Surgery tomorrow, terrified anes will give me meds I don't tolerate. Too many bad experiences.

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Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 10/16/2011 6:32 AM (GMT -6)   
I've been waiting since last December to get shoulder surgery.  It's been put off for sinus surgery to get rid of infection, spine blocks for severe pain, then surgery for appendix abscess, and colon deteriorated a week later.  I've been given meds I refused in writing and verbally and suffered severe myalgia for 5 days, memory loss and lots more.  I can never get adequate pain medication post op. 
 
I have a typed note with the meds I refuse in red at the top.  I've very briefly listed my conditions - post-polio which affects breathing, coughing and swallowing, fibro, chronic pain from scoliosis and deteriorated spine, etc.  I've got a two page list of my meds reactions, sensitivity to sulfite.  But this has been ignored in the past.
 
I was informed on a paper that I would be getting general anesthesia.  Then the doc's nurse said I would get interscalene block.  I talked to the anesthesiologist who said interscalene and probably general also.  She said she knows all about me, although I've never had surgery there, platitudes about taking good care of me.  I'm scared of not being able to breathe because of the polio, getting my throat further wrecked from endo tube with the general, not getting pain meds when I need them because of chronic pain meds tolerance, being given meds with sulfites because they don't know it's in them.  I need Valium, small dose, for muscle relaxation in spine right after I get there to be able to lie on my back.  I have to arrive 2 hours before surgery.
 
I'm scared to the point of shaking today.  If I go in appearing anxious they will ignore me - it's happened before!  I'm not afraid of the surgery, just bad meds, lack of pain meds.  I anticipate severe pain from back while getting shoulder block.  Suggestions of how to relax? 

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 926
   Posted 10/16/2011 7:46 AM (GMT -6)   
Sorry you are so stressed. If you are allowed, then maybe some valium or another benzo to help with the stress today?

Alternatively, try to fill up the day with some good stimulation. When I am too stressed, I can't either concentrate on a book or tv. But maybe give those a shot. If there is nothing on T.V., there are lots of "legal" sites online (Hulu, etc.) as well as many that are not --- but I probably can't post them, though you can find them via google.

If nothing looks good , how about calling a friend and playing some cards or a board game?

Soothing music is another option. I use Pandora.com through the day while working. They are free and have a vast repository of music.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/16/2011 9:14 AM (GMT -6)   
Any way you can get out today, maybe go to a movie...
Cogito, had very good suggestions...music can help...
Many well wishes for you on your surgery and prayers....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 10/16/2011 11:46 AM (GMT -6)   
Hi Alcie,

I'm very sorry you are so stressed about the surgery. I get the very same way and you are so right about them ignoring you when you show stress. I have had it noted on every "new" dr's apt lately...pt was very anxious or pt was very nervous and pt displayed significant anxiety. It looks bad, but I guess I should expect it by now. I too am very anxious about meds because the wrong ones make me feel soooooo sick and I have such severe reactions to them. I also realize that other people think this is just a panic attack and not to worry, but the reactions are very real.

I can only suggest the benzo if you have some on hand (for today). I would ask assisting nurse/physician for something for anxiety before the procedure (if possible). You are certainly not alone here! I would not, however, take any benzo's on my own tomorrow at all because they can affect your breathing and you certainly don't want to do that.

I also understand the med issues for pain control after the procedure. I had the same problems the last time I was in the hospital. It was fine for a little while and then the Dr signed off on my med list I gave them so they would only let me have the meds on my normal daily schedule. Of course, this did not control the pain of a procedure because my body was already used to taking them. They also stuck strictly by the (4 four times a day) being exactly every six hours....(HELLO, you don't wake up in the middle of the night to take meds if you take something for sleep). It should be considered during WAKING hours. Please make sure the DR orders the correct meds before they sedate you or you will have a really hard time getting it all straightened out after.

Anyway, I wish you well and hope you find relief from the anxiety and from the post-surgery pain. I also hope the surgery is a complete success with a quick recovery rate!

Best of luck!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 10/16/2011 2:18 PM (GMT -6)   
Alcie

You are in thoughts and prayers starting today. Try to destress...I know it so hard...i become a basket case!

Betsey
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 10/16/2011 2:35 PM (GMT -6)   
Hi Alcie First of all, you need some ((((((hugs)))))) I know what anxiety is all about. I'm sorry you're so stressed. I would advise trying to get the surgery off your mind today by playing games or watching a movie. As some of the others said, relaxing music might help.

I wish you low pain after your surgery and I will be praying for you.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 10/16/2011 6:04 PM (GMT -6)   
Alcie
 
I can not begin to tell you how much I empathize with you!  I wish I could help relieve your fears, but I know exactly what you mean! You want to believe and trust that they will do the right things for you but through experience, you know deep down that they probably won't.  I understand completely!
 
 I thought I had eveything covered last year for my surgery because of all the problems I had the year before with pain control with my surgery then. But it turned out even worse for me, now I am completely like you, and that is one of the biggest reasons I refuse to have the total Hip replacement that I am told that I need!  I wish I had something to say to relieve your fears and miss trust, but I am sorry,... I don't!!  
 Honestly Alcie, I read your post and I can feel your feelings, and sense your fears! For me I think it is bad enough knowing so much about all this medical stuff, ( being a nurse, even if Im on disability and haven't practiced it in awhile) Really....ignorance is to a certain extent truely bliss. Somethings that happen while being a patient just scared the pants off me! And I really do make a terrible patient, I want nurses to wash their hands and wipe their stethescope with a alcohol wipe before it touches me, and a host of other things. I can not begin to tell you the lectures I gave my nurses the last time I was in last year!  It really was bad!! I will not even go into the lack of Pain control, but let me tell you,  I know  and completely understand your fears about that,  and I think and feel your feelings are completely legit! I do not blame you a bit for worying about not having your pain adequately controlled! It honestly makes me cringe for you when I even think about it! . I will keep my fingers crossed and my toes that they keep you comfortable!
 
Well I guess I have not been any help to you, smilewinkgrin but just know that you are not alone, we are all here suppporting you!
 
I do wish you well, and good luck to you!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 10/16/2011 7:15 PM (GMT -6)   
Thanks so much to all for the kind thoughts, prayers, and advice. I took the tractor out with the scoop and filled potholes in my private road, then went with hubby to son's house and had a nice brunch with the grandkids. Hubby has to work tonight so the anxiety is catching up, but for the day it was gone. I have sleep meds to take, will take a half of a Valium to ease the back strain from the road work. At least I got some help with the shovel work.

I hope I don't get the anesthesiologist I talked to on Friday, but will make the best of it and try to not appear anxious. Like White Beard, I know too much. I wasn't a nurse, but did work in pharmacology and was an ICU tech for a while. I'm especially concerned with the 100% chance of the nerve block causing paralysis of half the diaphragm and possibility of worsening my weak esophagus, since I already have problems from polio. Long term effect of polio is nerves start dying later in life.

I fail to understand why doctors don't recognize that chronic pain patients can't just go home after surgery on the meds they came in with. If requesting more doesn't work I plan to go to the ER or call my PCP or pain doc for help, as you suggested.

Again, thanks for the support. I can't tell you how much relief it makes to know someone cares.
Alcie
 
 
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