Hi everyone. Well... I was released from hospital Tuesday last week and it lasted such a long time. I wasn't doing well at all, getting horrendous pain, nausea and vomiting whenever I try to eat, so first thing Monday I saw my GP and also rang and left a message for my GI doctor. He admitted me again on Monday afternoon.
Plan was to put the NJ tube in on Tuesday morning. They knocked me out, then found that the do scope was too big to use on me. So no tube. Last night my GI spoke to a radiology doctor who assured him that he was experienced in placing both NG and NJ tubes under fluoroscopy. They took me down to radiology this morning to put the tube in, radiology doc says hang on, never done an NJ tube before, not happy trying now. So still no tube.
Meanwhile, dietician comes in, LOOKS AT ME, says "I assume the tube is in place and ready to go?" Ummm? So I told her it was and it was invisible
she picked up her things and walks out again. I've met her before, didn't like her then, there's no way I'm going to deal with her now...stupid twit of a woman...how can you miss the fact that someone doesn't have a nasal tube in place? Asked my GI tonight if there were other dietitians in the hospital because every time this one
opened her mouth I felt like punching her. He said he'd find out and that he'd never spoken to this one, but now he'd not be able to because all he'd be able to think was "Laura wants to punch you so I don't like you". At least he's supportive.
Plan now is to try to do it under fluoroscopy tomorrow, but I'm really worried. I've had a face flare with my CRPS, and I'm not sure how easy or will be given that I broke my nose last year. If it can't be placed tomorrow they will take me to the hospital across the road (bigger, more facilities) and place under GA via a scope.
Pain is still rubbish...CRPS is flaring and my back isn't healing, but I'm on morphine and Oxy while I'm in here and I think it's controlling as well as anything is going to.
Will see what happens...
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, oste
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio