Hello Charles, I am sorry to read that you are having such a hard time with your pain. Yes, I have a pump, mine was implanted back in 2005 and I have done very well with it and not experience any of the problems you have written about. Have you had your psych eval yet? If you live in the states you will have to undergo a psych evaluation prior to having the pump implanted if the trial is considered a success.
I have a wonderful PM dr that knows these pumps like the back of her hand and that is very important when having one of these. Your dr can either make your pump a success or a failure, depending on how much knowledge they have about the pumps and the medications used in them.
Prior to having the pump implanted I had very little quality life, now its much better and I am able to do some of the things I use to be able to do. The pump does not take away all of your pain, you will still have pain and will need BT meds. My usage of BT meds depends entirely on my activity level. Most of the time I do not need them My pump is refilled every month which is no big deal, my dr says the medication loses its potency while sitting in that small little space and I believe her on that one. So far everyone that I know that has a pump has not had problems, they have pretty much rocked on like me.
I do urge you to go to Medtronics.com and read about the pumps and educate yourself somewhat better. They have an excellent website with lots of information. Also, you can use the search feature here at the forum and type in pain pumps and you will find lots of info there too.
If you are needing specific information please feel free to email me your questions as I would rather not use up good space here repeating myself. I would be more than happy to answer any question I possibly can. Also if you email me please put soemthing in the heading like I am from Healing Well, I am one of those that deletes messages if she does not know who sent it, lol.
Personally speaking, if this were me I would not consider having the pump put in or even doing the trial until I go my head on right about the whole thing. Thats half the battle. I was quite shocked when my prior PM dr recommended it to me and I told him no right then. He said thats ok in 3 months time you will be back here begging me to implant this pump, it was less than 3 months I was back in his office discussing doing the trial. By the way, when I did the trial and woke up, I thought I had died & gone to heaven, I had no pain. It had been so long since I had been without pain.
Again, if I can help in any way let me know.
Moderator Chronic Pain Forum