Posted 10/16/2011 8:18 AM (GMT -7)
Hi, I also have CD but my pain is not from the CD itself but from side effects caused by the Humira. I only took it for 6 months earlier this year and stopped it on July, it has caused muscle/joint pain that is currently being investigated by rheumy - but won't get any results for 3 months, and favourites are Lupus/MTD/polymyositis. My GP has been amazing and prescribed fentanyl patches for the pain as having short bowel syndrome due to the surgeries I wasn't processing the oral pain meds properly. Unfortunatey, as I also have to take codeine to slow bowel down that didn't seem tto agree with the fentanyl and so had to stop them, also tried butrans and had same problem, so am now on oxycodone to keep codeine and increase pain med level and gabapentin and amitriptyline to act as nerve blockers as they think probably have some nerve damage as well. TBH wish I had never taken the Humira as it is causing me so many moree problems that the CD ever did.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.