Follow up and questions about SCS procedures/thoughts

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Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 9/18/2011 4:40 AM (GMT -6)   
Hello All,
 
I know I look like I went MIA again, but I honestly haven't.  I've been checking on you guys and reading, but not posting very much.  I needed some time to make some decisions and let my brain rest for a while.  I didn't want to make the wrong decision. 
 
Ok, so my neurosurgeon apt went fairly well....although they never seem to write down exactly what they "really" told you in their notes.  He told me that my fusion did not appear complete, but that my hip bone was making is look OK from the side...in the notes that wasn't mentioned.  He also gave me some options,  (1) more surgery..starting with a mylegram and then fusing the next disc or two up, (2) SCS and (3) continued PM with RFA.  I have and RFA scheduled for Tuesday, so I decided to discuss the issues w/my team of Dr's at each apt between the NS apt and then.  Almost all of my Drs (and all of those who truly understand SCS) said they would do it in a minute!  They also said that I should give serious consideration to the procedure because it could give me my life back.  Even the psych said the same thing and wrote a note to to NS.  So I made up my mind and I want one, but now the NS says the psych did not do the right kind of eval, so hopefully they will communicate better and do the correct one so I can get the ball rolling. 
 
I'm still having the RFA on Tuesday of this week because they seem to help me so much, and I hope you guys will keep your fingers crossed and pray for me (if you pray) that this PM will not do something crazy w/my meds after the RFA.  That is a refill day and they did say he would refill on that day, but would not give me my med refill schedule for the next three months like normal....who knows?????  By the way, as many of you recommended, I am seeking a new PM, but I have to be careful at this time and find a good one.  I'm getting recommendations and will ask for a "consult" before I make any major changes.  There just aren't any to really choose from in this area, so I am willing to drive if necessary for help.  I'm taking it slow to keep from making rash decisions.
 
Also, about a week ago, I was taking some old boxes of pancake mix (nasty) out of my pantry when a steel pan flew out of the top (no I don't know how it got there) and crashed into my head.  I then said the the "s" word (as my daughter called it) and remember only feeling pain in my head, and then sliding down the last part of the wall.  I guess it knocked me out for a minute or two.  My husband helped me get up in to my chair and then iced my head....my child just freaked by saying "mama, one of your legs was way behind you and the other was out to the side".  Before I knew it, she had called my Mother, both my sisters, and my very close friend.  I had to laugh after it was all over, but man was that stupid to keep a pan that heavy in the top of a pantry and wow did it hurt when it hit my head.  I never even saw it coming!
 
Ok, so enough with my book...I just wanted to give you guys an update.  Any info on the SCS (for back/feet pain) that you have would be wonderful.  I have decided to get it, but I have to choose the brand and I haven't started that process yet.  Also, if you know exactly what kind of psychological they need or a link to one, I would greatly appreciate the info.
 
 
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 9/18/2011 10:17 AM (GMT -6)   
Hi RetiredMom, So sorry to hear that you got hit in the head. Wow, that is scary! I hope that you didn't have any serious damage done. As far as the SCS, I don't know anything about it. Sorry.

I know that alot of other members will be on with some great info for you. I just wanted you to know that you are in my thoughts and prayers to finally get some much needed relief! Please keep us posted. Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Undetermined Auto-Immune Dysfunction (probable MCTD, sero-negative RA and ?), Trigger finger, Carpal Tunnel, Cubital Tunnel, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Celebrex, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/18/2011 11:40 AM (GMT -6)   
Thanks Shannon!

I appreciate the kind words.

I have to admit that I can look back at the "falling pan" incident and kind of laugh now. I still have a small bump, but nothing to go crazy forl I am blessed. This too shall pass............
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16423
   Posted 9/18/2011 1:03 PM (GMT -6)   
Hey RM so good to hear from you. Oh, I knew you were not MIA, I knew you were really busy doing all of your homework. It sounds like you have made some pretty big strides along the way.

I am very glad to hear you say that you are in the process still of looking for a new PM dr. Believe me, I travel a bit to see my gastro and I have never regretted that decision either. Yes, it is not always a pleasant trip to his office but the care I receive far outweighs any inconvenience of a drive. I think if you found one that you truly liked and trusted you would feel the same way.

You know the more I think about this dr the more anti-medication he sounds at times. I mean talking about reducing your meds based on having a successful RF, what will happen when an SCS is implanted? Is he going to be one of those idiots that thinks medication is no longer needed since you will have one of those. If so, he is way off his mark, a person should always have something to take for BT pain no matter what kind of unit they have implanted for pain control. As you know I have a pump and I have meds for BT pain, its a must.

I had to undergo a psych eval for my pump. I did the MMPI and it was two days long doing that one. After it was reviewed a copy was sent to the psychiatrist that I was to see. One of the issues they want to make sure of is that your expectations of what the SCS may do in alleviating some of your pain, in other words you do not expect it to make you pain free, you are aware there is a good chance of it reducing 50% of your pain. In fact all of the literature on the SCS Units it state the trial is a successful trial if 50% of your pain is alleviated by the unit. If it is anything less than 50% then it is not a success, so please keep this in mind. Unfortunately, there are some drs out there implanting the units after the trial was not a successful one and they are telling patients the permanent one will be much better than the temporary, not true, so don't fall for any traps.

I have heard a lot of negative things about the Boston something or another units more than the other ones. If you have not visited Medtronics website you really need to check them out. They have the SCS units too you know, not just pumps. They have a great web site.

I admit I am not a fan of the SCS Units mainly because of the units tend to stop working after being iimplanted a few years. But, that does not say it will happen to everyone too, I never had one offered to me either back when this mess all started with me.

I do hope the RF is a success as usual for you. Will say a prayer and keep my fingers & toes crossed for you.

Sorry to hear about the incident with the pan, wow. I need to look both of us a helmet of some sort it sounds like. I fall here at the house and hitting my head has really been an issue. I have taken some very hard licks to the head, most likely concussions as a result of some of these falls. Cracking your head on ceramic tile and wooden cabinets is not something I recommend.

Take care and be sure to look in the search here at the forum on the units too.You should be able to find info on all brands of the units discussed. I would also try typing in the brand name of the unit in the search feature too.

Let us hear from you.
Moderator Chronic Pain Forum

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/18/2011 2:32 PM (GMT -6)   
Hi RM,

Good to hear from you.... and, like the others, I'm glad things are coming together for you and you are researching your possibilities....

My psych eval for the pain pump was the same as Susie's.... just making sure my expectations were realistic. The evaluation, of course, varies from doctor to doctor - but that should be the purpose of the visit. He asked various mental health questions - but nothing in depth. When I was able to articulate to him that I knew about the procedure and was just looking for ANY percentage of pain reduction... all was good :)

Again, like Susie, I'm not a huge fan of the SCS for the exact same reasons that she mentioned. That being said, there are a few that it has worked wonders for... so, if you go that route, I pray you are one of those people!!

So sorry to hear about the pan incident - OUCH! Not good. I'm constantly hurting myself in some way.... by having to lift the girls, or by overdoing it w/ housecleaning, or tripping over something and falling. We don't need any extra pain, right?? :)

Take care of yourself.... I hope your RFA helps on Tuesday... will be thinking of you... Keep us updated, of course! --Tina
Pain Issues: DDD; fibromyalgia; migraines; carpal tunnel syndrome; tendonitis
Multiple Health Issues: Disabled due to POTS (heart condition); dysautonomia (dysfunction of the nervous system); hypothyroidism; adrenal insufficiency; chronic hypertension; chronic fatigue; sleep apnea; anemia; Vitamin D deficiency; etc etc
Meds: Too many to list....
Personal: Mom to 6 boys and twins girls

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 9/18/2011 4:03 PM (GMT -6)   
Hi Retired Mom I don't have the SCS as you know. I wish you good luck with your decision.

I'm sorry about the pan hitting your head. Ouch! I hope you're ok.

I hope that your RFA works really well for you. You take care and be careful.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/18/2011 5:57 PM (GMT -6)   
Thanks guys! I know I can always count on you for a positive word and some insight. The pain got OUT OF CONTROL this afternoon, so I know I'm going to be happier about three weeks after the RFA. It takes that long for me, but it's worth it as long as the pain doesn't get that bad again. All I did was sit in a straight backed chair at my mother's house. They wanted me to load some virus programs on the machines and it took a while to get the correct things loaded. Naturally, they had purchased from two vendors with auto-renewal and were charged four times as much as doing it for your self.

I gave up....but I'll get back to it some day soon.

All my best guys. I hope your evening is pain free!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....
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