Sandi - sorry, because I know you're trying to be helpful... I've got a 40mL pump (and yes - I've been a member of Pumpsters since before I got my pump, but thanks :)). As far as I know that's the largest reservoir available. Even if there was a larger one, my body is too small for larger hardware...going on size/bodyweight, I should only have had a paediatric pump but we knew from my trial that I would require high dosing, so ended up going for the large pump.
I know other meds can be used, which is why I used morphine as an example
. I've also had fentanyl with (I believe) low-dose ropivacaine as an epidural... the effects were no different to having the local on its own.
I'm not trying to be rude, but I've had CRPS of this severity for several years - I also spent a lot of my spare time researching, reading journal articles and I've got the medical grounding (I'm a vet) to be able to 'digest' them when the fog doesn't get in the way. When I say that we've tried everything, I'm not kidding. The only thing I haven't tried is the 'ketamine coma' as I said. And I'm not going there.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, oste
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio
Post Edited (CRPSpatient) : 10/15/2011 7:30:20 PM (GMT-6)