also please feel free to read the "Chronic Pain 101" located at the top of our home page...and I personally recomend it! Lot's of good articles there! wink
 
         We all know that only patients suffering with Chronic Pain can understand what you're going through, so feel free to share, rant, and seek support anytime...day or night...24/7!
 
      Enjoy!...and again Welcome!
 
   SE
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 8/25/2011 10:56 AM (GMT -6)   
 
 
    Hi Cathy and welcome to HW, our chronic pain forum.
 
You have certainly come to the best place for chronic pain. The members
 
here are wonderful, so caring and understanding. I am sure you will find
 
it a great help. I have been here for almost three years now and my best
 
friends are from here and have actually had the opportunity to meet some
 
in person.
 
Can you tell us more about what your chronic pain stems from? what
 
treatments you have done and perhaps meds that you are on so we can
 
be of more help to you. You can always come here to share and vent
 
as well. We all care about each and often help each other to get thru
 
those rough days. Keep coming back and posting as much as you can.
 
Myself, I am Suzane, live in Ontario, am a registered nurse, but now
 
on disability. I suffer from chronic severe headaches which started more
 
than eleven years ago. Nothing has helped me unfortunately.
 
I look forward to chatting with you.
 
Have a nice day.
 
Suzane

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/25/2011 11:17 AM (GMT -6)   
Hi Cathy and I too, would like to welcome you to Healing Well's chronic pain forum. I am glad that you found us and please know there are a lot of us just like you, needing a place to go to when we feel like saying I am having a really rotten day, or I am having a decent day. Either way, there is usually someone around the forum to hear you out. It really does make a difference being able to go somewhere safe and be able to get things off your chest, or talk to people that are in the same boat as you.

We all have a different story to tell as to what led us down the CP path. It is still hard for me at times to fully understand what happened or why it happened, so how can I expect someone else to fully understand when I am not sure myself.

Anyway, I wanted to pop on and tell you welcome aboard!! When you get a chance if you wouldn't mind please share a little more info about yourself. Take care.
Moderator Chronic Pain Forum

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/25/2011 12:38 PM (GMT -6)   
I was diagnosed with bi-lateral CTS in December 2007. In March 2008, I had the first surgery for the release. My recovery didn't go well at all. I still had all of the same issues, not as severe, but I had sharp shooting pains go up my arm to my elbow. Over time, the pains were causing me to lose sleep. In October, I went ahead and had the 2nd surgery done. The surgery did not offer any relief at all. The symptoms were just as bad as before the release. I had to literally beg for help. I didn't beg for meds, I begged for relief. For one year I dealt with the pain without meds. The last visit I had to my surgeon, he reluctantly told me that he felt he had no other option but to send me to PMT.

They've done additional EMG's, three times, and I still have moderate CTS (original diagnosis was severe). I am not a 2nd surgery candidate, so PMT is all I have. Recently, I have been having some extreme boughts of pain up to my elbows. We've not had any change in weather, it's actually been quite nice, so I have no clue what is up with this new pain spree. I go back to my doc on Monday, and I'm beyond ready for it.

At this moment, I can not tell you all of the meds I am taking. I don't commit that to memory, I just carry the list with me so I have it when ever I need it. I'll go get it in a bit and add the info.

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 8/25/2011 12:43 PM (GMT -6)   
educ8athome,

Thought I would Welcome you here to The Healingwell Site. I'm Serenity, its very nice to meet you. I'm sorry you suffer from CP, I definitely would not wish that on anyone. I too, suffer from CP...Do you take meds that suppress it at all?

I'm 46, Married 23-yrs, 7-kidz, 3-grandkids...I have lived with pain my entire life or at least as far back as I can remember.
Well, I wish you all the best & keep coming back.
Your Healingwell Friend,
Serenitee


Loop ileostomy, Pelvic & Bladder Trauma & Dysfunction, Colon tore thru vaginal wall & colon with the bladder fell out of my body, together thru vagina. Leaving much destruction in its path.

Bipolar 2, BPD, Panic-Anxiety Disorder, Ptsd

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 8/25/2011 1:00 PM (GMT -6)   
Hi Cathy, and I am Kathy, thats the way it is supposed to be spelled, lol.  You know women have argued for years about C or K.  When my youngest daughter was very young (she is 26 now), I think she was 3 at the time, she thought my name was "Kathy with a K".  She had heard me say it over and over to different people and thats how she thought that was how my name was spelled.
 
But welcome to the cp forum, you will feel at home here very quickly.  I just joined in March of 2011, and I have many friends already.
 
So come back as much or as little as you feel like.  You have found a home where most all of us have found our way to talk to people who know just what we feel like.
 
Take care, hope you feel well soon,
 
Kathy
 
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/25/2011 1:00 PM (GMT -6)   
My PM meds do suppress most of the time, but I will have times where they just won't touch it. NORMALLY, it is during harsh weather and extreme cold...which is why these past 3 days have me totally puzzled. I even had myself where I was only having to take my meds at night so that I could sleep. I still wake with numbness and tingling in my right hand. I would have never had the surgeries had I realized what was coming my way.

One other time we've had to change up my meds, I have a feeling another change is headed my way. I can't remember dosages at all, but I take Ultram, Percocet, Ibuprofen and Robaxin. I am to take each of them 3 x da prn except the percocet, which can be taken 4x da.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/25/2011 1:27 PM (GMT -6)   
Cathy I am sorry to hear that the surgeries were not successful. Having both hands involved really has to be a tough one. I remember back in the old days, lol, when they first started dxing carpal tunnel syndrome and doing surgery, there were a lot of stories just like yours. I ended up with it in both hands, way too much typing, I was a paralegal. I chose not to have surgery and just live with it the best I could. I just did not want to take the risk of potentially ending up worse off like some of our clients.

Several years later I was in a motorcycle accident and ended up with bilateral ulnar nerve entrapment. One again, surgery was recommended and I declined. Never saw many successful surgeries on that & I needed both hands for work.

The winter months are the worst for me too. Something I use in the winter a lot is a hot wax machine, I found one on sale for next to nothing and bought it. That was a wise move on my part, as the heat does feel so good and seems to go deep. Now using my hands for much is out of question because I have no strength in them. Of all things to pop up, is a ganglion cyst. This thing just appeared out of no where and it can be quite painful at times. I get a lot of numbness in my thumb.

I hope your dr can figure what is going on with this extra pain that has come on recently. Let us know what your dr has to say about this.
Moderator Chronic Pain Forum

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/25/2011 6:06 PM (GMT -6)   
SD, I, too, have a ganglion cyst. It was not very big at the time it was discovered, but I wonder if it has grown now and is at the root of the increased pain. One day I will have all of the strength of Goliath, the next I can't lift 5 lbs. My doc does give me Thermacare patches, and they are my salvation along with my TENS unit in the winter.

I've just had it this week. It's been crazy and I don't know why. I had my 2 oldest grandchildren all weekend long, but I did not one time lift them, I had them climb into my lap to rock or for a diaper change. So, that isn't it. I'm just baffled.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 8/25/2011 7:05 PM (GMT -6)   
Hi Cathy, and welcome from me too. I'm also in the CTS club, but mine responds reasonably well to splinting, plus I'm on pretty heavy medication for full-body Complex Regional Pain Syndrome so I think that covers a lot of the CTS pain.

I'm sorry you are suffering so much with your pain right now, but glad you've found us.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/25/2011 7:52 PM (GMT -6)   
I know certain movements can really send the pain shooting from the ganglion cyst. My daughter had one removed a few years ago because it was pressing on a nerve in her hand and she was having incredible pain. So far she has been lucky and the cyst has not come back which happens alot when they are removed.

Knowing they can return I have just decided to leave mine alone.
Moderator Chronic Pain Forum

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 8/26/2011 1:44 PM (GMT -6)   
Hello, and welcome to the forums Cathy!

Sorry to hear about your pain problems, but I am glad you found the site and decided to join up and post here. I was really glad that I found this site because it's actually one of the more active sites to talk about chronic pain, it seems like it is much easier to get a response here.

I always feel like I'm burdening people when I have to remind them that I'm not 'feeling well' or that I am having a bad pain day. Its hard for people to understand when they don't have the experience with chronic pain, so I can understand how others could get tired of hearing about it. Still, hopefully over all your family understands and is supportive of you. Based on what you said, that seems to be the case so I'm glad about that.

Keep us informed, and thanks for posting! :)
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