Todays "Talk-Abvout" (formerly known at the Koffee Klatch)

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Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9250
   Posted 9/4/2011 11:37 PM (GMT -6)   
I've had so many requests to restart the Koffee Klatch or something similar and since summer is closing down it's time to get going.

I've revamped the KK to more of a topic format instead of a question. Some days, like today, there may be a question but more often it will be a topic given and everyone who cares to can put in their 2 cents...or 3 wit inflation. wink These are not going to be 'hot topics' for debate but more of what your experience is in certain areas. Doing a topic every day of the week is taxing and hard to keep up sometimes so these will come along on a regular basis but not each day. Most likely there will be a new topic 3-4 times each week. Feel free to post more than once, especially is there's a discussion going and you care to add your thoughts.

So, for today we're going to start on a positive note:

What have you learned or what even has happened since you were 'diagnosed' that is a positive in your life? I'm not trying to be a Pollyanna about this since none of us would choose a life of chronic pain but has your journey led to something that is good or maybe you saw some act of kindness along the way. What's your take on this topic?

********

The obvious answer here might be to have met a lot of wonderful people here in the forum. But since I just covered that one tongue you will have to think of another. One thing I have discovered in my family is my oldest grandson's depth of compassion. He can get down-right protective of me at times. He's 20, a college student and lives with us so he and I spend a fair amount of time together. When he's home and hubby is at work grandson is the one who helps and keeps an eye on me. I love seeing that side of my grandchildren.

Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis in Neck/Hands/and slowly meandering around other places....and other maladies as discovered.
~~~~~
It's kind of fun to do the impossible.
Walt Disney

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 9/5/2011 6:52 AM (GMT -6)   
Chutz....Thank you for starting this topic back up

I had an act of kindness happen to me at the grocery store last week. I was in the stores electric cart and I had my purse and cane in the basket i did my shopping and my basket was very full. I went to the checkout where there was a checkout clerk not a self serve area. I was really low in the cart and it was difficult for me to place a gallon jug of milk on conveyor belt and cereal. The lady in front of me turned around and started to help me empty my basket on the conveyor belt. I thanked her over and over again. i told her now you will have goodness come to you since you did this act of kindness for someone you didnt know.

that made me happy and set my mood for the entire day. it was great.

Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 9/5/2011 7:06 AM (GMT -6)   
I'm going to focus on the 'me' positives, because I need to cheer myself up tonight... in a lot of ways this has made me a better person I think than the one I would have been otherwise. I'm a lot more patient, I have a lot more empathy for the struggles that other people go through. Although I feel terribly squirmy and embarrassed about it, people often tell me that they find my determination and courage to go on with a cheerful face despite everything really inspiring - and that makes me feel good too.

Thanks Chutz - it's so important to remind ourselves that sometimes our dark clouds do have silver linings :)

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 9/5/2011 9:03 AM (GMT -6)   
I missed the Koffee Klatch. Thanks so much for starting this back up again.

The positive in my life is that my family and I have grown closer since my fibro has really impacted me in the last ten years. They are very supportive and wonderful. For that, I am eternally grateful.

God bless and have a low pain day everyone!!!


Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 9/5/2011 1:51 PM (GMT -6)   
My positive is that I can look at people differently now. I try and see through the surface and now know that looks may be deceiving. That whole "But you don't look sick" statement really hits home now.

I can now take the time to talk with someone and hear their story and not assume anything.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Undetermined Auto-Immune Dysfunction (probable MCTD, sero-negative RA and ?), Trigger finger, Carpal Tunnel, Cubital Tunnel, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Celebrex, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/5/2011 4:10 PM (GMT -6)   
Chutz,

Thanks for bringing back "Talk abouts" or KK or whatever we are going to call it :) I love your ideas.

As w/ all of us - I have the positives and negatives that come w/ CP and long-term illness.

Even though I was like this to some extent before I got sick, the biggest thing my illness has taught me - which in turn, I'm teaching to the kids - is to NEVER judge someone because you don't know what they are going through.

There's lots of sick people that "look" healthy. Also, suffering from depression/anxiety has taught me why some people make certain choices and so forth. So - the point is - unless you are directly walking in someone's shoes, you don't know what's going on. And this is a lesson that I think my kids are learning in a way that I don't think they would w/out my illness. So I consider this a huge positive.....

--Tina

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/5/2011 4:49 PM (GMT -6)   
I have to admit that I have more time with my daughter and have been able to send her to a better school since I have been disabled. Before, I worked long hours at a very high stress job (as did my husband). Now, since I am at home, I have been able to put her in a Christian school that really focuses on learning. Although they do not have the equipment that the public school has (particularly in the computer area), they give more one on one and have much more discipline. The children are taught manners, grammar, punctuation, geography, music, art and many other disciplines in addition to the core subjects. When she enters high school, she will begin to do community service as part of the program and will benefit from that as well. If nothing else, she should learn more about others by helping them. She'll also be able to include the program as an added bonus when applying for college. Were it not for my injury/issues, then she would still be in the local public school and I would still be working long hours at a job I was very unhappy doing.
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 9/5/2011 7:56 PM (GMT -6)   
Thank you Chutz for bringing the Think about back. I'm glad that you have.

The first thing that comes to mind is that I have more compassion for those that I see that are disabled. I can sympathize with them more than I could before. I help them if I am able. If not, I get Jerome to help them.

I would have helped them before, but now I can "get where they are coming from" now.

Take care everyone. God Bless.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 9/5/2011 9:40 PM (GMT -6)   
What I learned was not to concentrate on what I cant do, but rather what I can do.  The journey to being a cp patient comes in many forms, some born with, some accidents ets.  But however we got here, once we got here many of us had to learn how to live life differently, this was not always easy, but I learned that there were other ways to be useful to my children, my grandchildren, and most importantly myself.
 
I to have much more compassion then I had before I got here.  I learned I still have many things to be grateful for, and be willing to put myself out there.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 9/5/2011 10:05 PM (GMT -6)   
a positive for me is that I can still do my needlework.
Thank you Chutz...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 9/6/2011 9:49 AM (GMT -6)   
The positives that I have gotten run along the lines of RetiredMom's. I get to be at home with my sons. Before the pain became unbearable, I worked at a high stress job doing the work of the manager without any extra pay or acknowledgment. I lived in an abusive relationship for years. My sons learned that women were to work a full-time job out of the house, then come home and work another full-time job cleaning, cooking, and caring for the men of the house who did little to nothing in the caring for home and hearth department. Now, they know we are a unit, a family team that has to work together to get things accomplished. Teaching them to cook, bake, wash clothes, and become a helped to their future spouses instead of a person expecting to be served. I would never have planned to marry again, never learned to depend on my fiance and friends, and just tread water through life struggling to make it by myself. Now I have my family close, my fiance, great friends, time for church and mild volunteering behind the scenes.
The positive thing for just myself, not my family is my crocheting. I never had much time for it before, now I have a productive activity even when I am down and out.

Thank you Chutz for starting this again on such a positive note!
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI pain, arthritis, kidney stones, depression, 10 pelvic surgeries for pain, ovarian cysts, adhesions, endometriosis, adenomyosis, and possible ovarian remnant syndrome. Unexpectedly growing ovary #3 on right side.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 9/6/2011 11:57 PM (GMT -6)   
I have to add that I can still do my needlework also.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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