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Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 8/29/2011 12:12 PM (GMT -6)   


Hello,

I haven't posted for a while but I have a question regarding long term use of pain meds. I believe I am going through withdrawals with my pain meds. I haven't changed anything in my pain meds. The doctor put me on Neurontin and a month or so I could not continue taking it because I was so groggy. Then to cover the nerve pain due to my failed back surgery he put me on 30 mg. oxycodone and I started itching all over. I tried my left over percocets and even starting itching with them. Pain meds have never never caused me an itching problem. Now I feel when I use my Norco I am in withdrawals.

Anyone out there experience anything like this with their pain meds. Just had my appt. with my pain doctor and can't see him again until next month and unfortunately I did not figure this out until after my appt.



Back fusion L4, L5, Si,
Nerve Pain
Surgery 2006 -
Was left with a drop foot and numbness in my right leg from the knee down and now my toes have become hammer toes. What a mess.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 8/29/2011 1:19 PM (GMT -6)   
Instead of going off all your pain meds, which will most certainly take you into withdrawal, did you try to take anything for the itching.  Benedryl maybe, of course you should call your doctors office before taking anything else, but see about getting something for the itch.
 
Every now and then narcotics will make you itch, see if you can call your doctor and ask what you can take for the itching.
 
And Hi, I am nini53, sorry I should have done that first, but sometimes I do things backwards.
 
Good luck,
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 8/29/2011 1:28 PM (GMT -6)   
 
    Hello Twinks!
 
OK!...I need to ask a few questions so the members will get the whole story here, and maybe offer some suggestions for you.
 
 First off you say that you have not changed your med's, but I see you say that your Dr did change them a month ago...and added Neurontin to the mix....and did he remove the Narco (Hydrocodone) at the same time?
 
      When did he remove the Neurontin after you realized it made you groggy?....and then instead of adding the Narco back he put you on Oxycodone? (30mg)
 
         The Narco (Hydrocodone).....and then the Percocet's (Oxycodone).....both can make a person itch. The Oxycodone 30mg is the same as the Percocet with the exception that it is missing the acetaminophen that the Percocet has in it. Your Naroc should have the acetaminophen as well.
 
      There could have been some of the Percocet left in your system,..making you think that the Narco was causing it as well.....but I don't know the timeline of when all of this took place.
 
        Maybe a little more information from you will help us here.
 
          Take care,
 
     SE wink
    
 
 
 
 
 
Moderator Chronic Pain Forum

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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16273
   Posted 8/29/2011 1:44 PM (GMT -6)   
Twinks, I wish you would have given the Neurotin a little more time, as that is one of the side effects of Neurotin, but that usually goes away in time. Have you been tried on Cymbalta, Lyrica or any of the meds like this and Neurotin for the nerve pain? If not you really need to talk to your dr about trying one of the others. You are not going to like much of what I am going to say next but it is the absolute truth, the standard pain medications have little to no effect on nerve pain. nerve pain is whole different ball game.

Lots of folks itch from the meds that are making you itch and they take something for it after speaking with their dr. Please get a hold of your drs office and if you can not speak to the dr let his nurse know what is going on.

What kind of symptoms are you having that makes think withdrawals? We just discussed this in a post on here so, please take a look at that post and you will see what has been written about withdrawal symptoms. The heading of that post is Dependancy.

Take care and i hope you get to feeling better.
Moderator Chronic Pain Forum

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 8/29/2011 1:58 PM (GMT -6)   
Thank you for all your replies. I guess I wasn't really clear with my first post.

My doctor never removed Norco from my BT pain meds. The Neuron-tin worked great for my nerve pain, which is considerable, but I am absolutely comatose with it. I did try Lyrica and it was worse.

I did explain to my dr. about the itching and he is going to put me on Opana but I have to get a pre-authorization from my HMO first. The Norco is my BT med. Always has been. The itching started when I got off Neurontin and he switched me to 30 mg of Oxocodone for my pain along with Norco for BT. I did take the benadryal with the 30 mg Oxoycodone but that makes you drowsy. I guess we are darned if we do and darned if we don't. I need to stay somewhat focused because I have a husband, and two grown sons and a 12 year old granddaughter with autism living with us. One son lost his house and the other one is the father to my granddaughter. I am 68 years old.

I have some percocet left from another prescription that has never caused me to itch before and it is doing the same thing as the 30 mg of Oxocodone. I know my spelling is bad.

When I first started taking the Neurontin I was on 300 mg a day, then 600 a day and that was not enough then went to 800 twice a day and it was okay but was kinda out of it. Now if I even take 200 mg twice a day I am down in bed. I don't know what happened. I love the way it takes the nerve pain away.

Any and all your comments are greatly appreciated.

Degenerative disc disease
2006 Back surgery, fusion L4, L5, SI

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 8/29/2011 2:01 PM (GMT -6)   
Forgot to tell what I was feeling that I think might be withdrawals. I feel unsociable, don't want to go out, don't want to get out of bed, feeling just not wanting to participate in life.

I got off of Methadone back in May and when I was on it which was from 2007 to May 2009 it worked great. Then I was in the deepest depression I have ever been on. Once I got off of it in May it was a light went off in my head and I felt good, great mentally and emotionally. Now it starting all over again.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16273
   Posted 8/29/2011 2:11 PM (GMT -6)   
Hi again Twinks, that really does not sound totally like withdrawals from medication. What you are describing fits perfect with depression. I urge you to get in to see your PCP ASAP about this. You know CP and depression go hand in hand, so it is not uncommon at all for people to have depression when suffering with CP. Please don't let this get of out of hand either and wait to see if it will go away. I am not a dr by any means but I suffer with both CP and depression, just about all of here at the forum do.

At any given time our bodies can change how they react with medications so this new thing with the itching is just one of those unfortunately. I am so sorry that you had to quit the Neurotin, especially since it was working. Cymbalta is also one of those drugs and it is also used to treat depression, you may want to give it a try to see how you do with it. It would be great if it worked well for the nerve pain without putting you to sleep and also help with depression. Its worth speaking to the dr about it.

Keep us posted on how you are doing and I am glad to see you back at the forum.
Moderator Chronic Pain Forum

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 8/29/2011 2:34 PM (GMT -6)   
I forgot another thing. I am on and have been for years Prozac and now Wellbutrin with it and my pain dr just added Elavil at bedtime . He says the Elavill is also for nerve pain.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16273
   Posted 8/29/2011 3:03 PM (GMT -6)   
Twinks, the generic for Elavil is Amitriptiline and it was widely used for nerve pain back in the early 80's, especially for people with RSD which is a nerve condition. If the Wellbutrin does not help you, then it sounds like you may need a totally different antidepressant. You know we can become tolerate to the antidepressants just like any medication we take long term. I wonder why he didn't try you on something different all together. I am usually good for about 2 yrs then its time to try something else. Even my BP meds have to be changed up because long term they just stop working.

Did you tell the dr how you were feeling with not wanting to go out, get out of bed and things like that? Did your dr give you a return appt? I hope the meds will kick in and help you. If I am remembering right about Elavil, it is a drug that has to build up in your body as you take it. Be sure to take it at the same time every day if possible. I was on it and my son for migraine headaches. I was unable to tolerate it but my son did great on it.
Moderator Chronic Pain Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 8/29/2011 3:48 PM (GMT -6)   
Hello again Twinks, ok now that you have said what your symptoms are, it is not withdrawal, it is most probably depression.  I take neurontin 300mg 3xday, and I love it, I have neuropathy and it really helps with the nerve pain.  As far as making me sleepy, I have problems (along with most other cp sufferers) insomnia, so at night, I take 600 mg of neurotin, this makes me feel sleepy and that is what I need.  I also felt sleepy when I first began to take neurontin, but as Straydog said mine went away after a couple of weeks.
 
I would talk to your pm doctor about the amount of meds you are taking for depression, that could be the compenation of meds that is making you sleepy.  I havent taken anti depressents for many years, but I one thing I remember was they made me feel dopey even in the morning and throughout the day.  I seemed to always be in a fog.  I stopped taking them many years again, and now if I get depressed, I ride it out because  for me (and I consider myself fortunate with this) my depression does not last more than 24 hours anymore.  Now 12+years ago, my depression was lasting 24 out of 24 hours so, you do what you need to do.
 
Well good luck, and make sure to ask your doctor about the itching, there could be one of the meds not interacting well with another.  Its the simple things that needs fixing that are a great surprise.
 
Good luck, take care and hope you are feeling better soon,
 
Kat
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 8/29/2011 5:07 PM (GMT -6)   

Twinks,

Oxycodone is the same drug in both percocet and the 30 mg oxycodone. Did you have any other symptoms beside the itching? The reason that I am asking is that the itching came when you took two drugs of the same base medication- oxycodone. People can develop an allergy to a medication, even if they never had one before, and they can come on suddenly.

I used to take penicillians for years, and then one time after a tooth infection, I was given it , along with codeine, and I developed an allergy to both medications.

I would not take the oxycodone in either form, for now. Then when you do see your doctor, let him know.

Itching can also happen from taking opiates in general, and usually subsides pretty soon after it comes on. I am concerned though because you had to take benedryl to stop the itching.....that tells me that there may be more than just generalized itching due to opiates.

Sandi


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 9/3/2011 10:07 AM (GMT -6)   
i was taking percocets for almost a year- now we switched to straight oxycodone to get rid of the tylenol...there are times i take my meds (happened with percs also) and i itch like crazy...not every time, but it does happen.
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!
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