Wellcome our new member LOUIS III

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White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 10/14/2011 12:31 AM (GMT -6)   
LOUIS III
Welcome to Healing Well Chronic Pain Forum, to avoid confusion and to get a better response to your post I took the liberty of moving your Post that was on a very old thread and started a new one, for you! I think you will find that this forum has some of the most caring and compassionate people that you will find any where on the internet! I do hope you will stick around and become an active member of our family.
 
 
White Beard
 
Here is LOUIS III Post:
 
STAYINGAFLOAT,MY GOD!!!
Reading your blog was almost like reading my own biography!! I started with a minor burning behind my right shoulder blade when I was a sophomore in high school, more of an irratation after sitting in the same position for a long time. I was in multiple sports and at the time the Dr said it was probably from starting to lift weights before I was done growing. It has been back with a vengance for the past 7 to 10 years. For the last 3 years it has taken over my life. Everytime my Dr sent me to a specialist, I would explain my symptoms(blow torch on my shoulder blade, no feeling on my skin oaround the area of the burning, back of my head is numb in the morning, at least a30% loss of strength in that arm and shooting pains down my back and up my neck and sometimes down my arm), and they would send me for an MRI of the shoulder area and xray. The first time they found my collar bone had ahook that poked into my joint and 6 bone spurs. He said with surgery they could clean up all that and it was probably me using my arm wrong trying to favor the shoulder that's causing the burning. After following the rules of pt to the "T" after a year I told him it was still there and he said it was my mechanics and that it would take a long time to for the burning to go away but asured me it would. A few years later when I just couldn't take it anymore my Dr sent me to a shoulder specialist who was the best and all the pro baseball players get reffered to him. After the mri and xray he found a small tear in my cuff, bone spurs, and impingment. I aked him if it showed anything around my shoulder blade, I felt like I was blown off and he assured me it was my mechanics. After that surgery, I did the whole pt thing and the burning was worse. When I was calling and speaking to the nurse about the amount of pain, she acted like I was lying and said she had the surgery and I should be fine by now. I could tell after a few of these conversations she assumed I was calling to try and get more pain meds. I went back to my Dr and he sent me to a muscular-skeletal specialist who did the EMG tests and a few others that I dont recall. She first did the Trigger point shots which she did 3 times, and after each session I got maybe a few days relief, if that. She did say after the EMG tests that there was some nerve damage and a lot of tiny dead muscles around the blade which she said probably died from the nerve damage. After a few visits and another round of pt she sent me to a pain clinic. I forgot to say that the last specialist tried about every narcotic med out there and ended up on the Fetenal patch, which I quit using because of all the potential side effects. So when I went to the pain clinic I was using Percocet and that's it. The pain clinic tried an anti immflamatory with augmentin along with the Percocet. Which made me sick and didnt really add any relief. They then performed nerve obliteration which was very painfull and I got a little relief for about a month before it was in full force again. My Dr now ordered a neck xray and found that all my discs in my neck are bulged. He said that maybe this is causing the nerve damge that started all this in the first place. So now I am waiting to start another round of pt to see what happens. He currently has me on Naproxen, Diazapam, and Percocet. It doesn't do much but gives just enough to get up everyday. By taking the Diazapam and Naproxen at bedtime I can sometimes get up to 4 hours of sleep. I was so excited to see your blog and maybe even find out about some Dr.s or procedures that my place isnt using or doesnt want to do. I am sorry to hear about your situation because I know first hand that it seems impossible to live with this sometimes. I don't think the Dr's seem to understand that this hurts 24 hours a day and all you have are bad days and worse days. I thought I was alone the way the Drs react. This has affected my whole life and I dont know whats worse the pain or being judged for taking pain meds by my family. Anyways I know its hard and its hard to act like your not depressed and miserable. I relate it to putting on a costume when I go to work to cover up the way you feel on the inside. MY regular Dr and nurse are very supportive and I am lucky for them because I dont have much of a support system at home. Well I hope to hear back from you to see if you have gotten any relief and what they did or suggested to get it. If I recieve anything new that even works a little bit I will be sure to share because I know what you're going through and if your like me, Its hard to believe that I have to go through the rest of my life feeling like this and dont know if I could. I forgot to add that this showed small signs of being when I was sixteen and I am 39 now.
Good luck in the future and hope to here any input you might have. thank for your time

Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 10/13/2011 11:58:02 PM (GMT-6)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 10/14/2011 12:49 AM (GMT -6)   
Louis III

I am kind of surprised that they didn't check your neck in the very beginning! No I take that back, when I first started having problems with my arm, it felt like I had hit my crazy bone and the pain was hot at searing running down from my elbow to my hand and for many many months they kept checking my elbow and shoulder. Finally they did a myloegram and then an MRI of my neck and they found a masssive herniated disk at C=6/7 and that was causing all the intense pain in my arm. It was the nerve root that was being impinged by the herniated disk. After I had surgery and they removed the disk and took bone from my pelvis and fused the two vertebra together the arm pain was gone completely! But really for the length of time they treated you, they should have definitely checked out your cervical disk and nerves in your neck sooner! There is no excuse for it taking as long as it did!

Anyway I do hope that they can get a handle on your situation, and can help you! I am sorry that you have had to suffer for so long!  It is a real shame what you have had to go through!
 
  I do wish you well and hope you finaly get some relief!

Good Luck to you

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 10/13/2011 11:56:51 PM (GMT-6)


CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 10/14/2011 1:03 AM (GMT -6)   
Louis, welcome to Healing Well.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 10/14/2011 8:01 AM (GMT -6)   
Louis, Hi there! Welcome to our online family.

Hope you find relief soon. I will pray that it happens.

Betsey
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 10/14/2011 8:53 AM (GMT -6)   
Welcome aboard. You will really enjoy your stay here. Everyone is so caring and understanding. Keep on posting as we do care about you.

Suzane

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 10/14/2011 6:06 PM (GMT -6)   
Welcome Louis to our family. I hope you find the relief that you need really soon. Take care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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