Posted 9/18/2011 4:40 AM (GMT -6)
I know I look like I went MIA again, but I honestly haven't. I've been checking on you guys and reading, but not posting very much. I needed some time to make some decisions and let my brain rest for a while. I didn't want to make the wrong decision.
Ok, so my neurosurgeon apt went fairly well....although they never seem to write down exactly what they "really" told you in their notes. He told me that my fusion did not appear complete, but that my hip bone was making is look OK from the side...in the notes that wasn't mentioned. He also gave me some options, (1) more surgery..starting with a mylegram and then fusing the next disc or two up, (2) SCS and (3) continued PM with RFA. I have and RFA scheduled for Tuesday, so I decided to discuss the issues w/my team of Dr's at each apt between the NS apt and then. Almost all of my Drs (and all of those who truly understand SCS) said they would do it in a minute! They also said that I should give serious consideration to the procedure because it could give me my life back. Even the psych said the same thing and wrote a note to to NS. So I made up my mind and I want one, but now the NS says the psych did not do the right kind of eval, so hopefully they will communicate better and do the correct one so I can get the ball rolling.
I'm still having the RFA on Tuesday of this week because they seem to help me so much, and I hope you guys will keep your fingers crossed and pray for me (if you pray) that this PM will not do something crazy w/my meds after the RFA. That is a refill day and they did say he would refill on that day, but would not give me my med refill schedule for the next three months like normal....who knows????? By the way, as many of you recommended, I am seeking a new PM, but I have to be careful at this time and find a good one. I'm getting recommendations and will ask for a "consult" before I make any major changes. There just aren't any to really choose from in this area, so I am willing to drive if necessary for help. I'm taking it slow to keep from making rash decisions.
Also, about a week ago, I was taking some old boxes of pancake mix (nasty) out of my pantry when a steel pan flew out of the top (no I don't know how it got there) and crashed into my head. I then said the the "s" word (as my daughter called it) and remember only feeling pain in my head, and then sliding down the last part of the wall. I guess it knocked me out for a minute or two. My husband helped me get up in to my chair and then iced my head....my child just freaked by saying "mama, one of your legs was way behind you and the other was out to the side". Before I knew it, she had called my Mother, both my sisters, and my very close friend. I had to laugh after it was all over, but man was that stupid to keep a pan that heavy in the top of a pantry and wow did it hurt when it hit my head. I never even saw it coming!
Ok, so enough with my book...I just wanted to give you guys an update. Any info on the SCS (for back/feet pain) that you have would be wonderful. I have decided to get it, but I have to choose the brand and I haven't started that process yet. Also, if you know exactly what kind of psychological they need or a link to one, I would greatly appreciate the info.
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....