Haven't posted in such a long time......

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Veteran Member

Date Joined Apr 2008
Total Posts : 605
   Posted 8/28/2011 3:29 AM (GMT -6)   
Hello to all my healing well family smilewinkgrin ,
My gosh I haven't posted since Christmas time.  I had a dear friend help me through the holidays,and for that I am greatful
.  Since then we had some hard times.  At the time Jayson had lost his job and he had been out looking for a job with no luck.  He had gained some weight and I thought each time he came home he looked terrible and we just thought is was the weight gain that had him dragging butt.  He finally with my proding went to see a doctor.  He still had no medical but we filed some paperwork and he got to see the doctor free.  I went with him to his appnt and they kept listening to his chest and then theyy took for an xray and as soon as he came back they had him hooked up an EKG? 
All the sudden ppl were coming in and out of the room very fast and I heard them say they were having an ambulance fpr Jayson.  He was having a heart attack right then and there!  It was rush to get my meds together and find a ride and I was so scared.  At the hospital they were arguing about weather he had a heart attack or if it was some else.  Finaly the cardio doc came out to tell me that Jayson had 4 differnt types of congestive heart failure and the odds were not good.  If he got in shape and did everything right he would have up to 5 years and the way he was taking care himself' 2 years tops.  I couldnt believe it,I was floored. He was admitted to the cardac ICU
So we have been dealing with only my ssi check and thats not much and my daughter having to pay power and water.  We are deseratly waiting for Jay to get his dissablity.  And they are raising our rent 100 dollars to pay for getting on a sewer system.  As of right now my check pays the rent with a lil left over to put towards bills. 
Jay is dealing with horrible pain in his feet and he has to sleep sitting upright or he couldnt breathe.  He also had really bad blood presure and that alone can kill him by stroking out or having a massive heart attack.  He has to word so hard to even breath,espcaily when he has terrible coughing fits where I think he's going to die right then.    Its just been so hard doing the things Jay used to do for me which in turn brings bad pain for me.  The next thing Jayson will have to do is check to see if renal system is working(with congestive heart failure,the blood is working overtime to get the blood pumping from his heart to other organs) he will evetually put on dialisis(sp).  He has chose to be DNR(do not resesitate)and I have to honor his wishes.  He isnt even sure if he will not take dailisis.  So basically I get to watch him die.  Everything is so hard for Jayson.  It takes him so long to do anything because he had to rest every ten steps.  I have missed you all so very much.  I think of you all often and you are still in my prayers.  Thank you so much for all you have done for me.
Soft Hugs,
Sorry for all they typos

Post Edited (QTKaren) : 8/28/2011 2:40:35 AM (GMT-6)

Veteran Member

Date Joined Mar 2011
Total Posts : 816
   Posted 8/28/2011 10:33 AM (GMT -6)   
Typpos, girl please, never say your sorry about something that is not your problem.  I am so sorry you are going thru so much, your plate is full and then some.
I am Kathy/nini i53 by the way, I have been on since March of 2011 so I dont know you but still can have a lot of empathy for you.  Its awful to sit there and be feel helpless, I know from experience.  In 1996, my father was admitted to the hospital, he is retired military, so of course he went to a military hospital.  My dad had a stroke back in 1984 and had been partially paralized since that time.  This visit was supposed to be to find out what was going on with his feet.  They had been swollen and red, then black for awhile, it was the winter of 1996 and we had a blizzard, so he was postponed from his appt. for about 4 weeks.  When we finally got him there, he asked me to sign a DNR, which I did and promised him I would not allow him to be kept alive artifically.  Of course my mother signed one also, which of course made mine useless.  They ended up butchering him, I will never forget the look on his face, about 5 days later, when they had removed his leg, and he still was very ill.
He looked like I had totally betrayed him.  It was my mother of course, every time it came to let him go, she dropped the ball.  I wish I could say it was because she loved him so much she couldnt stand to let him go.  But that would be a lie.  Anyway I will not take any more space up to go into my disfunctional family.
Again so sorry for what you are going thru, but please try to take care of yourself, its important.
Take care, hope you are better soon,
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 8/28/2011 11:53 AM (GMT -6)   
        Well Hello QTKaren!
               It has been a very long time since we last heard from you! I'm so sorry to hear of all the health issues going on with you and your husband. shakehead I had wondered what ever happened to you! It sounds like you both have quite a burden on your shoulders these days.
      I had a massive HA back in 2002, so I know full well what that is like, and it is such a worry for the families involved as well. You know,... I too had orders for a DNR and it is a tough decision, and can be very hard on a spouce. It is something that should be discussed and then honored as best you can. Not a pleasent thing to ponder, but none the less there will be no question about it then.
         Lets remain positive though, and we will pray for a good outcome on this current crises in both of you're lives.
        Karen feel free to visit us often, when you need to vent and share, and the members will be here for you.
         Take care,...and it's good to see you again!
       SE wink
Moderator Chronic Pain Forum

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Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 8/28/2011 4:04 PM (GMT -6)   
Hello QTKaren,

It's very good to see you again, but not under such horrible circumstances. I am so sorry for your situation and for the struggles you and your family are facing. I have no suggestions for help or any way to make things better, but I can certainly understand the DNR....both my husband and I have one on file that we did with a lawyer several years ago. This removed the choice from the family (for the most part).

I will keep you and your family in my prayers.

Welcome back to HW. We are here for you!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

Forum Moderator

Date Joined Feb 2003
Total Posts : 16796
   Posted 8/28/2011 4:44 PM (GMT -6)   
Hi Karen, yes, it has been a very long time since you have been to the forum. I am so sorry to hear what all is going on in your life.

CHF is very scary, and not being to get your breath is too. I have had several episodes of it induced by steroids. You said Jayson sleeps sitting up, does he have his feet elevated? Does his drs have him on any kind of diurectic to pull the fluid off of his body? If he is swelling badly get him to ER ASAP.

My dad went on dialysis after having a heart cath done. The dye used in the heart cath finished off his kidneys and we knew the risk but the heart cath was necessary. He did the max which was three days a week and each session lasted about 4 hours. My dad was much older than Jayson and recovering from a heart valve replacement & bypass surgery when the dialysis was started. He handled it very well, it made him feel tired at first and then that went away. There was people of all ages undergoing dialysis at the center we had to take him to.

I do hope things turn around for the two of you. You both have really had a hard time it sounds like. Try to stay as positive as you can, its tough I am sure. It sounds like Jayson is really needing to talk to some one about all of this professionally. Is his drs aware of what is going on in that area?

Please keep us posted as best as you can.
Moderator Chronic Pain Forum

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 8/28/2011 6:32 PM (GMT -6)   
Hi Karen, it's nice to see you back here but I am so sorry about all that

you and your hubby are going thru. I hope you will be able to keep posting

and please let us know how you are both getting along.

Take it one day at a time. We are all here to support you.

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