Can't tell where the pain is coming from

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Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 10/19/2011 8:07 AM (GMT -6)   
Ugh, I am in the midst of a pain flare, and honestly, I'm not even sure what is causing my pain at this point. I have the usual back pain and more intense hip pain than usual. But I also am having pelvic pain/extreme soreness that seems muscular rather than endometroisis related. I have pain in both buttocks and the backs of my thighs (probably referred from my back) and shooting down the front of my right leg (one of my regular endo symptoms). I guess I'm just venting, because I feel like this is the perfect pain storm - all my conditions working together to cause more pain than any one alone.

I see my back guy/PM next Monday thankfully. The challenge is to get through this week of sitting in this awful office chair, and managing to not be super cranky with my officemate who is really not pulling her weight at work. I want to just cry and tell her I need a break and I need her help, but I can't do that because she's not even in the office yet and it's after 10.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

Post Edited (Heather Lynn) : 10/19/2011 8:23:20 AM (GMT-6)


Mysti
Regular Member


Date Joined Jul 2011
Total Posts : 101
   Posted 10/19/2011 10:22 AM (GMT -6)   
Heather Lynn, I am so sorry for your increased pain today. How well I remember those days of gyno and endo problems (pre-hysterectomy 5 yrs ago). As I'm sure you know, endometriosis can have a plethora of symptoms and can change with the weather or a number of unknown causes. Anyhow, I know it's miserable and I remember having to work for many years with that kind of pain.

The thing that helped me most was heat...and ibuprofen. I know you're at work, but can you perhaps get some of those ThermaCare stick-on heating pads for work? I realize your pain is in multiple places, but actually I found that even applying the pad in one or a few places, made me feel better. I also got one of those microwavable "Bed Buddies" from Walgreens and place it on my lower back....it seems to help my legs too.

I hope you get some relief soon. Keep us posted...

(((((HUGS)))))
DDD, 3 bulging lumbar discs, bone spurs, facet joint arthrosis/sclerosis, osteoarthritis, possible fibromyalgia (my dr's are telling me that I "most likely" have fibro but won't actually diagnose it...)

Mysti
Regular Member


Date Joined Jul 2011
Total Posts : 101
   Posted 10/19/2011 10:28 AM (GMT -6)   
Heather Lynn,
I also wanted to remind you to be sure and not sit for too long at a time. This can lead to pelvic congestion and more pain. I know you probably know that, but just wanted to give you a gentle reminder. I realize when you're working, time can get away from you. So get up often and move around, walk around the office or if possible, go outside for some fresh air.

And another thing, be sure and drink lots of water and limit your sodium so you don't get the additional fluid retention that is common with endo and gyno issues. Sorry if I sound like a mother hen....but I know you are young and I guess it's just the "mom" coming out in me....plus my many years working as a nurse.

Take care...
DDD, 3 bulging lumbar discs, bone spurs, facet joint arthrosis/sclerosis, osteoarthritis, possible fibromyalgia (my dr's are telling me that I "most likely" have fibro but won't actually diagnose it...)

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 10/19/2011 2:28 PM (GMT -6)   
Hope your feeling better soon, if not you might want to see if your pm doctor can get you in soon...
well wishes and Hope you can get a low pain day soon, keep us posted on how your doing...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 10/19/2011 2:55 PM (GMT -6)   
Hi HeatherLynn, vent away, thats what we are all here for, either venting or listening, then venting, well you get the picture.  I had an appointment with my pm today, my regular monthly visit.  I love this man and his pa, I see her more than I see him, but if I have an extra problem, he is right there.
 
Ok my turn to vent, I have bursitis on both sides at my hips.  I have had enough injections, after a while they become the problem.  My problem is the side I sleep on and have been all my life, I cant lay on that side for more than 10-15 min.  Then I turn on my other side, I can only lay on that side for 20-40 mins.  This is reeking havoc on my sleep, or maybe I should say my lack of sleep.  I am forced to lay on my back, I have never slept on my back, it also hurts alot.  Forget about my stomach, no can do.  So the solution, valium, I am hoping it works, cause this lack of sleep is really messing me up.
 
Well, sorry I am supposed to be comforting you HeatherLynn, I dont know what to advise you to do except ride it out I guess.  Please dont be angry, I hate to here those words from my family, but the reality is just that.  I will sent many  good thoughts your way, light a few candles and pray.  I hope you feel better soon.
 
Well I suppose I am done for the time being, please take care and I hope you feel better real soon,  Also, Mysti had some useful advice I believe, you can try it, she really seems to know what she is talking about.
 
Kat
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 10/20/2011 9:02 AM (GMT -6)   
Mysti, Chartreux, and NiNi, thank you for your words of encouragement. I was just so overwhelmed and at the end of my rope yesterday. I am feeling better today. The pain is a little better, but more importantly I feel like I can manage it and that I have a plan for my PM.

Mysti, we all need a little mothering sometimes. :) You are right, remembering to take good care of myself is very important. I find heat helps best with the endo pain, ice with the hip pain, and a mix for the back pain. I totally forgot about those stick on heat things, great idea.

NiNi, I have bursitis in both hips too. Woah, painful! I find using LOTS of ice helps - 30 minutes 2 or 3 times a day.

I see the back guy/PM on Monday, and I've decided I need to advocate for myself a little. I'm going to pick up copies of my labwork from the PCP, and ask for x-rays. In the year I've had these back problems, I have never had any imaging, so I think it is time.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma
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