I sometimes waffle between not wanting to take anything on a regular basis to knowing for sure that pain medication is the best thing I could do for myself. And And there's also the nasty physical affects that being in pain can cause on our bodies. Plus I need and want to remain independent.
There is a wonderful book my doctor told me about
, called, How To Make Our Medicines Safer. (I think I have that right). It's all about
how many people end up with much higher levels of medicines in their body than another person who's taking the exact same medicine. Everything equal their blood plasma levels are way different, causing many problems for them.
.... I wonder why they even call it "side" effects when it's really just another effect of the medicine.....
Years ago when I was trying many different pain meds and having bad side effects I met with a doctor who specializes in medicines and how they effect people and how their effect when combined with other meds. (I can't think of his title). He told me that many people can only tolerate one pain medication and that's why they make so many different types.
I'm often afraid to take a new pill because of scary past experiences. Some of those could have been because the doses weren't correct for me, some aren't made to be taken together, and others are just because I'm me.
But I have no shame in taking pain medicine. I know I need it if I want a life. I would be happy to tell the world about
how I need them, but we can't even tell our neighbors because of the stigma associated with them, or they might be interested in getting their hands on them.
It's true for me that because things aren't going well I get on the boards, and when things are going well, I'm busy living my life doing other things that I couldn't do before then. Also because of my health conditions my time is limited no matter how well my pain is managed, so I have to pick and choose what I want to do with it.
There are SO many things I want to do in life that when I'm functioning I'm out trying to do all of them. (And boards are not meant to be a substitute for face to face interaction when-ever possible IMHO)
I think is going to be a rough time coming up soon, and I don't have a physical support system around me. No friends or family except long distance telephone. This is largely because I recently moved to another state and ended up in an condo complex that I call the Ghost Town.
There's 200 units only 6 of them are occupied at one time because they're vacation homes. I can't even find a good coffee shop to hang out in. This was not what I had in mind when I moved here.
Anyway, I knew I needed to try and create a virtual support system so that I don't feel so alone if things go south. I'm also trying to learn how to reach out to others and not keep all my problems to myself.
(Phew. If anyone has read this far I'm grateful.)
PS: ( I've read that one class of pain medications is more energizing than others, they call it a side effect, personal experience says I like that one.
Since 2001 I've been DX'd by many specialists: Fibromyalgia, Small Fiber Neuropathy, CRPS (right foot), Tarsal Tunnel Syndrome, DDD, Arthritis, Chronic Fatigue Syndrome, Myleopathic pain due to spinal cord compression, & Central Pain Syndrome. Compression Fracture L1 2003ish. MVA years ago, sustained a compound fracture Lumbar area.