chronic pain patients who have crohns disease

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xandercage
New Member


Date Joined Oct 2011
Total Posts : 11
   Posted 10/15/2011 10:03 PM (GMT -6)   
Hello all!. I'm writing an informative piece of information that my doctor and I discovered or came up with last week. I have taken every CR medication known to man such as oxycontin, mscontin and Opana. I am a Crohn's patient with a severe case. I have had more surgeries than I can remember and lost count at 10. My pain has been out of control for at least 8 months now. My medication regimen included Remicade or Humira with one of the above following medications and Dilaudid IR 8mg. My pain has been at a high of a 9 on nearly everyday so recently I gave up and felt I could no longer take the pain. Well my mother and wife found another PM Doctor that is rated in the top 10% in the nation and the top 1% of the state of Texas. To top it off he is a very young doctor in his 40's. Anyway I met with him along with my wife and explained my situation along with providing all of my documentation regarding my past surgeries and testing. I told him that I was getting zero relief from the XR/CR medications and only getting relief from the 8mg Dilaudid Instant Release. I had been seeing another pain doctor that was just getting me by so he thought and said that he was already giving me alot of medixine for my pain and would not go up on it. This new PM Doc told me that he believed that my body was not processing the XR/CR Medication as a normal person would because of the Crohns disease. He went into further detail and the mechanics of how the digestive system processes the XR pain meds vs the IR meds. He told me that he wanted to prescribe me  the fentanyl transdermal patch as this would bypass the stomach/digestive tract. To make a long story short he has given me the 75mcg patch, 8mg dilaudid ir every 4 hours as needed, along with fentora; a wafer made of fentanyl that is used for pain. it is 400 mcg. He told me that the fentora could be used for emergencies when my pain becomes extreme 8 or 9, to keep me from having to go to the emergency room. This doctor has so far been a god send and it is no wonder he is rated as such.
 
In conclusion it never crossed my mind that my problem was the xr pain meds and the way my stomach digested or processed them. My advice for anyone with crohns is to keep this information in the back of your mind if it's not working out with you taking the Xr medications.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 10/15/2011 11:24 PM (GMT -6)   
i know what you mean- my pain doc and i discussed the fact that i can't take things like oxycontin bc my body will get rid of the pill before all the meds can help. i'm on a lot of oxycodone. we're going to start the fentanyl patch as soon as it cools off a bit so i'm not sweating so much
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

xandercage
New Member


Date Joined Oct 2011
Total Posts : 11
   Posted 10/16/2011 12:52 AM (GMT -6)   
Im a gym rat and a bodybuilder, I have been sick this week so Im wondering how this is going to play out whenever I start hitting the gym next week. I can tell you that I have gotten some of those adhesive waterproof pads and applied them over the fent patch. Does anyone know if brand duragesic can be aquired anymore? All I can find are the generic Mylan ones.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 10/16/2011 9:18 AM (GMT -6)   
Hi, I also have CD but my pain is not from the CD itself but from side effects caused by the Humira. I only took it for 6 months earlier this year and stopped it on July, it has caused muscle/joint pain that is currently being investigated by rheumy - but won't get any results for 3 months, and favourites are Lupus/MTD/polymyositis. My GP has been amazing and prescribed fentanyl patches for the pain as having short bowel syndrome due to the surgeries I wasn't processing the oral pain meds properly. Unfortunatey, as I also have to take codeine to slow bowel down that didn't seem tto agree with the fentanyl and so had to stop them, also tried butrans and had same problem, so am now on oxycodone to keep codeine and increase pain med level and gabapentin and amitriptyline to act as nerve blockers as they think probably have some nerve damage as well. TBH wish I had never taken the Humira as it is causing me so many moree problems that the CD ever did.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 10/16/2011 2:47 PM (GMT -6)   
Hi and welcome to the chronic pain forum. I have had Duragesic patches a couple of months because my insurance wanted me specifically on the name brand, so yes, they do exist. My pharmacy had to order them for me because they don't keep the name brand stocked, just the fentanyl. I wish you good luck with the patches. They do a pretty good job controlling my pain.

I also use the clear adhesive to keep mine on. Take care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

xandercage
New Member


Date Joined Oct 2011
Total Posts : 11
   Posted 10/17/2011 2:37 AM (GMT -6)   
hey loretta i was actaully a member on this forum for sometime when you were going through a problem with pain several months back and encouraged you to seek help. my old user name was denoli82 but i couldnt remember my password and it asked me to enter my email address but it could not find me so i had to sign back up again. thanks for the post loretta. the mylan patches i am taking now which im only on my third one so well see how it goes.
Medications for Crohns, Pain Medications, Medication for Miagraines, Other Medications
Surgeries Inc. 10+rectal fistula, rectal abscess, penile abscess-all caused major nerve damage, thrombose hemmorhoid and hemmorhoid removal, ruptured disk L4L5S1, Hiatal Hernia

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 10/17/2011 3:09 PM (GMT -6)   
Your welcome Xander. Thank you for your support back when I was having such a painful time. I'm glad the Milan patches are working out for you.

My pharmacy filled my prescription this time with patches that are huge and it take two Tegaderm to cover them. I don't like them. If this is the normal, I won't be happy. :(

Take care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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