Kitty, I can't believe that they don't do trials! That to my mind is absolutely terrifying - probably also negligent as far as the doctor's behaviour and practice goes.
The SCS only works for a proportion of people who trial it - that's why there is a trial period before a permanent unit is considered. Sometimes the stimulation can't be got into the right area, sometimes it's more painful rather than less...gosh, sorry, but I can't believe you even agreed to go ahead without a trial :(
As far as meeting with the programmer goes - this means sitting down with the technician, who will test out a number of different combinations - ways of turning the individual bits of your lead on and off. This will change the type of stimulation pattern you feel, and where you feel it. The aim is to get something that covers your entire painful area and produce a sensation that you find pleasant. This can take quite a long time - sometimes repeat sessions. You'll probably find that as the lead heals into place that your stimulation patterns will change over time and you'll need your programs altered slightly.
Also - I missed this when I posted to you before... you said that you're not allowed to lift anything over 5lb for 2 weeks? Your activity needs to be limited for 2-3 months! No lifting, no bending, twisting or stretching!
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio