For those of you on disability...

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LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/14/2011 11:41 PM (GMT -6)   
For any of you that are on disability what is your monthly income? is that while being single or married? and what state are you in? I think I'm getting screwed over, guess we'll see with everyone's answers.
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 9/15/2011 2:15 AM (GMT -6)   
Hi Wood - I'm in Australia of course, not the US, but I'm on full DSP (Disability Support Pension).

My payment is $1562 a month. To give an idea of how that compares to cost of living, a pretty basic 2 bedroom unit around here costs $300-400 pw to rent, groceries for one person maybe $80 pw. Add electricity, gas, phone. If you drive, petrol is about $1.40/L here (roughly US$5.40/gallon, I think). It's certainly a pittance here :(
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/15/2011 3:00 AM (GMT -6)   
If my jaw could drop any lower it would fall off and go through the earth and end up in china. WOW I mean just WOW
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/15/2011 3:38 AM (GMT -6)   
To clarify the reason why my jaw dropped is because your amount is near 3.5 times more then me. So don't call it a pittance :( I am lucky my gastroparesis barely lets me eat cause I could not afford trying to buy food like a normal person.
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 9/15/2011 5:09 AM (GMT -6)   
But Wood, you can't compare apples and oranges.

I may well get much more than you outright, but how much does it cost to rent a house or even a room? I know you and I are rather 'unique' in our grocery buying, but how much does it cost to feed an average person for a week? How much is petrol? (sorry...gas to you guys, isn't it? ;))

My point is - DSP in Australia pays about $365/week. Even if you're sharing a house with someone, you're probably spending close to $200 of that on rent. $80 on groceries...okay maybe $50 on groceries if you're down to starving yourself. That leaves $100 for what? Electricity, gas, medical bills... I have one single medication that now costs $130/month. Does that explain why I consider it a pittance?
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

badheartdude
Regular Member


Date Joined Sep 2011
Total Posts : 58
   Posted 9/15/2011 7:20 AM (GMT -6)   
I have applied for SSDI and they told me my payments would be $1205 a month, but you also get taxed on some of this, hope this helps answer your question or at least give you an idea, I believe it is based partly on your previous income.
Badheartdude
intercostal neuralgia, degenerative disc disease, atherosclerosis, depression, & anxiety
meds: gabapentin, oxycodone 30 mg, lipitor, xanax, effient, cymbalta, carbamazepine

Jim1969
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Date Joined Jul 2009
Total Posts : 2042
   Posted 9/15/2011 7:42 AM (GMT -6)   
In the USA Soc Sec Disability payments are calculated based on how long the person has worked and how much they have paid into the system. The exact formula is somewhat complex.

You can read more about it

www.socialsecurity-disability.org/content/how-are-social-security-disability-benefit-payments-calculated

To the best of my knowledge marital status does not play a role in the calculations. Also I do know that dependents do not play a direct role in it. If a person on SSDI has dependents under 18 they will receive a monthly check based on your claim, but not deducted from it, until they turn 18, assuming they are not already getting some kind of SS payments.

location does not play a direct role in things either. You will not automatically receive extra money because you live in New York City or less because you live in small town Indiana. There is an indirect component to it however as wages in large cities are usually higher than those in small cities/towns.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

straydog
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Date Joined Feb 2003
Total Posts : 16301
   Posted 9/15/2011 11:56 AM (GMT -6)   
Jim is right, here in the US, SSD benefits are based solely on what you earned while working. If a person was a low wage earner obviously they will not be paid as much per month as a high wage earner. The spouses income has no bearing on your amount either except on whether the income will be taxable with both incomes combined. I have to pay income tax on my SSD. I cannot remember what the cap is per month for SSD, I know its a little over $2,000 a month but under $2,500. Housing and the cost of living has nothing to do with how much we get paid either.
Moderator Chronic Pain Forum

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 9/15/2011 4:44 PM (GMT -6)   
Thanks Jim.

Stray, that's not what I meant... I'm having a hard enough time making myself clear in face to face conversations at the moment, never mind over the net!

When I was talking about cost of living... LordWood commented that my payment was nearly 3.5x what he gets. But it may be that he only had to pay $1.00 for that loaf of bread, while I had to pay $3.50 for mine. I.e., if it costs a lot more to live in Australia than it does in the US (I have no idea if it does or not, which is why I was asking about rent, petrol, etc.), then a higher pay on my part may be only an illusion. Does that make sense?
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 9/15/2011 5:30 PM (GMT -6)   
Laura, I didn't get that pw meant "per week", as rents in the US are usually per month. So rent for you is between $1200 and $1600 Australian Dollars a month?

If I were to become fully disabled now, I believe I would get around $900 per month from U.S. Social Security Disability, because I'm young and haven't had well paying jobs. It would be JUST enough to survive assuming I got help from the government with health insurance - Medicare or Medicaid. At that low an income in the U.S., I would probably qualify for food assistance as well.

In the U.S. there are two disability programs - SSDI and SSI. You can only receive SSDI if you have paid enough in Social Security taxes to be eligible, which means you have to have worked for a certain amount of time. SSI is available regardless of work experience or having paid taxes, but pays a much lower (sub-poverty-level) benefit. However, people on SSI are automatically eligible for both food assistance and Section 8 housing.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 9/15/2011 5:36 PM (GMT -6)   
Every country has its own way on figuring disability payments, just like every nation has its own way figuring taxes, etc.

As for as Lordwood goes we have no idea which nation he resides in or anything else about him really.

Straydog and I can only comment on how things are done is the USA as that is where we are from and what we are familiar with.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/15/2011 11:02 PM (GMT -6)   
First off once again thank you for all the comments.

Laura- It does sound like some of the stuff down in Australia is a lot more than in the US. Your 1562 in the US would be roughly 1608 which seemed a lot but then again each countries set up for disability is difference and taking into consideration apparently you have no medical assistance for your medications I can see what you mean by it being a pittance.

badheartdude- Thank you for your post it was exactly to the point of my question.

Jim1969- Thanks for the link, I had seen that but as I am 21 and my work history was not very long they could not provide an amount from that base. I was fortunate enough to not need very much income previously as I was able to live in a house with two friends who paid 75% of the rent/utilities so my monthly rent cost was lower then normal and what was left of what I got a month went towards medical expenses not covered by insurance as well as food and gas and a cell phone. Which luckily my gastroparesis doesn't require me to have a normal food bill like most people.

Problem is that arrangement for housing no longer exists and I am now on my own so I will be applying for basically a "on your own status" which would require more per month. I hate being on disability and was proud of my previous arrangement not having to ask for much but now I will have to so I was asking what each person got per month to see as a estimated guess what an average amount is. Martial status is a factor at least for SSI as individuals get less then couples. I live in the US which is why I asked what state as in some states supplement the Federal SSI benefit with additional payments so depending where you are you could be getting more. Thank you again for both posts and your input.

straydog- Thanks for the info on SSD, but because of my age SSD is not possible otherwise I would have been on that. With SSI monthly amounts are based off cost of living, as well as state and marital status.

Heather Lynn- Big thank you for your post and the info.

I guess to redefine my question: For those of you on SSI that are single what is your monthly income and what state are you in?

Thanks again to all of you that posted and hope each of you have better less-pain days ahead.
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 9/15/2011 11:39 PM (GMT -6)   
Another thing that is nice about SSD if your getting Medicare with it, I know for me, the between the Medicare which covers about 80% of my medical and is primary and then with me being retired military, I have TriCare for life, and that pays the other 20 % of my medical it is rare that I ever have to pay any  thing for my medical out of my own pocket, My prescriptions meds are either completely free through the VA or a normal 3 dollar co-pay for a prescription through TriCare, sometimes I will have to pay a 9 dollar co-pay for a more expensive medication  that is not on there normal medication  list.   My average co-pay for my Oxycontin and Baclofen and Percocet for a month is 15 dollars. I guess I am fortunate in that respect being retired military and I also get my military retirement. I consider myself blessed and really fortunate!  But with that said,......I would still rather be working and it is not just for the higher income but also I miss Nursing something fierce! It is like a part of me is lost, anyway  I guess it just,  Is what it is!
 
LordWood I am sorry,..... because...... for you,... and all of you really young people, and all those of you that started off on disability at a young age. All of you,  that have not had the opportunity to really work and have a career, and then have to live in pain and not be able to work at all, and then are  expected to live off of disability! WOW  that really must be extremely difficult at best!! It really is hard for me to  imagine how difficult it really must be for you, and everyone that is  in  your in situation. It really does sadden me and , My heart goes out to all of you, and I do wish you all the very best!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 9/15/2011 11:44:22 PM (GMT-6)


LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/16/2011 12:49 AM (GMT -6)   
Thanks White Beard, I agree 100% with you I'd rather just be working too. My docs told me to apply for disability in the beginning and I refused and tried to work against their recommendation but unfortunately even working the couple of hours a day I could the few days I did it was making nothing and hurting myself physically more to the point of forcing my hand that I had no choice but to apply. Its nothing short of embarrassing for me as when I was in school even with health issues I had almost perfect grades and was planning on college and getting to my dream job and well that all went out the door with my health getting worse over time. Instead I got to watch as the rest of my fellow classmates got to go onto college or good paying jobs and my career was basically seeing doctors and doing treatments all the time.

Its especially infuriating when there's 2 possible treatments and a medication that could possibly get me back to the point of functionality but there not covered by my insurance at all and way to expensive for me to even dream of paying myself. I'm so sick and tired of my life being at the mercy of my insurance company which would rather spend more money in the long term on worthless medications rather then something that might work. They don't give a crap about your health. Its inhumane with what insurances can get away! As well as not being able to get relief from any medications and having tried every treatment possible that is covered, so your literally stuck with no where to go next in treatment options and left to suffer. All right I'll stop ranting and raving sorry just had to vent a bit.
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 9/16/2011 1:37 PM (GMT -6)   
Lordwood a very good friend of mine has gastroparesis and she has an SCS unit implanted that has helped her great deal. Has your drs ever mentioned this option to you?

Sorry, I forgot to ask you that in my post.
Moderator Chronic Pain Forum

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 9/16/2011 2:37 PM (GMT -6)   
LordWood, you should definitely look into apply for Section 8 housing assistance. In most places there are very long wait lists, but you should get on it now because you will definitely qualify. In most states you should also qualify for Medicaid, which should cover many things with very low cost sharing. In some states there are different Medicaid insurance companies that cover different things. I'm not sure how one goes about finding out about all the different plans though. If I remember you are in Pennsylvania, and you can find out about what you are eligible for and what would be best for you from your county assistance office.

When you are on SSI, the expectation is that you will also sign up for all the other public programs you are eligible for. That is the only way that SSI is enough to live off. Some states have "lifeline" cell phone service for not that much a month.

Good luck figuring all this out. I was disabled in my early 20s and the finances were a huge mess. I was lucky to have financial support from my family and I was able to work part-time most of the time, which is how I survived. But I also relied a lot on public programs, and I credit them with getting me healthy enough to get back into the workforce.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 9/16/2011 8:31 PM (GMT -6)   
Being officially disabled you should qualify for additional state level assistance such as food stamps, perhaps even cash welfare assistance, income based housing, etc.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/16/2011 10:29 PM (GMT -6)   
straydog- I had been told by another about the use of a pacemaker for the stomach, but there's a few issues, first just a few months ago in June I was in for a SCS to try to help with my pain from my RSD which resulted in only making things worse. They were trying to place a trial SCS in between C3 and C4 to help try to block the pain from the nerves around my heart and before they could even get done placing the first lead in out of two, my RSD flipped and my blood pressure and heart rate sky rocketed and I started with severe breathing problems.

Unfortunately even with 5 shots of high dose fentynal and a bolus of ketamine my system did not settle down. While I scared the living day lights out of the rep for the SCS and my anesthesiologist(pain management doc) as well as all the nurses the end result from that was nothing but making my condition worse and nearly killing me once again. So to try to get them to do a gastric pacemaker procedure after that episode I highly doubt they will do it simply for fear of causing my RSD to become worse as well as my insurance probably not covering it.

Which I would also have the issue of it being in the department of my Gastro doctor which is an ego driven doctor that believes he knows all, which even though I've had the gastro-emptying test proving I have gastroparesis and had been in the hospital because of it and have all ready tried the NG and NJ tube feedings as well as reglan and have seen no benefit this gastro doctor believes that because I am still able to at least get the little food I do in that I am fine. The biggest reason he treats the gastroparesis like its nothing is because it was caused by my RSD and this gastro doctor does not believe in RSD.

Even though I've seen the two leading specialists in the world one for adults and one pediatric and have seen countless other pain specialists and hospitals and there is no question whatsoever about my confirmed diagnosis of RSD, he simply believes that because he does not understand this neurological disease (which hes a gastro doctor not a neurologist) that he can just believe its not real. Problem is I am stuck with him as he is a good doctor for Crohns and is at least covered by my insurance. Guess I have to wait till I'm unable to eat/drink anything once again before he will do anything. But I thank you for the suggestion though.

Heather Lynn- Really appreciate your reply and currently I am in the process of working with my SSI worker to get everything changed and find out what my new monthly amount would be as well as the added assistance I can get. I am currently all ready on Medicaid and had it even before I got my disability. Problem is the Insurance company that my medicaid is through has basically got to the point of as I mentioned earlier being inhumane as I have done everything possible in PA in terms of treatments and medications that is covered and am at the point where the next treatment options I have are either out of state or in state but not covered and my insurance is refusing every option were providing to the insurance which I believe should be illegal that if you do everything your insurance covers (basically jump through all there hoops as my doc says) that they should be forced to make exceptions and allow at least one of the options to be allowed as its not like I'm just asking for this without doing everything else first. There basically refusing treatment which is inhumane. My doctor is irate with this insurance not only because of refusing everything but also because of there unprofessional-ism in how it operates & the people you have to speak too. I'm sorry to hear you've had to deal with disability at a young age as well, I'm glad your doing better now and able to be out of the nightmare.

Thank you to the two of you as well as Jim1969 for your posts.
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

rjbeck
Regular Member


Date Joined Feb 2008
Total Posts : 255
   Posted 9/17/2011 2:19 AM (GMT -6)   
I am 44 now and have been on disability for 4yr's and I am paid $1420 monthly. I worked in the medical field for 15yrs and when I applied for disability I was fully vested into the SSI program. I do know they have a point system to determine your retirement and disability benefits.Even with these benefits I still receive food stamps and Medicare plus extra help with my scripts. I don't pay for medications for about 10 month's and for 2 month's I pay about $6 per prescription. At first I was very hesitant to ask for any help since I have been working since I was 15 and have always paid my way then it just became to much and I applied and received the benefits. I know some people frown on receiving disability but since I worked so much and paid the maximum needed in taxes I just think of it as an insurance plan that I am being paid from. I paid 25% of my salary for many years to receive the benefits I receive and now feel that I am intitled to them. Beck
AVASCULAR-NECROSIS (AVN) in 6 joints. HIPS,KNEE'S and SHOULDERS-Replaced 1 shoulder. replacing left hip 9/8/11 then maybe knee's.
Bilateral Empyema with Thoracotomy with Decordication.(Removed the Lining of left lung)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 9/17/2011 8:20 AM (GMT -6)   
Lordwood, I see in your signature line that you are doing Remicade infusions I am guessing for crohns disease. I did Remicade for 3 and half years for crohns too, but had to stop because I had built up antibodies to it and it induced Lupus. You say the Remicade induced psoriasis, this is very interesting to me as I also have psoriasis. How did your drs come up wioth this dx?

I am on Humira shots now for the crohns but it is also rx'd for psoriasis but it has little affect on mine.

Take care.
Moderator Chronic Pain Forum

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/17/2011 7:37 PM (GMT -6)   
I just got put on SSD as of May of this year. I suffer from complications from treatments for Advanced Prostate Cancer.

I live in South Carolina.

Unless your head is cut off and you can show it to SS in a basket, you will almost always get turned down on the first pass. As soon as you do, my advice is to immediately engage a good SS attorney. I was handling it on my own for over 2 years, and kept getting denied. My lawyer, and a little help from my local U.S. Senator got it settled in less than 3 months. I was back-paid for over 2 years, and immediately qualified for Medicare.

It's based on how much money you have paid into the system. I am 59, and I paid payroll taxes for 41 years, and since the last 15 years was at a good rate of salary, I qualified for the max. amount. The amount the attorney got was limited by state law, and I didnt mind their take, as they got me settled so fast.

I never had to go to a hearing, near the end, even my lawyer got surprised, as the judge approved it on her own, without my lawyer present. SS made the judge mad, who said that after reviewing my medical history, "it was a no brainer", and she made my settlement a permament one right from the start, meaning I will never need a review.

Now that I am on SSD, I now have a permament disability tag for my car, my property taxes were reduced by about 60% on my primary residence. Depending on the state you live in, there may be other benefits for SSD folks.

I never dreamed of being "retired" for medical reasons at age 59, but am thankful that the SSD was there for me. In my case, I am losing my cancer fight, all curative means have been used and failed, and I now live with chronic fatigue, chronic severe pain, and ended up with an Ostomy as the result of severe radiation damage.

Hope this info helps someone along the way. Definitely engage an attorney asap in the SSD process, it makes all the difference in the world.

Thanks,

David in SC

(I normally post regularly in the Prostate Cancer section of HW.)

David I have had to edit your post somewhat due to language content. There are rules in place here at the forum regarding this, please review the rules if you are not familiar with them, thanks.

Post Edited By Moderator (straydog) : 9/18/2011 2:37:52 PM (GMT-6)

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