help with pain meds

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splat980
New Member


Date Joined Oct 2011
Total Posts : 1
   Posted 10/22/2011 7:54 PM (GMT -6)   
I am 32yrs old. I have terminal cancer for 3 yrs now I have taken oxycodone, percoset,methadone, fentanal, morphine, hydrocodone. I take handful amounts. Nothing works I don't even get tired from it. What else can I do? I am I'm so much pain and I'm dieing please help me. I would get heroine if I new how. I don't want to do that but I'm hurting so much

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 10/22/2011 8:33 PM (GMT -6)   
Wow, I am really sorry to hear about your condition and your pain. I really do hope you get some relief.

Is there any way you can get some kind of hospice care? If not, do you at least seen a pain management specialist? Regardless of the terminal condition of this or not, you still deserve some serious pain management help. They should really be hands on with it.

I'm not sure what else to recommend in terms of specific medications, but it really sounds like you need some intensive care so you can improve your quality of life! Please keep us updated and let us know any changes!

Post Edited (misterkatamari) : 10/22/2011 7:58:41 PM (GMT-6)


NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 10/22/2011 8:51 PM (GMT -6)   
You must be associated with a hospital, can you get the meds introvenously, I believe this might help as they work much quicker and you can probably get larger doses.  The hospice sounds like a good idea.
 
Good luck, many prayers to you
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9255
   Posted 10/22/2011 11:47 PM (GMT -6)   
Hi Splat~

And welcome to the CP forum. I' glad to meet you but I sure do wish it were under different circumstances. I do agree with the Hospice ideas above. To receiver Hospice care you have to have a Dr.'s signature on the paperwork. This also required the doctor to state that he/she feels you have 6 months or less to live.

We had my father on Hospice and they are so wonderful to work with when it comes to pain management. There's no shortage of supply and fast. I had to explain to my brother, who was worried about dad getting addicted to the stuff, that in his condition it made no difference. His cancer pain was off the charts and my/our concern was giving him all of the relief we could. He lived just a few weeks on heavy doses of medication but we were at least able to give him come comfort from the pain.

Try talking to your doctor about something better. There is a lot more out there than what you are taking and if someone is terminal the right doctors are willing to bring out the 'heavy duty' stuff.

Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis in Neck/Hands/and slowly meandering around other places....and other maladies as discovered.
~~~~~
It's kind of fun to do the impossible.
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misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 10/23/2011 12:26 AM (GMT -6)   
Thanks for elaborating on that, Chutz. My mother had cancer too, but we didn't really receive hospice care in time. I know it would have really helped her, because she was in so much pain and nothing she was taking was helping!

I wasn't aware that you needed to have a doctor state that you have 6 months or less to live, but I would assume that if Splat were to look into it--he could get that care. Plus, lots of people think hospice care means you have to live in a hospital--and that isn't true nowadays, at least in most cases. Lots of people want to receive the care at home, so I hope you can find something that fits your situation, Splat!
--Patrick, aka Misterkatamari

I'm active on several boards. Main issues are: Chronic Pain due to Scoliosis & 2 Herniated Discs, possible DDD and arthritic facet joints. Also active in the Depression/Anxiety boards. Meds include: Prozac 40mg, Xanax .5 mg, Tramadol 50mg

“We must let go of the life we have planned, so as to accept the one that is waiting for us.” - Joseph Campbell

bayoub2
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Date Joined Sep 2006
Total Posts : 2861
   Posted 10/23/2011 1:02 AM (GMT -6)   
Hospice are angels on earth...they tend to our ill loved one but sat and talked to us about what Mom was experiencing, what to expect.. Call doc to see.

You have apparently built up a tolerance to pain meds.You definitely need a pain doc/anesthesiologist for iv infusion...hospice and home health care ha ve people that do only that.

I am sorry for your pain your diagnosis and your age. Have you done any rad/chemo. Is surgery possible at this point? My hub was given 2 years back in 05 and he's still like a workhorse, but his pain is moderate. You have to get a pain specialist whoi will help you find a meds regimen that provides relief

Take care ket us know
"We never realize how strong we are, until being strong is the only thing left"
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Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 10/23/2011 10:33 AM (GMT -6)   
Hospices are businesses. There are good hospices and bad ones. Some just give morphine to the point a person stops breathing, some give just what's needed, also have home care like help bathing, dressing, etc. You have to talk to your doctor about what you want. Learn the language. Being made comfortable can mean more morphine. You have to insist on not just more pain meds, but being COMFORTABLE, as my mom put it.

My mother was on hospice for about 3 years. Everyone did expect her to die in a few weeks, but she was a tough old bird. Her care was monitored closely by my brother and I, and mom was aware enough to say what she needed. She had very little in the way of pain meds, but needed loads of heart meds. The care followed her from her home to assisted living and she had daily care later when she needed it.
Alcie
 
 

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 10/23/2011 8:21 PM (GMT -6)   
HI Splat,Sorry to hear of you situation seems the advice you have been given here is darn good!I'm rather shocked your not getting proper care! Iwould look into the options suggested here.I know most terminal cases are given morphine injections.I'm sorry your suffering so much and hope you tell your DR. that your current meds are not helping and see if homecare or hospice is available.Please don't think of using street drugs ,its not a option ,its unsafe. with any illness you have to be your own avocate,talking to your DR.and cancer clinic so they can set you up with what you need !Please take care From Michele
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