ER yesterday bc of pain today Tylenol every 4 hours

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Regular Member

Date Joined Mar 2007
Total Posts : 413
   Posted 10/13/2011 1:50 AM (GMT -6)   
OMG what am I going to do. How much longer I'm I going to be able to keep my job if I can't control my pain. On top of that I don't eat at all at work bc I don't want to cause any possible problems (ulcerative colitis and crohns); talk about weakness.
For those not familiar with my recent plight see my post about my PM Clinic not prescribing anymore narcotics--big, big HMO new policy.
Soon I'll need a liver transplant with all the Tylenol I take just to barely make it through the day; and yes I have told multiple doctors about it and all I get is, "you shouldn't take that much not good for you."

Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 10/13/2011 6:35 AM (GMT -6)   
It is horrible what you are going through.

I remember the days of not eating out of fear of making the pain worse or creating another issue. My pain caused fainting or vomiting as well as bowel issues, and when I worked it was easier not to eat to keep from ending up in the bathroom for hours.

Have you had any success in finding a new PM doctor? Have you talked to your PCP about this also? When do you return to work?

Hope you get some relief soon.

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 10/13/2011 6:46 AM (GMT -6)   
Oh Lucy, I am so sorry you are having to deal with this. I just can't believe that your Dr. will not prescribe you pain relief anymore. How can they get by with this? Then the smart alec remark regarding the tylenol.

I sure hope you can find another doctor. I know how hard it is to find one that is willing to treat the pain. Have you checked out any of your options? I wish I could be more helpful, I just have no idea what you can do.

I will keep you in my thoughts and prayers. I sure hope you can find some help with pain relief soon. Keep us posted and take care.
Gentle Hugs,

Fibromyalgia, Chronic daily headaches, Migraines, Undetermined Auto-Immune Dysfunction (probable MCTD, sero-negative RA and ?), Trigger finger, Carpal Tunnel, Cubital Tunnel, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Celebrex, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Regular Member

Date Joined Apr 2011
Total Posts : 291
   Posted 10/13/2011 6:52 AM (GMT -6)   
Couldn't read and run.  Just wanted to say how sorry I am that you're suffering so.  I had colitis as a teen (now have a jpouch) and know the stomach pains.  It's awful.  Doesn't seem right though that your dr is just leaving you with no pain meds or treatment.  I'm with others...find yourself another dr who will help you.  No one should have to suffer so. 
Ulcerative Colitis 1988, had colon removed and now jpouch
Now sufer from sacroiliitis and inflammation of piriformis muscle causing sciatica like pain during flare ups. Joints very bad...take celebrex when needed.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 10/13/2011 9:09 AM (GMT -6)   
I hope you can find another doctor soon, one that'll work better with you...
So very sorry about what your going thru and hope it gets better soon...
Thinking of you...Prayers...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Heather Lynn
Regular Member

Date Joined May 2011
Total Posts : 283
   Posted 10/13/2011 11:10 AM (GMT -6)   
Lucy, your story is awful and to me the new PM clinic rules make no sense at all.

The max on Tylenol is 4000 mg a day - if you don't take more than that your liver should be fine. I have talked to my PCP about this, as I usually take close to the max dose every day when my pain is flaring.

I would look up the name of the HMO's medical director and write him a letter. State which pain clinic you go to, what you have been told the new policy is, and how this has affected your pain and your quality of life. Ask if this is truly what was intended when they implemented this policy, and if you have any other options to get the care you need. I feel this couldn't possibly be the intended effect of the policy.

There are recent studies showing that in some people, narcotics induced more pain (narcotic induced hyperalgesia), but sometimes narcotics ARE the most appropriate method to manage pain. The holistic stuff helps chronic pain, but it's not the whole answer.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 10/13/2011 1:12 PM (GMT -6)   
Lucy, I know exactly the stomach/bowel pain you are going through having had Crohn's for 22 years. Luckily mine stopped when I had an ileostomy done when I was 20yo but the 3 years prior to this the pain was intolerable and in those days GIs didn't believe in rx any pain meds for it at all. I hope that you find a solution soon as being in pain is not fair when it is no fault of yours.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 10/13/2011 5:51 PM (GMT -6)   
Lucy I felt so sorry for you after reading your plight. Please try to ask your pharmacist about another pain clinic or doctor that you can go to.

Keep us updated on your progress.

I will pray for you
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

Veteran Member

Date Joined Oct 2009
Total Posts : 5028
   Posted 10/13/2011 6:17 PM (GMT -6)   
Your insurance company is supposed to be able to tell you other doctors who accept their insurance.

Veteran Member

Date Joined Dec 2007
Total Posts : 1235
   Posted 10/14/2011 7:58 PM (GMT -6)   

Have you talked recently to another GI doctor? The reason that I am asking is there have to be other options available to you for treating your condition rather than toughing it out by taking more and more tylenol to get through the day.
I was told that the maximum daily intake of tylenol for someone taking it daily was no more than 3 grains or 3,000 mgs and it was strongly recommended that they take even less if at all possible.
I took tylenol and motrin by the handfuls before my first back surgery-and got chewed out by the physiatrist about I would do as someone above me suggested, write a letter to your HMO CEO and ask them what the new policy is, and what they intend to suggest you do to get better pain relief since they removed the one option that was helping.......
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis
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