Oh my gosh... someone out there must really hate me
The pain from my compression fractures has not been settling down. On Thursday I was sitting outside and the pain in my mid-thoracic spine (I had fractures in that area) started getting worse, as did the pain radiating out through my chest and ribs. I saw my GP on Friday afternoon and he increased my Oxycontin as I already seem to be at the maximum effective dose of Topamax. On Friday night the pain in my T/L area started getting worse as well (I had a big fracture at T12) and I also noticed that my knees were hurting really badly. Friday/Saturday the pain in my lower back and knees was terrible and Saturday night it became absolutely excruciating - and I mean like no pain I've ever known. Me crying with pain is almost unheard of, but I was in tears and vomiting with pain, almost ready to ask my Mum to take me to hospital.
I am now unable to sit without this excruciating pain in my legs. I had a CT scan yesterday. Yet to talk to my doctor because today was a public holiday but I gather it didn't show anything new. No surprise really... this new pain was around a 9/10 while I was sitting waiting for the scan, but after lying on my back on the table for a while, by the time they were actually ready to take the images it had dropped to about
a 4/10 so obviously whatever is going on is only really occurring when I'm sitting, NOT lying down :( Just wish I knew what was going on...seems like it's got to be compression because it feels like nerve pain but different to my CRPS pain, it's symmetrical, it's positional. And it hurts so much that I'm at my wits end :(
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, oste
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio