"Too young for this pain"-- *PLEASE HELP! *Share your story and suggestions!!

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♥♫ ώïττÿ εṃεɾαlḋ ♫♥
New Member


Date Joined Nov 2011
Total Posts : 13
   Posted 11/10/2011 6:24 PM (GMT -6)   
Hello! Thank you for clicking on my post. I hope you'll take the time to read my story and share your own stories and advice.

I have been dealing with chronic pain and mental health problems for a years now. I'm sixteen now and my pain and depression and anxiety started getting really bad around three years ago.

I did display some symptoms when I was a child though. Sometimes the back of my calves would hurt so bad that I couldn't sleep. I would lay in bed and cry and grab my legs and wish that they would stop hurting. This occurred since I was a child but everyone said it was "growing pains". I've also always been anxious around people. When I was in elementary school, I used to lay in bed the night before school and obsess over silly things. I would worry that my homework wasn't in my bag or that my teacher would call on me a lot to answer questions. I would panic while waiting for the bus in the morning. Once I got to school, my face would turn so red and I felt like I was going to die just because I had to say "here" during attendance. While walking through the hallways, I felt like everyone was staring at me.

My more serious pains started three years ago when I was thirteen. It was a constant ache in my shoulders and neck at first. I also started getting migraines around this time. I visited neurologists and my primary care doctor and specialists but nothing helped. I also began having problems with my mental health later that year. My pain kept getting worse and so did my depression and anxiety. I started turning to negative coping skills, such as self injury, to deal with it. I was hospitalized in a psychiatric hospital for three days when at the end of that year because I was planning on killing myself. I was also hospitalized three times last year: once in a medical hospital for migraines and twice in a psychiatric hospital- once for self harm and thoughts of suicide and another for an attempt including a large consumption of alcohol and pills. I missed a lot of school that year.

My pain kept getting worse and worse to the point where it is unbearable now. I lay in bed and sob with a heating pack on. I take my "rescue meds" but they don't really help. I've missed this whole week of school. I am starting to get scared that I'm going to do something to hurt myself because I don't know how long I can take this pain. I don't want to live like this. I can't keep going on feeling this way. It is physically impossible for me to do lots of daily tasks. My pain is a ten out of ten and it's all over! My toes and fingers feel like they're cramping, my ankles and wrists ache, the back of my calves always burn, my neck and shoulders hurt so bad, my back aches, and I still get migraines all the time. All of my doctors lately (my therapist, my psychiatrist, and my pain doctor) have said "hang in there". How am I supposed to hang in there?

I've tried physical therapy, therapy, I see a psychiatrist, neurologist, rheumatologist, and a pain doctor. I've received injections, pain meds, advice on coping skills to use. I try to journal, draw, write, exercise, do some deep breathing and imagery, distract myself, pray, listen to music, look up suggestions online, and talk to people, but NOTHING is helping this pain. It's unbearable. cry I can't do this anymore.

I don't know what I'm going to do. I literally just sit around and cry all day. sad This pain is unbearable. I can not live my life. How can I go on? I am close to overdosing again and just ending the pain. cry Please help.

Please share your stories and advice on anything related to this. I would love to hear stories from people who are going through something similar to what I am and I would also love to get some support and advice.

Thank you. Have a great night!

--I forgot to talk about my diagnosis! Doctors have thought that I have RND, or amplified pain syndrome, fibromyalgia, or dystonia (The DRD gene. It runs in my family). I need something to help me get through this. I'm starting to think about just ending this pain. Please help.

Post Edited (♥♫ ώïττÿ εṃεɾαlḋ ♫♥) : 11/10/2011 4:38:10 PM (GMT-7)


Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 11/11/2011 9:36 AM (GMT -6)   
Witty Emerald - welcome to the board. I am sorry you have a reason to be here, but you will find this a very supportive group.

Thoughts of self harm and suicide are an emergency, with or without chronic pain. Please talk to your therapist, psychiatrist, or an adult you trust that you are thinking of these things.

Many people on this board suffer from chronic pain but still lead full, happy lives. Many of us have also struggled with depression, which often co-occurs with chronic pain, or have had a long road before we found enough relief to feel somewhat normal again.

I saw in another thread you are in Pittsburgh. Have you been seen at The Children's Institute rehabilitation program? They have an intensive chronic pain/RND rehabilitation program that sounds like it might work for you.

♥♫ ώïττÿ εṃεɾαlḋ ♫♥
New Member


Date Joined Nov 2011
Total Posts : 13
   Posted 11/11/2011 10:19 AM (GMT -6)   
Thanks for replying! That's funny that you mentioned that clinic. I was evaluated there 2 years ago. There were issues with transportation and they would not let me stay inpatient, so that didn't work out.
I do love the doctors at Children's Hospital in Lawrenceville. They are starting to make there own pain clinic instead of sharing space on the same day surgery floor. Dr. Stough is especially great. :)
Thanks again for posting. <3

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 11/11/2011 11:20 AM (GMT -6)   
I read your posts and just had to say, so very sorry your having to go thru all this
at such a young age...many Prayers to you...you have such courage is what I got from
your post...Maybe once they have that pain clinic at that hospital in Lawrenceville all
up, they will be better able to help you...they are making progress in medicine all the
time, keep hope in that...medicine is ever evolving...
Many Prayers for you...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 11/11/2011 1:17 PM (GMT -6)   
Dear Emerald

Welcome and very sorry for your pain...it is especially sad for me to read of young people with this pain. I leda full life for 50years before diagnosis of chronic pain, so it is easier to accept but still sux.

I don't really have any suggestions exceptany idea of hurting yourself, you need to call psychiatrist asap..it is an emergency!!

Please hang tough and post here when it gets too bad..we care, we really do

Take good care
Maggie
"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica


welbutrin HBP meds seroquel hydrocodone magnesium potassium multi vit

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16423
   Posted 11/11/2011 2:00 PM (GMT -6)   
Hi Emerald and welcome to Healing Well's chronic pain forum. I am so sorry to read that someone as young as you, is suffering as you are. It is not right and does seem so unfair someone your age to be having the problems that you are. One thing I have learned since being at this forum is pain does not discriminate when it comes to a persons age. We have had many young people come through here over time that suffer with chronic pain of some kind. As bad as it is, many were able to finish their education and that includes college. It was very tough but they hung in there and managed to do it. As one of the other members said it is possible to have a life and live with CP.

I urge you to contact your drs that are helping you with your mental health issues immediately and let them know the condition you are in and what kind of thoughts you are having.

This forum has rules that we ask all members to abide by and become familiar with. Please read the rules pertaining to discussion of suicide and self harm. Again, either call your drs or contact a crisis line.

Please keep us posted on how you are doing.
Moderator Chronic Pain Forum

♥♫ ώïττÿ εṃεɾαlḋ ♫♥
New Member


Date Joined Nov 2011
Total Posts : 13
   Posted 11/11/2011 5:40 PM (GMT -6)   
Thank you all for posting and caring! It means a lot to me that you took time out of your day to try to improve mine!!

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 11/11/2011 8:22 PM (GMT -6)   
Hi Emerald Welcome to the forum. I'm glad you found us. This is a very supportive and caring group of people.

Please call your psychiatrist and tell them how you are feeling. I'm so sorry that you're having to go thru so much at such a young age.

Keep us updated on how you're doing because we do care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 11/12/2011 1:52 AM (GMT -6)   
i am young also. pain has no age
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: MScontin 100mg q8hrs. , dilaudid 8mg q6hrs. prn, oxymorphone IR 10mg q6 ,vistaril 50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Elavil 25 HS, diazepam 10mg bid prn, Supplements: CO-Q10 100mg, Vitamin D 1000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, ALA

♥♫ ώïττÿ εṃεɾαlḋ ♫♥
New Member


Date Joined Nov 2011
Total Posts : 13
   Posted 11/12/2011 3:11 PM (GMT -6)   
You sound like you've gone through a lot for being so young. I'm sorry. It sounds like you are coping very well though. :) thanks for posting!

Sue123
Regular Member


Date Joined Nov 2011
Total Posts : 52
   Posted 12/9/2011 11:58 PM (GMT -6)   
The thing that helps me the most is to learn as much as possible about my disease and focus on vitamin supplements to help my body be its strongest. You're not alone, being in pain causes depression. That's why the doc's say to hang in there, if they had more time, they would say more. I read RND is curable ... so stay strong, someday it will get better. The patience and inner strength you will get from this experience will help you throughout your life. Here's two websites to give you more hope. And please reach out to someone when you're feeling suicidal or on the edge of self-harm, call somebody! The other websites list Pittsburgh's crisis lines. Don't be embarrassed to call, I've been there before and later on, glad I reached out.
Take care and try to do one nice thing for yourself every day, Laura


http://childhoodrnd.org
https://www.inspire.com/groups/rare-disease/discussion/rnd-total-body-pain-and-headaches/

http://pittsburgh.about.com/od/health/tp/Pittsburgh-Crisis-Intervention.htm
http://www.wpic.pitt.edu/research/adhd/crisisservices.htm

Pittsburgh Crisis and Suicide Hotline 412-820-4357 or
1-800-SUICIDE (Calls answered 24-hours/day, 7 days/week)

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 12/10/2011 12:46 AM (GMT -6)   
Dear Witty....Please listen to the others and let your doctors know how you are feeling. If you feel in danger before you get to see a doctor then go to your local emergency department.

I am so sorry that you have to deal with this kind of pain at such a young age, I now have one more thing to be grateful for that this thing called chronic pain did not creep into my life until I was 42. However, like someone else said pain has no age. Please try to hang in there.

Feel free to e-mail me if you just need someone to talk too, I understand and I care.

Take care, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/10/2011 5:46 PM (GMT -6)   
Dear Emerald, we haven't heard from you in a bit. I hope you are ok. Can you come and post for us. We do care. Take it slowly, and lean on those who care about you sweetie.

Hope to hear from you soon

Suzane

db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 12/12/2011 12:19 AM (GMT -6)   
Hi there,

I myself am young as well.
I'm not as young as you; I'm 20.
However, I've been experiencing pain since I was younger as well.
What meds are you on for pain?
Maybe they could be adjusted to provide more relief.

Please send us a msg here on this forum to let us know that you are indeed alright.

db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 12/12/2011 12:20 AM (GMT -6)   
Hi there,

I myself am young as well.
I'm not as young as you; I'm 20.
However, I've been experiencing pain since I was younger as well.
What meds are you on for pain?
Maybe they could be adjusted to provide more relief.

Please send us a msg here on this forum to let us know that you are indeed alright.

joshb12
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/12/2011 8:07 PM (GMT -6)   
hey,
i don't really have anything to say that's probably helpful, i just posted my own story on here in hopes maybe someone can help where my local docs cant,
and i stumbled upon your post.
 
And i just wanted to tell you i don't know the whole extent to what you're going through, but i do understand how hard it is.
And i hope your problems get fixed.
and if you need to vent or anything, message me.
 
 

Spooler
New Member


Date Joined Dec 2011
Total Posts : 5
   Posted 12/13/2011 10:38 AM (GMT -6)   
I have been looking for another doctor and trying to get through to my doctor for over 2 years about the stabbing pain in my shoulder blades that sometimes both burning causes muscle spasms in the middle of my back where I can't move. This started after a lifting injury at work. I was unable to take more than the 3 days off that I was approved and I work 2 jobs and am barely able to pull through just enough to function at work. I have tried ice, heat, massage, light relief, over the counter pain meds, herbal products, and Flexeril from the hospital. It helped me to where I could do more besides barely make it through. My doctor won't continue the regimen and no other doctor will see me, and it is affecting my ability to provide basic care to my clients or my pets, the conditions of my house went way downhill, I had to give up all of my hobbies because I can 't handle how painful they are now, and when I' m not working, I don't get out of bed, and pray that the bed rest will get me ready for the week ahead, but it never does. In Medical-rights.com they talk about the importance that doctors give prescription medications to help control the pain, but it's really important drugs for people...?
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