Introducing myself

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Lulicious
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/22/2011 11:07 AM (GMT -6)   
Hey Everyone, I am new here. In 1995 I had a patient (i was a CNA) fall out of the hoyer lift and crushed me into the concrete floor, she was about 300lbs! I had herniated L5-S1. I had my first posterior fusion in Jan 1996, by May of 1996 the transverse connector rod became dislogded and was floating around impinging on my nerves to my legs. That June they went in and took out all the hardware. All this hammering and screwing caused more damage to the surrounding discs and caused my spine to slip forward called spondyloletsis, it also caused degenerative disc disease. Dying in pain for more that 7 years, I finally agreed to another surgery as the slipage was going to cause paralysis. In April 2007 I had a anterior and posterior fusion from L1 thru S1. I have a 14 inch scar on my stomach and 16 or so inches on my back. I'm am sad to say that this did nothing to help with pain nor with improving my quality of life. Everyday my legs alternate depending on how I am sitting, one is freezing cold and numb, then I move and it goes to the other leg. I also have absolutely no feeling from just above my incisions to about the back of my knees. all the way around front to back, you can pinch me as hard as you can and I don't feel nothing but tingling. I have not been able to sleep in a bed since the surgery because you can feel the rods when you lay down. So I have been sleeping in a recliner since. I was told by the surgeron that I had a 90% chance of having all my pain relieved. HAH BS I am worse off now that I have been since this started 16 years ago. I was 27 when this happened. I also have had 4 bladder surgeries since the last fusion as there is some sort of nerve damage to my bladder and they have yet to figure out how to fix it. I have been seeing the same pcp since I was 16, I will be 44 in a few weeks. All of a sudden 2 months ago he decided that I needed to decrease my meds because of some stupid study that insists that chronic pain patients should ALL be under less than 100mg of any type of pain meds per day. about 6 months ago I was not being managed well in the pain area. I was on a fentanyl patch 72mcg every 3 days. I had to have my ovaries removed because the looked cancerous which shoved me into instant menopause, they refused to give me hormone therapy because of my bp which has been well controled with meds. SO the dumb patches would not stick to my skin. We finally found a good combination that works. 60 mg of MS Contin twice a day and 15mg of oxycondone 3x a day. I was actually feeling better. Til he found this study.  http://archinte.ama-assn.org/cgi/content/short/171/16/1426 of course they won't let you read the whole thing. But is is basically we are all druggies and we are overdosing at an alarming rate and our depression is out of control. Yet the study only looked at 1000 people, not all where cp patients, some where surgical and others where drug addicts. Right now I really don't care what the study says, All I care about is what works for me and my quality of life. So I am going to look at a PM as I haven't had one in about 6 years because nothing they did helped and I felt like a pin cushion. I am interested in this medicinal pump that I have been reading about. Thanks for listening :) Happy Thanksgiving to all
Cheryl

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/22/2011 12:50 PM (GMT -6)   
Cheryl,

Welcome the board. I'm glad you found your way here. But I'm sorry you are suffering w/ pain issues.

Re: your doctor and his "study" (I'm sorry, I didn't read it, but as a chronic pain patient for many years, I don't really care what it says).... I'm sorry but that's ridiculous.

I don't know what it is about these doctors that have a patient who is stable on their pain meds... and then find random reasons to decrease them. ?? Anyway, I'm sorry that happened to you w/ this doctor. All I can tell you is what I would do - and that would be to immediately find another doctor.

Re: the pain pump - it can be a great thing for chronic pain patients who - usually - have exhausted all avenues w/ oral medications. I've had the trial myself and can choose that option at any time. That being said, I'm now stable on my oral medications so I've chosen to hold off for as long as possible (I'm 38 years old).

Anyway, just wanted to welcome you... and look forward to getting to know you.

Take good care.... --Tina

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 11/22/2011 6:53 PM (GMT -6)   
Hi Cheryl and welcome from me too,

I'm sorry that you've been through so much, and to have your doctor messing you about with medications as well seems ridiculous :(

Laura

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16284
   Posted 11/22/2011 10:36 PM (GMT -6)   
Hi Cheryl, I too am very glad that you found us here at Healing Well. One thing we all understand very well is pain and what it can do to a person. I read about your surgery and how you are doing now and it just saddens me to no end.

I am afraid I have to say your PCP need to investigate things a little more when it come to narcotics and CP patients. There has been several studies over time and recent ones that all clearly state that CP patients rarely ever become addicted to the pain medication.Their bodies may become tolerate to pain meds if they have been on them for a while but that is not addiction by definition. Addiction falls in the category of people wanting the meds to get high on, obtaining the meds illegally and that sort of thing, recreational use and such. Just burns me up to hear someone make a statement like that, especially someone that is suppose to be educated.

I do hope that you will consider finding a good PM dr. Please know that there are two different kinds of PM drs out there. One will do nothing but procedures & injections only, no medication of any kind, the other of course will do the same but will also write scripts for meds he/she may feel is appropriate. So, if you get scheduled with one, please call the office as soon as you know about the appt and ask the person answering the phone if he does procedures and also will rx medication if necessary. You will not sound like a junkie either when making this call. Explain that you know some do not write out scripts.

Good luck on getting into a new dr and keep us posted on how you are coming along. Take care.
Moderator Chronic Pain Forum

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 11/23/2011 6:34 AM (GMT -6)   
Welcome aboard Cheryl. I am sure you will enjoy the company here.
So sorry for all the pain you have been thru and continue to. That must have been horrible
when that patient fell onto you. I hope that a good PM doc will be able to help you.
Let us know how you make out in your search.

Suzane
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