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Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/24/2011 6:58 AM (GMT -6)   
 
       Good morning All!
 
            I'm back, but will be a little slow for a while longer. Still not feeling well here!
   For some reason my back has been flairing again, and the Cymbalta seems to have taken a break in helping me. Maybe a increase in dosage is needed?
 
   Will do the best I can, and put off seeing the Dr as long as possible. I do not feel that a raise in the pain med dosage is the answer for me. Hopefully the Dr will be willing to try something else, beside more narcotic med's. I can't stand taking them!
 
      I had a good break, and topped of the weekend by celebrating our 5th year wedding anniversary. We both cleaned up, for a night out on the town. (Dinner & Movie) She was absolutely beautiful! wink
 
      Take care, and it's good to be back to support!
 
    SE wink
 
      I missed reading several of your post, but don't think I can catch up on all of it. Will do the best I can at this point and drive on. Hope you all understand. Chronic Pain sucks doesn't it! shakehead      
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 10/24/2011 7:02:00 AM (GMT-6)


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/24/2011 7:25 AM (GMT -6)   
Congrats to you on your Anniversary,,,and many more wonderful years together...
Maybe you should put a call into your doctor...Sure hope your feeling
better and getting better pain control soon...
Are you doing any Physical Therapy? Maybe time to try that or ultra sound treatments..
Just a thought...Hope your feeling better soon, many well wishes and Prayers
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/24/2011 7:59 AM (GMT -6)   

 

          Thank You Chartreux! wink   You are always there for all the members, and it is appreciated more than you know!

      I should go in, but I feel that he will want to increase my pain med's, and I really do not want that. I wish he would try adding Neurotin or something like that instead. It seems that I build up a tolerance quickly, and the only place is up on the pain med's...and then the cycle starts all over again. I get tired of it. shakehead

     I do PT at home, but it seems not to help much. The last time I was in, he mentioned the SCS unit, and I said NO WAY! He has also mentioned the Pump as well, but I believe we are a very long ways away from that, as I have not tried anything other than the Oxycodone products at this time, in combination with the Cymbalta.

       Stress is part of it as well, I'm sure!...I have a step daughter that is very close to going to Jr jail. Three charges,...Assault, Possession (Drugs),...and shoplifting. Her court date is coming up here in Nov. I keep all of my med's locked up tight! She can't be trusted at all for anything.

     Can you believe she assaulted her mother! mad   She was lucky I was not there when it happened!   

       So as you can see, life has been not fun as of late. Sorry to rant here, and I dont do it much, but it is needed today.

       SE


Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 10/24/2011 9:21 AM (GMT -6)   
Good am to you SE, I hope your wife assualted her back, I wish I thought one of my kids or grandkids would even think about raising a hand to me, if they did they better be getting ready to scratch there heads, or that will be the last time!!!!.  So sorry you and your wife are going thru all that, maybe some time in jr jail will do some good.  Maybe you can get her on that reality show "Scared Straight".
 
Ok enough of that, so glad you went out and happy, happy anniversary, I am sure your wife looke beautiful, you, well, lol, kidding ole buddy, I am glad you got to go out and have a good time.
 
As for neurontin, I am a big fan of it, it worked wonders for my fibro, so hopefully your doc will give it to you.  I am not having trouble with my doctor prescribing for me, its my pain in the butt insurance co.  They will approve the meds I need, but its such a hassle with the paperwork faxing this faxing back this and that.  Oh well  I suppose I shouldnt complain, at least I can get it eventually.
 
Please take care of yourself,
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 10/24/2011 1:07 PM (GMT -6)   
Hi Michael....Glad you had nice anniversary celebration. Sounds wonderful.

So sorry about your step daughter. Let us know what the decision is after her court date.

My husband is taking me to Gettysburg, PA this weekend to bring in another birthday for me. We will be staying at a B&B on the edge of the battelfield and it is haunted and then we dine at the -------House down the street another civil war era house that was turned into a restaurant and all the servers wear civil war dresses.Good food and romance, candlelight dinner. Looking fprward to it.

I am majorly stressed about my IME tomorrow and all my appts in preparation for my surgery. Im puffed up like a rooster and I forget to completly exhale. Shallow breaths. Never good.
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/24/2011 5:25 PM (GMT -6)   
Congratulations on that 5th anniversery.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 10/24/2011 10:38 PM (GMT -6)   
Happy Anniversary and congratulations Michael. I'm so sorry that your back is hurting so bad. shakehead You probably should see your doctor. I hope the stress lessens soon, so you can relax.

You take care. It's good to have you back.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 10/25/2011 5:10 AM (GMT -6)   
Have you ever tried ultram (generic is tramadol)? After using oxycontin 30mg every 8 hrs with oxycodone for bt pain, I still wasn't really getting the kind of pain relief I would have expected from such a high dose of narcotics. After 3 months of weaning off the narcotics I started using a mixture of tramadol & tylenol, then added baclofen into the mix. This has helped me more than the narcotics did and I don't get drowsy everytime I sit down. I also have been on neurontin for several years. Not sure if it really is helping anymore but when I first started it I saw a big reduction in the muscle spasms I was getting in my neck but no help in my lumbar area. Obviously it only helps when the nerves are affected.

I know everyone is different but just thought I'd throw something new your way. The tylenol is an anti-inflammatory and definately helps. Alot of people prefer an nsaid but to each his own.
---Jag---


DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3 & L-3/4, fibromyalgia, polymyalgia rheumatica

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 10/25/2011 5:49 AM (GMT -6)   
Welcome back, and congrats on your anniversary :)

Sorry again about your increase in pain, and the problems with your daughter. Am thinking of you.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/25/2011 11:55 PM (GMT -6)   
Glad to see you my friend! But do take any time you need to keep yourself the best you can. And that blushing bride of yours...she also is one very lucky woman!

Hugs to you both,
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Fibromyalgia, IDDM. UC, , Osteoarthritis slowly meandering around everywhere
~~~~~
The most exciting phrase to hear in science, the one that heralds the most discoveries, is not "Eureka!" (I found it!) but "That's funny..." ~Isaac Asimov

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/25/2011 11:58 PM (GMT -6)   
Thank you for all your replies! Still not doing well here, and now I seem to have a bad ear infection. I will see the Dr today for it.

Jag, I have tried the Ultram several months ago, and nothing! I don't even want to mention to my Dr, the increased back pain when I see him today. I'm just sick of it all!

Maybe I will get lucky one of these days like Cogito's father, I just read about on another post. I can only hope!

Take care all, and again Thank You!

SE wink

Hello Chutz! It's good to see you again as well! I'm a little slow returning here, as I'm still having a few problems. I will be ok, I suppose! Life goes on!
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 10/26/2011 7:38:53 AM (GMT-6)


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 10/26/2011 4:36 AM (GMT -6)   
SE, I'm just throwing this out there to try to help you figure out what is causing your increased back pain. Are any of your vertebra sore to the touch, like they're bruised? Do you have muscle spasms that run along your lower back and sides making bending sideways painful or anyways sore? If so you could have facet joint issues. You waited along time before having your fusion just like I did. Maybe your facet joints were rubbing together all that time allowing the cartlidge to wear down.

Let me know.
---Jag---


DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3 & L-3/4, fibromyalgia, polymyalgia rheumatica

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/26/2011 5:12 AM (GMT -6)   
Morning Jag!

Vertebra are not sore to the touch, and don't feel bruised. No muscle spasms either. My pain is in the same place as before the surgery, except that it radiates outward toward the hips now. Dr says it's nerve damage and now involves the sacroiliac joint. The Cymbalta helped for about 45 days or so, and gradually went back to the same old pain. Not much pain laying down in bed, and that is where I spend most of my time when I get home.

As soon as I stand up, the pressure causes me pain. It feels like I was sawed in half, and put back together with screws and they did not get me aligned and tightened. I change out several cutters a day working as a machinist, and they weigh around 15 to 25lbs which does not help my cause. I also may change out several clamps (25 to 50) ….which involves bending over for long periods of time. I really cannot bend over much these days and have to squat down and lean over, to accomplish this.

So, it is work that is my demise it seems. The Dr does not want me working at all, and said I need to retire as soon as possible. We are very close to paying off our house, and that must be done first, before looking at SSD or retirement. Were working on it as fast as we can.

I have been on Oxycodone products for over 8yrs now, and I think that is part of the problem as well. It is something I will have to suffer through I guess. I do not think an increase on the current pain med's is going to help for very long, as I believe I'm building up a tolerance to it. It's time for a change in med's I suppose, but I really do not want another narcotic.

I will visit with him again today while he is checking my ear infection out. I'm still peeing all night long, and that is another issue. (enlarged prostate)

I suppose I'm being a little stubborn about my treatment for back pain, and I should know better, but at this point, I just hate everything at the moment. 24/7 pain really wears on a person, but you all know that already.

Thanks for the support, it means more than most will know. Didn't sleep much last night, and am tired at the moment. Hope I did not mis-quote myself here on something. I will get through this somehow.

My mind is on several of the members as well,…Laura, Mindy, Tina, Stray, and several more. We all desire to do more than support, but are hands are kind of tied.

Thanks!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"
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