Talk About ~ 1 Nov '11

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   Posted 11/1/2011 11:58 PM (GMT -6)   
Let's continue on with the Top Ten Myths of Chronic Pain.

Myth #2: If people seek treatment or complain about their pain, it means they’re weak.

Fact: Seeking treatment has nothing to do with being weak. Many people with chronic pain feel trapped and helpless, and do not want to burden anyone else with their problem. It is important for them to realize that there is no need to suffer because effective treatments are available.


I don't know how anyone else feels on this topic but it can light a fire under me. Weak? I would counter with the argument that those who live 24/7 are the strongest people on the planet. Challenge anyone else you know to give it a try for one day...just 24 hours and see how they like it. Have them twist their arm around behind their back and tie it there. See how they like the feel of it. Have them image going to a doctor for help and being told..."it's all in your head; or you're too young for pain medications; or gosh, those things are addicting." NO kidding! And do they think we all just love taking them??? Yes, there are people in every walk of life who abuse any system but I would venture a guess that those who live in chronic pain abuse medication the least of all people. The addiction rate for those suffering with Chronic Pain is miniscule.

OK, down off of my soapbox. On the the next poster...
Moderator on the Fibromyalgia and Chronic Pain forums
Fibromyalgia, IDDM. UC, , Osteoarthritis slowly meandering around everywhere
The most exciting phrase to hear in science, the one that heralds the most discoveries, is not "Eureka!" (I found it!) but "That's funny..." ~Isaac Asimov

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   Posted 11/2/2011 4:24 AM (GMT -6)   
Oh gosh... I agree 100% Chutz. I've been through exactly that experience - I've probably related this when I first told my story here, but the response of my orthopaedic surgeon to my pain not having months/years after surgery was that teenage grils were prone to hysteria and hypochondria, and that all the help he could offer me was a psychiatric referral.

The Myth statement itself - I believe that many Chronic Pain patients are showing incredible STRENGTH by seeking treatment. Just look at the stigma we get - the pain medications, being unable to work (I'm 26 and on long-term disability). All I can say is anyone who gives a CP patient a hard time should try walking in my shoes... they'd not even be able to get the darn things on their feet :(
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

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   Posted 11/2/2011 10:40 AM (GMT -6)   
Fortunately, I've not had any doctors raise concern about my meds, except the interventional PM I am now seeing. She seems quite cynical and does not prescribe any narcotics. So she seem to look down on the fact that I am taking opioids. But there is something clearly wrong with her judgment: as I am there to find relief from something other than opioids, and am willing to go through the pain and expense of injections, she should not be insinuating any impropriety for what I do take. From her comments, I get the impression that routine opioid use is addiction driven, regardless of pain levels.

Of course, I don't agree with her.

The issue of strength that plays the largest role for me concerns the balance between one's BT pain meds and one's pain levels. Most of us have to temper our med use for one reason or another, forgo relief and have to accept the untreated pain.

PMs give us a ration of BT meds and we have to heed those limits, making our meds last. Or, we say no, accepting the pain for the sake of the long-term efficacy of the opioid. If I were to take a BT med whenever I was in pain, I would take one daily, or even 2x per day. But tolerance would then undermine the meds. So I time and again, "say no to drugs" and have to cut out hours of work and stay in bed with ice.

It takes a lot of strength to know that a drug could bring pain from a 6 down to a 2, and not take something in order to help extend the drug's efficacy farther into the future.

Additionally, one big thing that most do not understand is the toll that long-term pain takes mentally. Most people are familiar with a pain that recedes in a very short time: a few minutes, or hours. Now and then, they have something for a few days. But to be in pain daily, every day for years, for the rest of our lives -- there's not just pain there, but suffering. It is a mental anguish that runs us down and has to be fought. To keep on going through a life lived in pain....they have no clue.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

Retired Mom
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   Posted 11/2/2011 10:43 AM (GMT -6)   
I have to chime in on this one. I feel so strongly about CP patients being treated poorly. Our families don't often understand what is going on and when we have a good day (or few days) and can help do things, then we must be faking...but when we are having visably bad days....we are in "such bad shape". It's impossible to explain to people how strong we must be to deal with the inquisitive minds and flapping tounges. I often feel like the target of so much negative gossip (either because I am limping on one day or not on another.....or because I need a cane at some times and then can walk almost normal on other days). Of course everyone here can understand. I have braces on my feet that I don't often display to others and after many weeks of severe pain, a FRA does wonders for me for a few months. This of course leads to the complaint that "if she would just get up out of that chair and do something she would feel better".

I think that people forget how strong we have to be to survive physically and emotionally. We live in the balance between constant pain and fear of our next PM apt.....what will happen? Will they discontinue my treatment? What if I'm having a good day when I go in and they reduce my meds? Will my family continue to understand when I am back in the nightly tears from pain again? Then there is the "self" diagnosis of all of your family and friends that you are just a hypochondriac or simply looking to get out of something......NOT!

Oh yes, we are strong people and we almost always have to keep it to ourselves and internalize the pain because there is noone to advocate for us. The drug seekers and the gov't oversight have us under a microscope now and we have to walk a very fine line to keep ourselves together.
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

New Member

Date Joined Oct 2011
Total Posts : 2
   Posted 11/4/2011 11:42 PM (GMT -6)   
I best not get going on this, because I'm not sure there is enough bandwidth to support it all. Suffice it to say,the crap spewed to my daughter, who has chronic pain issues when her two newly dx'd auto-immune issues flare, is enough to make me violent.

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   Posted 11/5/2011 5:57 AM (GMT -6)   
Hear hear!!!! I didn't know everyone was as angry and frustratesd with these issues..It is my pet peeve with moderm medicine.

Like alberta, I could go on for pages with my rant against the pharmas and the FDA, limitig access to palliative meds...and in the US I fear things will only get, gov't scrutiny, and massive new regulations will force old PMs out and keep new ones away..

C'mon, walk a mile in my shoes you would collapse in pain after a 100 yards-LOL

"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica

welbutrin HBP meds abilify seroquel hydrocodone flexeril klonopin magnesium

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   Posted 11/5/2011 9:46 AM (GMT -6)   
Not being able to get permanent relief and having everyone, especially the docs, kick me to the curb is giving me depression. I'm starting to read that forum now.

White Beard
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   Posted 11/5/2011 6:05 PM (GMT -6)   
You have hit upon a subject that is near and dear to my heart! A subject I have seen and experienced from both sides of the fence, from being one suffering with chronic pain, to being on the medical side and treating patients suffering with chronic pain. All I can say is it is shameful the way so many ( supposedly literate trained doctors and medical staff still treat their patients suffering with chronic pain! There simply no excuse for it in this day and age! But yet it still routinely happens. Chronic Pain patients are not weak or inferior members of the human race! We are not drug seeking addicts, or criminals either!
I thought with knowledge and education, comes wisdom, and surely Doctors and Nurses, and others in the medical field that have the education and knowledge, would surely have the wisdom to know about us people that suffer with chronic pain, and know how to adequately treat the pain and treat us, the patient with caring compassion, and  respect! Sadly  all to often, that to,  is also just a myth! The Doctors and Nurses that truelly knows how to deal with a patient that suffers with chronic pain, is far to few!  I am not saying that there are not good Doctors and Nurses out there that do know how to treat chronic pain patients,  all I am saying, is that they are way to far, and few between! And it just should not be that way!
I better quit while I am a head and not say something I might regret! But I have fought this, as a patient, and as a nurse being my patients advocate! Then reading so many of the post, right here on this forum, by members of our chronic pain family, and to say the least it is often disheartening! I truely feel for those that do not have a good PM Doctor. I can and do empathize with all of you!
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 11/5/2011 5:08:45 PM (GMT-6)

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   Posted 11/5/2011 9:52 PM (GMT -6)   
If this myth were true then there sure is a lot of weak people in our society, lol. I have always felt that people that suffer with CP are some of the strongest people walking this earth. It takes an extremely strong person to get up and function 24/7 sometimes in incredible pain, but yet they push on. Most people would have just cratered trying to make it one day, let alone dealing with it 24/7.

I think most of us could go on for days about this subject.
Moderator Chronic Pain Forum

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   Posted 11/6/2011 5:37 PM (GMT -6)   
I could say a lot but I won't. It breaks my heart seeing chronic pain patients suffering when they don't have to. There are so many different treatments out there for us. The doctors have no excuse in my opinion. It just makes me sick. I thank God that my PCP is willing to prescribe my pain meds.

I hope all are doing as well as is possible considering.

love and hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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