Hope that I am doing this right! Not too computer savy.
I accidentally found this place, I have never in my 40plus years of suffering with this condition run into anyone that has it!
Have been to Dr's who in the beginning told me that it was all in my head.....yes, it is in my face and I would love to be able to share it with those various doctors.
Finally got a diagnosis from a doctor in 2004 ! I've had all of the drugs used to treat it over the years, most doctors thought they were just Migraines.
I've been back & forth from the Dentist to the doctor for years.....to no avail until 2004. I finally got the insurance approval for a Pain Management doctor, had a few injections in my face (right side) and they did help. Lost my job, lost my insurance, so for the last seven years have gone to a walk in clinic where I was able to obtain the medication that I currently use.
To those of you out there, I use the generic form of Elavil (Amitriptylin) 10mg. You are supposed to take it everyday, but after so many years of using it, it was not working. I now only take it when I have an "episode"! Sometimes one will relieve it, today starting another episode and have taken 2 so far.
To those of you out there, do you get "episodes"? I can figure on 5-7 days each month, sometimes I will go for a couple of months without any.
It's been a rough 7 years without insurance, and finally in 2012 I get Medicare. Finally will be able to see a neurologist and hopefully get more relief.
I don 't feel so all alone with this now......Thank you all