About to have PET Scan

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/14/2011 8:27 PM (GMT -6)   
I am the guy with advanced prostate cancer dealing with chronic pain from severe nerve damage due to faulty radiation treatment.  I was diagnosed at Stage II cancer, and in 2 years, progressed to Stage III.  Final arrangements are being made for an advanced PET scan test, to see if any of the pain is being caused by metatasis to the bones, in particular, my right hip and right upper leg bone (femur?).  It would be a catch 22 if the test shows something positive, it would give a clear explanation for the increasing pains, but  then would move me to Stage IV with the cancer.  I am only 59 currently, diagnosed at 56.
 
I am hoping for the best, but it will be whatever it will be.  I am already in a non-curative situation, having been through both surgery and radiation.
 
Thank goodness for an understanding oncologist and the ability in my area (SC) to not have any difficulties in obtaining the pain meds that I am on around the clock.
 
Told my doctor, that I don't what we are going to do when the cancer progresses even further, already on loads of Loratabs and Morphine patches.  Rather not think about it when it gets even further along.
 
But, I never give up hope, and try to make the best out of each day, despite my situation.
 
David in SC

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 11/14/2011 10:43 PM (GMT -6)   
Many Prayers be with you and for a good PET scan....
wish I knew what else to say....Well wishes and Prayers...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9258
   Posted 11/14/2011 11:43 PM (GMT -6)   
Hello again my Friend, David!

I too will say extra prayers for your situation. I pray that your cancer has not spread. You might not get an answer to your pain question but you will at least not be progressing with the cancer.

One thing I don't think I mentioned last time I responded to one or your posts is that my father passed away from prostate cancer. I almost hate to say it but then it's nothing you don't know about. Dad was 83 though, a far cry from your youthful age. Unfortunately he was with an HMO (Group 'Death'...Group Health as others call it). Not only did they not treat him when it was first seen, they didn't even tell him he had the problem for several YEARS! He had no chance to fight it.

You are an amazingly strong man, David. PC is a tough one to live....I watched it take my father. But you have such a wonderful disposition and outlook. I am humbled.

Please keep us posted on how you are coming along and if you can share the results of the PET please do.

Warm hugs,
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Fibromyalgia, IDDM. UC, , Osteoarthritis slowly meandering around everywhere
~~~~~
The most exciting phrase to hear in science, the one that heralds the most discoveries, is not "Eureka!" (I found it!) but "That's funny..." ~Isaac Asimov

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 11/15/2011 3:21 AM (GMT -6)   
Hi David,

We've not met before but I just wanted to offer both my sympathies and my very very best wishes for your PET scan. Will keep you in my thoughts.

Laura

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/16/2011 1:07 AM (GMT -6)   
thank you, chartreaux

chutz, sorry to hear about your father. though not written in stone, my current prognosis is about 2-4 years max at the rate of progression, my PSA is doubling about every 10 weeks, not a good sign. in the bigger picture of things (life), i am at peace with it all. over 30,000 men die a year, just in the US, from this terrible cancer. trust me, its not the "good cancer to have" as often reported in the news. i never had any symptons ahead of time, just normal PSA testing every year.

while i contribute a lot of my time on HW Prostate Cancer, I am hoping to be some help and of encouragement to your community here as well. We all share equally on the subject of Chronic Pain.

thanks, laura, i will be reporting back after the test results.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 11/16/2011 2:17 PM (GMT -6)   
Hello Dave, many many extra prayers going out to you each and everyday.  Your attidude alone will be so very helpful to you.  And you are so right, never give up, I cant imagine how difficult most of your days/night are, but keep fighting and we will all keep praying and praying hard.
 
Good luck and please take care,
 
Kathy/nini
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/16/2011 2:26 PM (GMT -6)   
thank you Kathy,

after passing the 3 year mark recently in my Prostate Cancer battle, it's all kind of a blur to me. In the first 2 years, its was horrible, including 2 major operations, 6 lesser operations, 2 months of radiation treatments that were administered wrong and caused me intense damage and the beginning of the chronic pain that I still endure. I never feel sorry for myself, there are many so much worse off than myself.

i have a stubborn mindset, sometimes its a good thing, sometimes not, lol. but i refuse to let what is happening to me dictate how i feel about myself and life. this cancer is higly likely to take me out, there's nothing i can do about that part, but in the mean time, i am trying to take care of my wife and family, and to take time to enjoy a few things (that i am still capable of doing) and finding time to help others. the "helping other" part is the best medicine for what ails me.

I know all about pain, fear, and suffering, so it makes it easier for me to relate to others in pain and empathize with their ailments. I know some of you in this community have to fight the stigma of having friends, relatives, employers, and others not being able to really comprehend your own pain and suffering.

Some of this, unfortunatley is human nature, but some of it just plain old fashioned selfiishness in my opinion. You have to live with chronic pain, to really, really understand how it effects every aspect of your life.

Life certainly isn't all roses and sunshine (I wish), but there are good life lessons we all can learn when we live and exist in the darkness of severe pain, depression, and illnesses.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 11/16/2011 2:52 PM (GMT -6)   
Hi Dave

I think we talked on PC about my hubby. He was dxd in 2006 with aggressive advanced PC (5+5), did surgery and took bladder tissue and valves and said 2 years..he is still 0 psa but suffering alotof diffuse body pain. Yes, people think PC is a baby cancer, oh pshaw!!! Ticks me off, but there is so much ignorance about sao many of our conditions.

I pray it has not metastasized, but wish there was relief. Will you do lupron again if it has spread? As a wife of PC guy, you know I will have a specialprayer for you and yr family. Would you be so kind as to share with us? My hubby is 62 dxd at 57...you are in my prayers

Please let us know
Maggie
"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica


welbutrin HBP meds seroquel hydrocodone magnesium potassium multi vit

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/16/2011 4:34 PM (GMT -6)   
Maggie, I remember you and your husband.

I have never been on Lupron or any other kind of Hormone Therapy. My oncologist doesn't feel that it would work very long for me, and only heap even more side effects and low quality of life issues for me. His goal right now, is to control the pain the best ways possible, and keep me comfortable, as the cancer progresses, hoping to strengthen me for the next stage of this battle. I am comfortable with this plan. On a good day, my meds keep away 80% of the worse of pain under control, on a bad day, perhaps 50% or less, but then again, I can only be so medicated. I don't want to be in a "coma" or brain fog from being overly medicated, so its kind of a trade off, one I work closely with my doctor. It's all a balancing act.

I am at the point in my life, where the quality of life is way more important to me than sheer quantity. I am not afraid to die, though if it was my choice, I am not quite ready to go to the check-out line, lol. I will let God decide my departure for me, that works for me, lol.

You said your husband had bladder tissue removed, did he have to have a Urostomy like me? A stoma for life, because my bladder was so severely damaged by radiation burns.

I will remember the two of your as well. In my perspective of things, I don't feel that anyone gets an easy ride, we each have our own battles and our own demons to fight.

Bless you

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 11/16/2011 6:10 PM (GMT -6)   
Hi David I will be thinking of you and praying that the cancer hasn't spread to your bones. Take care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/16/2011 7:20 PM (GMT -6)   
thanks and hugs, loretta
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 7:50 AM (GMT -6)
There are a total of 3,006,378 posts in 329,332 threads.
View Active Threads


Who's Online
This forum has 161830 registered members. Please welcome our newest member, dcbumstead.
286 Guest(s), 6 Registered Member(s) are currently online.  Details
Gemlin, island time, Jay79, dmanIndy, paisan, iPoop