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educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/26/2011 7:34 AM (GMT -6)   
I have a staph infection, which explains some additional pain that I started experiencing 2 days ago, but it doesn't explain the extra arm/hand pain.
 
Just shoot me now.  skull
 
My pain level is off the charts this morning, no amount of pain meds, no combination, is helping.

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 8/26/2011 11:55 AM (GMT -6)   
 
      educat8athome,...are you in the Hospital then? Staph infection's are usually very serious, and require a lot of close attention. Nothing to mess around with at all!
 
    I hope your Dr's have a handle on it.
 
   Take care,
 
  SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Mysti
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Date Joined Jul 2011
Total Posts : 101
   Posted 8/26/2011 12:06 PM (GMT -6)   
Hi Educ8, Eagle is right. Staph infections are very serious and often require IV antibiotics. I'm assuming your doctor is following you closely on this situation? I say that, because you would only know it was indeed the staph bacteria by having a culture done.

When it rains it pours. I'm really sorry for all you're having to deal with right now. It just doesn't seem fair. (For any of us with our pain issues, for that matter).

Nope, not gonna shoot you...you need to get better! I personally think you need to check in to a hospital to have this dealt with....not only for antibiotics, but for pain control. Keep us posted and hope this resolves soon.
DDD, 3 bulging lumbar discs, bone spurs, facet joint arthrosis/sclerosis, osteoarthritis

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 8/26/2011 12:47 PM (GMT -6)   
Ugh, sorry to hear this. I just commented on your introduction thread, and then I saw this one too!

Hope you get this infection taken care of ASAP. I'm sure it's contributing to the pain, not to mention it being something that is serious on its own. Hope you get some relief soon. Also, Mysti may be right about going to a hospital due to the combined issue here. Unless your primary doctor is keeping a close eye on you, which hopefully he/she is.

Hang in there and keep us updated.

CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 8/26/2011 12:53 PM (GMT -6)   
Oh gosh Cathy, like the others have said - I hope they're monitoring closely. Definitely not something to be messed with - I've had them, and they sure are painful too *hugs*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

straydog
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Date Joined Feb 2003
Total Posts : 16304
   Posted 8/26/2011 1:22 PM (GMT -6)   
You says you now have a staph infection, where is it on your body and how did you get staph? My husband had staph hit his knee and he spent 30 days in the hospital. They don't usually mess around with someone that has staph. Of course they did not know for a couple of days it was staph until hey got the results of the culture back.

Our usual antibiotics will not touch staph, what antibiotic did your dr put you on? Please let us know what is going on here.
Moderator Chronic Pain Forum

Mysti
Regular Member


Date Joined Jul 2011
Total Posts : 101
   Posted 8/26/2011 3:18 PM (GMT -6)   
Cathy, I'm really concerned about you. Where is the staph infection? Do you have a wound? I'm really serious about saying you should really be in the hospital. Like Straydog said, our usual antibiotics will not touch staph. Most do require IV antibiotics, such as Vancomycin. ESPECIALLY if your staph infection is the resistant strain called MRSA. That's a very nasty bug and you need to know if that's what you have. And again, I truly think your pain levels sound off the charts...so perhaps you could get a better handle on the pain in the hospital.

One more thing....keep checking your temperature and if you have an elevated temp, get to the hospital ER asap. Bear in mind, if you are taking any meds with acetamenophen, ibuprofen, naproxyn or aspirin, those are fever reducers and may mask an actual fever.

Please let us know what is going on with you.
DDD, 3 bulging lumbar discs, bone spurs, facet joint arthrosis/sclerosis, osteoarthritis

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/26/2011 6:12 PM (GMT -6)   
I actually had surgery last fall to remove more than 50% of my sweat glands in my left arm due to staph. It is suspected that I got it from my dad who picked it up when hospitalized.

IV antibiotics are not being done, I am probably looking at an oral slow dose. I see the doc at 7 a.m. Monday morning as I didn't have a doc to see me today. Unfortunately, this is something I have dealth with a lot since the first infection. After my arm surgery, it took me until February to become outbreak free. I was free until the end of May, when I had to have knee surgery. The outbreaks started within two weeks of the surgery.

I am in so much pain that I am maxing out my pain meds. I have an engagement shoot on Sunday that I HAVE to do (I am a photographer) so I am praying that I can get some relief through some other natural remedies until I can see my PM doc on Monday, when I will beg him for an antibiotic...and I am going to be insistent on a 45 day slow dose. That is what cleared up the infection the last time.

Also, I have been running a fever with it. I always do. This particular outbreak, though, is as bad as it has ever been, so I do have some pretty serious concerns that I will address on Monday, and if I have to I will be in the hospital then.

straydog
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Date Joined Feb 2003
Total Posts : 16304
   Posted 8/26/2011 9:24 PM (GMT -6)   
I have never heard of anyone having outbreaks or flare ups of staph infection. The idea is to kill out the bug the first time it appears with strong antibiotics. Are you maybe talking about cellulitis in your arm, which is a type of staph, however, once again it takes strong antibiotics to clear it up.

I am prone to cellulitis in my legs because of psoriasis which gets really bad on my feet. I have been hospitalized for care and also done out patient IV antibiotics. I have never heard of 45 day antibiotics. I couldn't handle them that long anyway because of crohns disease and UC.

Has the dr done a culture to make a proper diagnosis? I hope you get this taken care of, you really need to know what you are dealing with.
Moderator Chronic Pain Forum

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 8/26/2011 11:02 PM (GMT -6)   
Hi Cathy This really sounds scary that you're not in the hospital on iv antibiotics. What if this is MRSA? That's a pretty scary infection. Thankfully, I haven't ever had a staph infection, but from what I've read and heard on tv (PBS station) it's nothing to play with. Please take care and get yourself to the hospital.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/27/2011 8:04 AM (GMT -6)   
It has become more common to have recurrent outbreaks over the past year, I am learning. My outbreaks are not confined to one area at all. It could be my torso one outbreak, my leg another. This current one is as painful as the one that required surgical intervention. I'm beyond mad over it all.

Yes, I do have it cultured to be sure we're treating it properly. And, each time, staph is confirmed--with MRSA being confirmed one time. That was my armpit.

I'm confining myself to bed until I can see the doc on Monday. My husband said he his just goig to take me to the hospital. Problem is, I have problems walking with this one. Serious problems walking.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/27/2011 8:28 AM (GMT -6)   
 
     Morning educat8athome!
 
         While I have never suffered from a staph infection....alarm bells, went off in my head when you stated that you had a staph infection. The reason why....is that my wife and I have recently had two friends suffer from this,...Both, were life threatening, and Both had surgery to remove massive amounts of tissue.
 
       We thought we were going to loose them both of them to this types of infection. I am limited in my knowledge of Staph Infection, but will share with you my thoughts on this.
 
     As you can see!...many of our members are deeply concerned about this, and rightfully so! Several of the members have had personal experience, and like me and my wife, some have friends,... who have had this type of infection. Also many of our members are either current, or former Nurses, and I'm sure they are familiar with this type of infection and the seriousness of it.
 
     I'm having a hard time understanding your history of this. When you got it back in May after your Knee surgery, did they treat you at that time?....and when did they get it cleared up again? Did you just get the infection again recently?
 
      One other thing I would like to mention, and that is you should never have to beg for an antibotic for Staph from a Dr! Most of the time they will have you in directly for treatment because of the life threatening seriousness of it. You have had surgery for this, so I'm sure you understand the seriousness of it as well.
 
   I'm also at odds with you waiting untill Monday to have it looked at if indeed it is Staph. It is absolutly nothing to put off. If it took several months and or weeks to rid of it the first time, then letting it get ahead by a couple of days is not a good preventive plan for the spreading of it. Agreed?
 
       I did notice that you are a photographer! My wife and I are both professional photographers, and have 40yrs between the two of us. However I sold my business a year ago last January, because of health problems. I loved photography, and it made me a lot of money for several years shooting Sports teams and ect. I believe we were photographing close to 7000 children a year when I gave it up, and I have not picked up a camera since then.
 
       My wife still owns her Studio, but does not work it full time anymore....however she is shooting a wedding today.
 
       Good luck to you, and please keep posting and share more on this if you can please. We are here to support, and can best do this with more information if you can provide it.
 
     Take care,
 
   SE wink
       
       
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 8/27/2011 8:55:46 AM (GMT-6)


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 8/27/2011 8:49 AM (GMT -6)   
 
  Like many of the members have said, this is a serious infection, but i am
 
sure you know this since you have had it before. It does need to get
 
treated right away, because if left untreated too long this can move to
 
the bloodstream and you become quite septic. Also MRSA can lead to flesh
 
eating disease, which sounds like what your friends had Michael. Nothing
 
to fool around with.
 
Please let us know how you make out. If this is as bad as you are telling us,
 
increased pain and not being able to walk because of the infection, my gosh,
 
please go to emerg and get this checked out ASAP. We are all concerned for you.
 
Suzane

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/27/2011 9:45 AM (GMT -6)   
Believe me, I am taking every precaution that I can take. My first problem is that I am uninsured. So, despite what the laws say, getting good healthcare is a royal pain. Going to see the right doctor is critical in getting the staph treated properly, and you do not have to be hospitalized for that to happen. Unfortunately, in June, when I had the post surgical outbreak, the one doctor I normally saw at my local HD was out on vacation. I couldn't wait, so I saw whomever was available...and instead of listening to the patient about what has worked in the past, he prescribed the shortest span with a rapid burst. It doesn't work. I need the first 3 days to be 3 times a day, then taper off for a 45 day slow dose. If it will be done the way I know works, I will be just fine.

I am fully aware of how serious this is. The staph infection that my father ended up with nearly took his foot. I do take this very seriously. I am sure to take a bleach bath every day and every 3 days I will use a surgical grade cleanser on my whole body. Tomorrow is the day I should start seeing improvement from those measures. Monday, with any luck at all, I will start my antibiotic. It is my PM doc that I will be seeing, not my HD doc. However, my PM doc will take this very seriously...even to the point of sending me to the hospital if he feels necessary. I know I'll be in good hands, and until then I am doing all I know to do.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/27/2011 10:05 AM (GMT -6)   
 
      OK!...well that clears a few things up! wink   We just wanted to make sure you were on top of it, and from the sound of it you do know how serious it can be.
 
         We wish you the very best, and hope that you get this taken care of Pronto! Sounds like you have a plan in place.
 
        Please do keep us updated on it, and like I said were here for support,..anytime! As you can see,...the members here are very caring...so you have found a very good place to share.
 
      Take care,
 
    SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/27/2011 10:54 AM (GMT -6)   
It is very nice to have genuine concern instead of continual lectures. No matter how many times I go through something, that is all my husband wants to do...lecture.

I lost all composure on him last night, asked him to refrain from speaking a word to me unless he was genuinely helpful. I wish he understood how demeaning he comes across when he "thinks" he's trying to help me out.

I will keep y'all updated. My appt is at 7 a.m. CT on Monday. I am thinking that I will have my son drive me down the night before and spend the night at a hotel close by. Mornings, for now, are cruel.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16304
   Posted 8/27/2011 11:10 AM (GMT -6)   
Very glad you will be seeing the dr on Monday. What antibiotic works the best for you with this? I had asked you in a post is this cellulitis or staph, which there are like 30 different types of staph and cellulitis is one of them. Good luck on Monday.
Moderator Chronic Pain Forum

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 8/27/2011 11:10 AM (GMT -6)   
I wish you much luck on Monday. Like michael said we do care and only want the best for you and less pain if possible. I hope you will feel ok thru the weekend. Hang in there as relief is on its way soon.

Take care
Suzane

educ8athome
Regular Member


Date Joined Aug 2011
Total Posts : 79
   Posted 8/27/2011 11:31 AM (GMT -6)   
SMZ-TMP (sulfamethoxazole and trimethoprim) is the absolute best, and again, I can have it for 7-10 days and be done with it, unfortunately. I need 4 consistent 3xda doses, then drop to 1xda for about 45 days. It's sad that I know EXACTLY what works. BUt, after 3 serious flare ups, at least one doc listens to me. I am praying my PM doc will too...and he tends to listen.

It is staph. One time, it was MRSA. But, other times, it has not been. It's making me crazy.
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