Spasmodic Torticollis- Botox Not Working!!!

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New Member

Date Joined Oct 2011
Total Posts : 2
   Posted 10/19/2011 7:09 AM (GMT -6)   
Hi everyone, thanks for being there. I'm writing on behalf of my dad who has suffered fom this condition for about 40 years. He had a 9 hour operation I think in 1970 and it helped for many years. However, a few years ago the pain started again. I suggested Botox treatment and he began with the shots on a 3 monthly basis about 2 years ago. They have provided no relief for him whatsoever. He is not immune to Botox as some people are as he occasionally has side effects. Every 3 months he gets his hopes up only to be dashed once agaain. I don't really know what I'm asking for here but I was just wondering if anyone had any comments about similar experiences or any advice about what to do. Many thanks, John.

Regular Member

Date Joined Jun 2009
Total Posts : 256
   Posted 10/20/2011 10:09 AM (GMT -6)   
Sorry to hear about your Dad John....

I had been told a had a bit of cervical dystonia from all my neck problems... I was constantly holding my head to the left.... Botox helped me tremendously.... perhaps he is not getting enough units...

I saw this recently on TV and thought you may like to see it... if you haven't already:

Best wishes
C3 through C7 right open door laminoplasty, C2 through C10 hemilaminectomies, C2 through C7 right forminotomy, and left C5 through C7 foraminotomies, C3-C5 structural rib allograft and local vertebral autograft & C7 with the same allograft & local verterbral autograft & Vertex instrumentation C3-C5

New Member

Date Joined Oct 2011
Total Posts : 2
   Posted 10/20/2011 11:46 AM (GMT -6)   
Hi Draka, thanks for the reply. I can't watch it in the U.K. but I think I've seen it before. My dad has just had his shots again in a slightly different place but the doctor said if it doesn't work this time he'll have to try something else. What he's thinking of I've no idea.
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